Bilateral Femur with Dr. Paley 11/2022

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Posted on Jan 11, 2023, 3:49 pm

#61

PT told me today that the things I am feeling are very normal. PT is what I am looking forward to everyday. It’s pretty fun. A few people are leaving this week. It is interesting that people say they want to be done and leave as soon as possible, but when it comes to the time to leave, it is a little sad as many have lived here for at least 3 months and got used to the life here. I am looking forward to going back as soon as possible though. Consider that I have 43 mm to go, i.e. 43 days, and that I’ve been here for 44 days, I am almost 1/2 done with the process!

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the188cmdream

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Posted on Jan 11, 2023, 4:57 pm

#62

Quote from: erenyeager1 on January 11, 2023, 03:49:28 PMPT told me today that the things I am feeling are very normal. PT is what I am looking forward to everyday. It’s pretty fun. A few people are leaving this week. It is interesting that people say they want to be done and leave as soon as possible, but when it comes to the time to leave, it is a little sad as many have lived here for at least 3 months and got used to the life here. I am looking forward to going back as soon as possible though. Consider that I have 43 mm to go, i.e. 43 days, and that I’ve been here for 44 days, I am almost 1/2 done with the process!

Do most people make it to the full 8 cm?

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portnoy

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Posted on Jan 11, 2023, 5:17 pm

#63

Quote from: erenyeager1 on January 11, 2023, 03:49:28 PMPT told me today that the things I am feeling are very normal. PT is what I am looking forward to everyday. It’s pretty fun. A few people are leaving this week. It is interesting that people say they want to be done and leave as soon as possible, but when it comes to the time to leave, it is a little sad as many have lived here for at least 3 months and got used to the life here. I am looking forward to going back as soon as possible though. Consider that I have 43 mm to go, i.e. 43 days, and that I’ve been here for 44 days, I am almost 1/2 done with the process!

Not sure if mentioned it but what would be the cost breakdown for this at Palay? With housing, transport etc. (Also does he offer insurance for complications?)

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portnoy

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Posted on Jan 11, 2023, 5:26 pm

#64

Quote from: racecarworm on January 10, 2023, 09:07:18 PMTheres a video of me doing squats on my most recent post
I went from 5’7 to 5’10. Biomechanics wont matter much unless your femurs were already very long.
I could do a squat ass to grass which I think matters a lot more than proportions.

Reading that thread you seem to have some regrets. Would that be correct?

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krizza81

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Posted on Jan 11, 2023, 6:29 pm

#65

I'm in my early 20s as well. If you don't mind me asking how did you afford this? Did you save up or did your parents help you financially to proceed this procedure?

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erenyeager1

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Posted on Jan 11, 2023, 7:53 pm

#66

Quote from: the188cmdream on January 11, 2023, 04:57:08 PMDo most people make it to the full 8 cm?

Most patients that I’ve talked to get very close to the limit. For femur only they usually are able to reach 7.x cm and for both femurs and tibia usually 9.x cm. I will honestly be happy with 7 cm, but I will try my best to push to 8 cm.

Quote from: racecarworm on January 09, 2023, 08:58:00 PMYou should be able to ask Paley for more oxy

Talked to a few patients about this. Robbins doesn’t give people any more oxy at my stage of lengthening, so pretty much what I have left is what I have for the last few weeks.

Quote from: portnoy on January 11, 2023, 05:17:34 PM
Not sure if mentioned it but what would be the cost breakdown for this at Palay? With housing, transport etc. (Also does he offer insurance for complications?)

For femur, 100k for surgery, 15k for housing, at least 6k for caregiver if you are alone, and plus food and transportation. Insurance is not something that doctor offer. You should check with your insurance company if they cover these things. Mine covers additional PT but definitely not complications, and I am not confident that any insurance company will cover complications from elective surgeries. I prepared 30k for additional cost just in case.

Quote from: krizza81 on January 11, 2023, 06:29:19 PMI'm in my early 20s as well. If you don't mind me asking how did you afford this? Did you save up or did your parents help you financially to proceed this procedure?

I’ve been thinking about the surgery for a long time, like since high school junior year. I didn’t have the money then, and my parents didn’t want me to do it back then. I saved 35k with two college internships and saved like 90k working two years after graduation. My parents also chipped in 50k for living cost and potential complication if it happens (which is very unlikely at this point). I saved them some money by finishing college a year early thanks to pandemic. If you work in tech or consulting or trading or banking, it shouldn’t take too long to save for the surgery. I don’t recommend that you do the surgery if you would be stressed about finance during the course of the surgery. The surgery is already difficult, worrying here and there would be bad to your mental health.

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Quote from: the188cmdream on January 11, 2023, 04:57:08 PMDo most people make it to the full 8 cm?

Most patients that I’ve talked to get very close to the limit. For femur only they usually are able to reach 7.x cm and for both femurs and tibia usually 9.x cm. I will honestly be happy with 7 cm, but I will try my best to push to 8 cm.

Quote from: racecarworm on January 09, 2023, 08:58:00 PMYou should be able to ask Paley for more oxy

Talked to a few patients about this. Robbins doesn’t give people any more oxy at my stage of lengthening, so pretty much what I have left is what I have for the last few weeks.

