Quote from: tiggy on April 20, 2019, 03:39:33 PMThanks IFS, really appreciate your insightful list.
Ned is correct in a sense that we should push through the pain at times to recover faster. But at the same time, over exertion and doing too much too soon leads to inflammation, which then causes a lot of pain, which then sets you back in terms of recovery. I have read a number of diaries where patients do too much and suffer from such inflammation. For example, Evolution's diary talks about this. He even stated that other Paley patients who did not over-exert themselves, unlike him, and instead rested the first week or so post-op instead of doing too much actually ended up not using pain killers as much and still recovering well and meeting their goals. With that said, I think it is wise not to put a lot of pressure on the body too soon after surgery, because after all, we had just given the body a major shock and it must be given time to recover somewhat before we dive into increased physical activity. So in this sense, having a wheelchair the first week or so may be very helpful. It really all boils down to the advice of the doctor, as well as your general philosophy on how best to proceed through the process.
I will order the things you had listed, but will hold off on the wheelchair until I speak to the staff next week during my pre-op. To answer your question, my Dr. is Rozbruch.
And I couldn't have described the feelings pre-LL better than you! All the emotions flowing through are very interesting. In a sense, I think I am absolutely insane to put my body through this all because of an insecurity about my height. And this feeling makes me nervous and quite scared of the uncertainties and potential complications. However, deep inside I know that LL will continue dwelling in the back of my mind, just like it has the past 8 yrs, and it becomes a disease almost in a sense that you are tortured because you know it must be done. All the while you grapple with how insane all of this makes you feel. Again not generalizing here, I am simply describing MY own feelings about this process. I am sure all these feelings will only intensify as the big day gets closer.
Anyway thanks again for that list. You are always there to advise and to help out man. Really means a great deal to me.
Hi tiggy
You got the point! Generally working hard is good but too much working hard could be worse for patients. Plus people are all different. You have to listen to your body. Of course that does not mean no exercise is fine. You need to push yourself quite hard to get your goal but still always listen to your body. I am an old patient but I think I pushed myself enough to get what I planned. I am also recovering quite well although it could be better if I do more exercise. I just don't have much time for it these days.
Dr. R is one of the best in this field. You will be taken a good care of by his team. Wish you the best of luck!
Diary - January 2019 - In Full Stryde with Dr. Mahboubian of North Hollywood.
ISF
Like everyone I want to thank you for sharing your experiences on a daily basis.
Thank you also for continuing to post after the end of your lengthening process, during the recovering time.
I read that you wanted to make a guide in my opinion it's a great idea because I saw very few diaries talking about this kind of topic.
You should do it not only for people who want to do LL in the United States with stryde but also for all the others because there are in my opinion fundamentals not to neglect and many people and even surgeons never talk about it.
From my point of view it would be important to talk about the following technical points.
Preoperative conditions. That is, the physical and physiological state of the patient. Are you fit Are you athletic, flexible, muscular, smoker ect ...
Knowing the tibia femur ratio and bust leg ratio
Know the health of your bones.
Many patients go into LL without having ever done bone densitometry and their surgeon does not even ask them to do it.
If unfortunately you have osteoporosis, because of the nail is fixed to thebone if the bone is weak the nail will not be able to hold the weight even with Stryde.
Another very important parameter in my opinion which is not the responsibility of the surgeon is the medical insurance to contract if something ever went wrong.
If you have a problem in the bone distraction process and you have to do an other surgery, it may be very expensive. And obviously that require more time than you had planned at the beginning and prevent you from working and making money.
So you need good insurance and nobody or at least very few people talk about it. I suppose as wise men that she seems to be you get a medical insurance. Could you talk to us about it?
Thank you wish you the best.
Quote from: Renaissance on April 21, 2019, 08:34:33 PMISF
Like everyone I want to thank you for sharing your experiences on a daily basis.
Thank you also for continuing to post after the end of your lengthening process, during the recovering time.
I read that you wanted to make a guide in my opinion it's a great idea because I saw very few diaries talking about this kind of topic.
You should do it not only for people who want to do LL in the United States with stryde but also for all the others because there are in my opinion fundamentals not to neglect and many people and even surgeons never talk about it.
From my point of view it would be important to talk about the following technical points.
