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Posted on Mar 17, 2021, 1:10 pm
#51

Quote from: FormerKidd on March 16, 2021, 10:41:44 PMYou may not be able to walk but you're not wheelchair bound.  I used a walker for the duration of my Precice lengthening and consolidation (on femurs), but I had to essentially had to hop around -- both feet on the ground at the same time, or neither of them.

Obviously, being able to walk is better, but moving around with a walker is far better than a wheelchair.


I am interested in doing precice as well. How much did you lengthen, how much did you weight and when where you able to use crutches?

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Posted on Mar 17, 2021, 3:04 pm
#52

Quote from: Nestor on March 17, 2021, 12:06:05 PMThanks maximize. I've just looked again at my last x-ray and the bones are swollen at the points where the corrosion is occurring. I wonder does this go away after the rods are removed or is it permanent?

I would expect it's likely permanent. Once the bones heal that is just the way they are. Sometimes bones can remodel a bit after healing. Like if you fixate a bone with a slight misalignment and there is a jagged point sticking out at either end usually that will smooth over with time. But generally the way it heals is the way it remains.

If Paley is right, as long as you aren't showing obvious lysis or weak points that thickening will do you no harm. He says he believes this hypertrophic bone should be stronger than normal bone.

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Posted on Mar 17, 2021, 3:12 pm
#53

Definitely not permanent. Bones always remodel.

Remodeling is always going to happen. A hole from corrosion will be filled in. hypertrophy will go back to normal. Lysis will go back to normal.
Active corrosion from the nail is what causes this to occur. Once it is removed, remodeling happens

Email Paley if you don't believe me. Also emailed giotikas and he confirmed, removal causes this to eventually remodel and go away

If it's permanent, what's the point of removal then? You're already screwed for forever? Our bones are amazing. They remodel everything.

It will go back to normal. Bones are amazing.

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Posted on Mar 17, 2021, 3:20 pm
#54

Thanks guys. I've just had time to watch the whole thing there. I think at 25 mins Paley mentions that the thickening goes away after a couple of years, hope this is true.

What I don't understand is why the bone is thickening at the corrosion sites. I get why it would thicken at the screw sites due to adapting to stress load but I'm confused as to why it thickens in an area where there is no direct load placed on the bone. It seems like the bone is almost reacting to the rust in the same way a tissue would to inflammation caused by an infection or likes, I hope I'm completely wrong about this.

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Posted on Mar 17, 2021, 3:34 pm
#55

Quote from: Nestor on March 17, 2021, 03:20:22 PM It seems like the bone is almost reacting to the rust in the same way a tissue would to inflammation caused by an infection or likes, I hope I'm completely wrong about this.


You're absolutely right. He even said it in the video. I recommend watching the whole video in detail. Paley specifically acknowledges this. He's not hiding anything, and he tells us that this corrosion is directly causing the bone adjacent to react. He concurs everything you said, in the video.

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Posted on Mar 17, 2021, 4:53 pm
#56

update ...

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Posted on Mar 17, 2021, 7:42 pm
#57

Quote from: RealLostSoul on March 17, 2021, 01:10:55 PMI am interested in doing precice as well. How much did you lengthen, how much did you weight and when where you able to use crutches?


My experience was very similar to Purushrottam's.  I do recommend giving his diary a read.

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Posted on Mar 18, 2021, 12:32 pm
#58

Quote from: Serilium on March 17, 2021, 03:34:32 PMYou're absolutely right. He even said it in the video. I recommend watching the whole video in detail. Paley specifically acknowledges this. He's not hiding anything, and he tells us that this corrosion is directly causing the bone adjacent to react. He concurs everything you said, in the video.


My only worry is that, although Paley says the bones are thicker and stronger, it's the reason why they became thicker that worries me. If the hypertrophy occurred due to load bearing exercise or similar then in all probability the bone will be healthy, if it enlarges due to inflammation caused by corrosion then surely it's reasonable to assume there might be something wrong. I'm just curious if a sample of the bone tissue was examined at a cellular level would it be as healthy as normal bone?

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Posted on Mar 18, 2021, 4:43 pm
#59

Quote from: Nestor on March 18, 2021, 12:32:03 PMMy only worry is that, although Paley says the bones are thicker and stronger, it's the reason why they became thicker that worries me. If the hypertrophy occurred due to load bearing exercise or similar then in all probability the bone will be healthy, if it enlarges due to inflammation caused by corrosion then surely it's reasonable to assume there might be something wrong. I'm just curious if a sample of the bone tissue was examined at a cellular level would it be as healthy as normal bone?


Yes, it's not ideal obviously and they are going to find a solution to this to prevent corrosion from affecting the bone. It can and has burned holes through the bone so it's not a good thing and hopefully Nuvasive fixed this soon so people can do CLL!

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Posted on Mar 18, 2021, 7:35 pm
#60

Quote from: Serilium on March 18, 2021, 04:43:08 PMYes, it's not ideal obviously and they are going to find a solution to this to prevent corrosion from affecting the bone. It can and has burned holes through the bone so it's not a good thing and hopefully Nuvasive fixed this soon so people can do CLL!


Not ideal, little bit of an understatement Clarifications about the Stryde recall If there was some clarification as to whether or not the thickened bone at the corrosion site is normal, healthy bone then I think it would put a lot of people's minds at ease. The only way they could test that though is by taking a sample and analyzing it.

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