Quote from: portnoy on January 11, 2023, 05:17:34 PM
Not sure if mentioned it but what would be the cost breakdown for this at Palay? With housing, transport etc. (Also does he offer insurance for complications?)

For femur, 100k for surgery, 15k for housing, at least 6k for caregiver if you are alone, and plus food and transportation. Insurance is not something that doctor offer. You should check with your insurance company if they cover these things. Mine covers additional PT but definitely not complications, and I am not confident that any insurance company will cover complications from elective surgeries. I prepared 30k for additional cost just in case.

Quote from: krizza81 on January 11, 2023, 06:29:19 PMI'm in my early 20s as well. If you don't mind me asking how did you afford this? Did you save up or did your parents help you financially to proceed this procedure?

I’ve been thinking about the surgery for a long time, like since high school junior year. I didn’t have the money then, and my parents didn’t want me to do it back then. I saved 35k with two college internships and saved like 90k working two years after graduation. My parents also chipped in 50k for living cost and potential complication if it happens (which is very unlikely at this point). I saved them some money by finishing college a year early thanks to pandemic. If you work in tech or consulting or trading or banking, it shouldn’t take too long to save for the surgery. I don’t recommend that you do the surgery if you would be stressed about finance during the course of the surgery. The surgery is already difficult, worrying here and there would be bad to your mental health.

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Megatron

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Posted on Jan 11, 2023, 9:23 pm

#67

Hey Erenyeager1, congrats on coming closing to finishing this procedure. Wish you the best on closing it out with 0 to minimal muscle tightness and nerve pain with the rest to go. How was it for you getting around during the lengthening phase month by month breakdown. For example task like getting water, switching from bed to couch, using washroom, brushing teeth, showering etc.. Would like to get an idea of what future lengtheners are in for in terms of the beginning stages with mobility, and completing task that used to be so simple for them.

Do you have any idea when you'll be cleared to start walking short distances with a walker?

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erenyeager1

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Posted on Jan 11, 2023, 10:07 pm

#68

Quote from: Megatron on January 11, 2023, 09:23:15 PMHey Erenyeager1, congrats on coming closing to finishing this procedure. Wish you the best on closing it out with 0 to minimal muscle tightness and nerve pain with the rest to go. How was it for you getting around during the lengthening phase month by month breakdown. For example task like getting water, switching from bed to couch, using washroom, brushing teeth, showering etc.. Would like to get an idea of what future lengtheners are in for in terms of the beginning stages with mobility, and completing task that used to be so simple for them.

Do you have any idea when you'll be cleared to start walking short distances with a walker?

The first two weeks you would definitely need someone with you. It is just almost impossible to get around yourself without exhausting yourself quickly and risking falling down etc. Then beginning around week 3 post op, things got a lot easier as surgical pain goes away. All you need is walker next to you and then you can use the walker to get to the wheelchair. I can brush teeth, use restroom and go around with my walker and wheelchair. For things you can’t reach, the hospital give you a grabber which has been very helpful. Shower is okay by myself too. You just need to grab the towels and clothes to change ahead of time. I usually park my wheelchair next to the rollin shower with towels and clothes on it and then transfer to the bench with walker. A few people I met here have been living by themselves since week 2 post op, and they have been doing well. One of them told me that time flies once you last 4 cm.

About walking - when you walk, you are putting your whole body weight on one leg for a brief moment. Even when I have a 75 lbs rod, it is not okay to do this until the bone is completely healed. I think I can start walking with walker in May or June.

Edit Post

Quote from: Megatron on January 11, 2023, 09:23:15 PMHey Erenyeager1, congrats on coming closing to finishing this procedure. Wish you the best on closing it out with 0 to minimal muscle tightness and nerve pain with the rest to go. How was it for you getting around during the lengthening phase month by month breakdown. For example task like getting water, switching from bed to couch, using washroom, brushing teeth, showering etc.. Would like to get an idea of what future lengtheners are in for in terms of the beginning stages with mobility, and completing task that used to be so simple for them.

Do you have any idea when you'll be cleared to start walking short distances with a walker?

The first two weeks you would definitely need someone with you. It is just almost impossible to get around yourself without exhausting yourself quickly and risking falling down etc. Then beginning around week 3 post op, things got a lot easier as surgical pain goes away. All you need is walker next to you and then you can use the walker to get to the wheelchair. I can brush teeth, use restroom and go around with my walker and wheelchair. For things you can’t reach, the hospital give you a grabber which has been very helpful. Shower is okay by myself too. You just need to grab the towels and clothes to change ahead of time. I usually park my wheelchair next to the rollin shower with towels and clothes on it and then transfer to the bench with walker. A few people I met here have been living by themselves since week 2 post op, and they have been doing well. One of them told me that time flies once you last 4 cm.

About walking - when you walk, you are putting your whole body weight on one leg for a brief moment. Even when I have a 75 lbs rod, it is not okay to do this until the bone is completely healed. I think I can start walking with walker in May or June.

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racecarworm

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Posted on Jan 14, 2023, 3:35 am

#69

No, not reallt regrets. Just some things I thought about being taller wasn’t true.

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portnoy

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Posted on Jan 14, 2023, 3:41 am

#70

Quote from: racecarworm on January 14, 2023, 03:35:44 AMNo, not reallt regrets. Just some things I thought about being taller wasn’t true.

Such as?

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