Diary - January 2019 - In Full Stryde with Dr. Mahboubian of North Hollywood.

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No vitamin k2 + calcium?

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Quote from: wannagrowtaller on April 22, 2019, 03:41:48 AMNo vitamin k2 + calcium?

Hi WGT,

Yes, I am consuming lots of this as well.

I have my first x Ray's, post distraction on Friday.  I hope all these supplements are helping.

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Hey IFS I'm really happy to hear that everyday is getting better than the last. I just wanted to say thanks for the diary it's really detailed and thorough it's pretty much the only reason I still check back on this site. After you learn all you can about LL all there is left is just to save money. But your diary keeps me coming back. Also your general attitude and view on life is super positive and inspirational there really needs to be more of that on this site. I can tell that you're someone that doesn't need LL to be happy but getting LL will make a positive impact on your life. That's the exact attitude that one should have when they're going into this.  Anyways good luck on the rest of your journey!! Keep grinding brotha

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Quote from: Bonez on April 22, 2019, 08:52:05 PMHey IFS I'm really happy to hear that everyday is getting better than the last. I just wanted to say thanks for the diary it's really detailed and thorough it's pretty much the only reason I still check back on this site. After you learn all you can about LL all there is left is just to save money. But your diary keeps me coming back. Also your general attitude and view on life is super positive and inspirational there really needs to be more of that on this site. I can tell that you're someone that doesn't need LL to be happy but getting LL will make a positive impact on your life. That's the exact attitude that one should have when they're going into this.  Anyways good luck on the rest of your journey!! Keep grinding brotha

Hey Bonez,

Appreciate the words of encouragement and thank you for following along on my journey.  Things are definitely trending positive. Each day is a grind well worth it.  I believe that I'll be recovered comfortably very soon now. I'm starting to see the light.  I'm going to keep the community updated throughout.  As a lurker in 2018; the journals proved so valuable to my experience.   I'm determined to return that favor.    One of my favorite quotes...."Height doesn't make the man; the man makes the height".  I'm learning all over again; just how true that is.  Thanks again bro and will update again here shortly.

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I'm so happy for your positive experience.  This couldn't have happened to a nicer person.  All the best! 

Please keep us updated. It'd be nice to hear of long-term outcomes in how this has affected other aspects of your life.

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Quote from: jayes on April 23, 2019, 12:38:27 AMI'm so happy for your positive experience.  This couldn't have happened to a nicer person.  All the best! 

Please keep us updated. It'd be nice to hear of long-term outcomes in how this has affected other aspects of your life.

Appreciate it, Jayes.  I truly believe the hardest part is over with the phase 1 distraction. I still have a bit a ways to go now with the recovery; but after only 15 days, I'm up and walking unassisted (holding on to cane just to help balance). Albeit, my hips are very tight and I have a loads of work to do on flexibility but I'll still take this all as a sign that I could be on my way to good things, here.  The Stryde nail is great...by allowing someone to bear weight early.  I'll keep everyone posted. 

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(Monday) Day 108 Post Op - Day 16 Consolidation/Recovery Phase - DISTRACTION COMPLETED....[7.5 cm Achieved / 3 inches Taller!]

Good evening CLL'ers,

Boy, I'm tired.  Falling asleep as a write this; ha, ha. All is well. Today was more of the same.  Small steps toward healing.  Still feeling tight in the hips and it's impacting my walk quite a bit. We'll see where it stands on Friday, when I record a gait video.  I'm going to continue to work on that. I'm still going to a formal PT Clinic 3 days a week and each time; my PT takes the Theragun massager (puncher) and like a jackhammer massages my hips to submission. We're trying to get me loose.  Thanks again for all the kinds words and support. Honestly, I'm here to help where needed.  Let's figure this thing out, guys.  Have a good night.

All the best,

IFS

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Quote from: InFullStryde on April 23, 2019, 03:20:14 AM(Monday) Day 108 Post Op - Day 16 Consolidation/Recovery Phase - DISTRACTION COMPLETED....[7.5 cm Achieved / 3 inches Taller!]

Good evening CLL'ers,

Boy, I'm tired.  Falling asleep as a write this; ha, ha. All is well. Today was more of the same.  Small steps toward healing.  Still feeling tight in the hips and it's impacting my walk quite a bit. We'll see where it stands on Friday, when I record a gait video.  I'm going to continue to work on that. I'm still going to a formal PT Clinic 3 days a week and each time; my PT takes the Theragun massager (puncher) and like a jackhammer massages my hips to submission. We're trying to get me loose.  Thanks again for all the kinds words and support. Honestly, I'm here to help where needed.  Let's figure this thing out, guys.  Have a good night.

All the best,

IFS

Great to hear that everyday is getting better for you pal

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@infullstryde

Can I ask you how you managed to get such a long time off from work?

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Quote from: Canon on April 23, 2019, 12:59:58 PM@infullstryde

Can I ask you how you managed to get such a long time off from work?

Hi Canon,

This is a great question and I know that finding the time-off is really one of the biggest challenges of CLL.  Allow me to preface things to say that CLL is very demanding throughout the day and evening... Multiple PT sessions each day + lengthening 3 times a day.  There is a significant amount of time one must spend dedicated to this procedure.   it's a lot of hard work for the patient. 

As for me... At 26 years old; I founded an IT Services business and I'm happy to say that 11 years later (I'm 37 now), the company is flourishing and ranks as one of the fastest growing organizations of it's kind.  As the Founder and CEO, I am able to work remotely as much as I need.  During the distraction, I was 100% remote but as soon as phase 1 was over with; I felt comfortable to come back to work. I am now working full time again inside the office after 3 months of working from home. I am getting around unassisted with only a cane to support my balance here at the office.   I am able to come and go to the office as I need for physical therapy and doctors appointments.   I should mention that at home I invested in a complete/total home office setup include a top of line desktop, high-speed internet, and multiple computers screens.  I completely optimized my home office experience so that I could be efficient at home.   I actually really advanced my business during the CLL procedure because since CLL prevents you from sleeping; I just got up and worked more lol.  I also invested in a bow-flex, total home gym so that I could continue to easily and safely lift perform upper-body training.   One of the really nice things about both of these investments is that they will continue to benefit me long after CLL is completed.

At a young age, despite my height challenges, I had a vision and a funny quote I would always say to myself.  I'd always say i want:

"Freedom of TIME, Freedom of DIME, and Freedom of MIND."   I am very close to having all 3. :-)

This means to create a life where you can do whatever you want; when you want.   A Life where expenses are never an obstacle. A life where you are no longer worried. 

So directly, by being my own boss; I had the flexibility to take the time needed.

Thank you again for the question.  If anyone in the community has any questions regarding CLL; please feel free to reach out.

All the best,

IFS