Preoperative conditions. That is, the physical and physiological state of the patient. Are you fit Are you athletic, flexible, muscular, smoker ect ...
Knowing the tibia femur ratio and bust leg ratio
Know the health of your bones.
Many patients go into LL without having ever done bone densitometry and their surgeon does not even ask them to do it.
If unfortunately you have osteoporosis, because of the nail is fixed to thebone if the bone is weak the nail will not be able to hold the weight even with Stryde.
Another very important parameter in my opinion which is not the responsibility of the surgeon is the medical insurance to contract if something ever went wrong.
If you have a problem in the bone distraction process and you have to do an other surgery, it may be very expensive. And obviously that require more time than you had planned at the beginning and prevent you from working and making money.
So you need good insurance and nobody or at least very few people talk about it. I suppose as wise men that she seems to be you get a medical insurance. Could you talk to us about it?
Thank you wish you the best.
Renaissance - I agree on all points. Excellent feedback and ideas. I will plan on including these details in my tool kit.
Quote from: tiggy on April 20, 2019, 03:39:33 PM
my Dr. is Rozbruch.
Will you be using Stryde? Please, please, make a diary, tiggy.
(Sunday) Day 107 Post Op - Day 15 Consolidation/Recovery Phase - DISTRACTION COMPLETED....[7.5 cm Achieved / 3 inches Taller!]
Good evening CLL'ers,
Another solid day! I can say for certain that each day after I stopped distracting; that I have experienced my "best day" post - surgery. I'm currently walking 100% unassisted and the tightness is wearing off. If I did not have the APT from the tight glutes; my walk would probably be close to normal already. I'm working daily on the APT; but what can you do? lol. Tight hip flexors and a weak butt will do that to you. I'm currently working my butt back on and stretching and I am feeling steady improvement. I get up and walk every 20 minutes now and was able to take about 5000 steps again today. Don't get me wrong...my hips are still tight; so I get tired pretty quick; but I'm on my way. I'll keep working as hard as I can! Guys, nothing more to say for today other than I'm seeing daily progress and I'm very pleased that I am able to walk unassisted without pain only 3 months post surgery. Stryde rules!! I see Dr. M on Friday for X-Rays and he will have a look at my tightness etc and provide his assessment and recommendations per usual. I will share with the community. Also, will do my best to take a video of my walking gait and share on my update this coming weekend.
Talk soon and all the best,
-IFS
Very good to see you are getting better each day and you are sharing it with us. Are you taking any supplements?
Quote from: Ghostfish on April 21, 2019, 06:46:16 AMHi tiggy
You got the point! Generally working hard is good but too much working hard could be worse for patients. Plus people are all different. You have to listen to your body. Of course that does not mean no exercise is fine. You need to push yourself quite hard to get your goal but still always listen to your body. I am an old patient but I think I pushed myself enough to get what I planned. I am also recovering quite well although it could be better if I do more exercise. I just don't have much time for it these days.
Dr. R is one of the best in this field. You will be taken a good care of by his team. Wish you the best of luck!
Hi Ghostfish,
I agree with you on every point! Thanks a lot friend, really appreciate the good thoughts. We all need them in this process.
Quote from: wannagrowtaller on April 21, 2019, 11:36:49 PMWill you be using Stryde? Please, please, make a diary, tiggy.
I will be using Stryde. As I've said before, I don't know if I will be up for creating a diary mainly because I don't think I can contribute any more than what can be found on the pages of this site already. But I can promise that if I feel up to creating a diary, I will most certainly start one as a way to give back for all the invaluable information I have gathered here over the years.
Quote from: tiggy on April 22, 2019, 02:22:42 AMI will be using Stryde. As I've said before, I don't know if I will be up for creating a diary mainly because I don't think I can contribute any more than what can be found on the pages of this site already. But I can promise that if I feel up to creating a diary, I will most certainly start one as a way to give back for all the invaluable information I have gathered here over the years.
Of course your diary would contribute to the community. Stryde nails are new and there are a few diaries with them. The more we have, more information we have.
Quote from: wannagrowtaller on April 22, 2019, 01:24:18 AMVery good to see you are getting better each day and you are sharing it with us. Are you taking any supplements?
Thank you, WTG. I am taking Vit C, Vit D, Silica, and drinking a lot of protein shakes to help maintain weight and support strength building.
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