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Posted on Sep 8, 2015, 3:03 pm
#101

Quote from: DoingItForMe on September 07, 2015, 09:17:14 PMthe crying is because someone might have permanent toe functionality loss and will probably get to 4-5 cm at most.


oh DoingItForMe's Precice 2 Internal Femurs with Dr. Paley nerve damage? whose fault was it?

I remember polycrates had something like this.

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Posted on Sep 8, 2015, 3:44 pm
#102

Quote from: SAD on September 08, 2015, 03:03:06 PMoh DoingItForMe's Precice 2 Internal Femurs with Dr. Paley nerve damage? whose fault was it?

I remember polycrates had something like this.
Again, I am scared of retaliation, so I do not want to talk about other patients yet. It will be very likely that the ones with negative experiences will elaborate further and write their own diaries. But please just let me finish lengthening without pissing anyone off. Just two more weeks.

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Posted on Sep 8, 2015, 5:02 pm
#103

Quote from: DoingItForMe on September 08, 2015, 03:44:45 PMAgain, I am scared of retaliation, so I do not want to talk about other patients yet. It will be very likely that the ones with negative experiences will elaborate further and write their own diaries. But please just let me finish lengthening without pissing anyone off. Just two more weeks.

cool. you're doing us a favor already by maintaining a diary.

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Posted on Sep 9, 2015, 2:46 am
#104

13 more days of lengthening left. Taking final measurements tomorrow morning to find out if I'm okay to go for 8 cm. PTs think I can. Measurements will tell me if I can or can't. Wish me luck.

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Posted on Sep 10, 2015, 6:36 am
#105

You've come all this way......you inspire us all...
Good luck!

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Posted on Sep 11, 2015, 6:35 pm
#106

Met with Dr. Paley. Everything is going great.  I have 90 degree leg raise (increased from 65 degrees a month ago). My leg raise was 90 degree prior to surgery, so I basically am back to close to what I was before. I am at 7.1 cm after 73 days of lengthening. He suggested that I slow down to .75 mm per day to relieve the pain and make my consolidation faster. I will take his advice and slow down. It will only add 3 more days of lengthening, so I don't mind it. He said it will help me consolidate faster than the 3 days added. So I'd be better off in the long term.

I have no nerve pain or any other problems. I have a successful lengthening, and I would suggest doing a lot of PT yourself. It helped a lot to increase my flexibility. I suggest taking a lot of pain meds to make up for the pain that the extra PT causes. The other patients who don't do PT at home have nerve pain and aren't doing as well as me. But they have less pain than me. I rather have the pain and better end results. The pain meds help make it so that the pain is minimized.

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Posted on Sep 11, 2015, 11:30 pm
#107

Hi DoingItForMe
Congrats on your progress!
Im undergoing limb lengthening surgery next week. Is there any value in doing  the pre-operative stretching?
Is there anything else (supplements etc) I should do?
Thanks
llb

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Posted on Sep 12, 2015, 9:00 am
#108

Quote from: llb on September 11, 2015, 11:30:11 PMHi DoingItForMe
Congrats on your progress!
Im undergoing limb lengthening surgery next week. Is there any value in doing  the pre-operative stretching?
Is there anything else (supplements etc) I should do?
Thanks
llb
Paley said that stretching before surgery, especially only a week before surgery, will do nothing for you. But stretching after surgery is very very important. I am only doing this well because I stretched every single day, even when my body screamed at me to stop. But I will also tell you that I was very flexible prior to surgery, and that helped a lot. The muscles in my legs did the opposite, though. I hope you've been skipping leg day, because my right leg is stronger that my left leg, and it had the hardest time stretching. I wish my legs weren't so muscular going into surgery. Programdude would probably agree with me that the muscles work against the lengthening.

Get Silica supplements, which is really just calcium and vitamin D supplements. Buy some Tylenol. Get some heat pads and ice packs. I have a whole list of tips at the beginning of this diary. Read them. Good luck.

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Posted on Sep 13, 2015, 5:16 am
#109

Quote from: DoingItForMe on September 08, 2015, 09:10:29 AMPerhaps, but this isn't his first LL. He's already above average height, and he's going for more. When I tried to talk to him, he ignored me and even lied to me when I asked if he did his femurs already, too.
I'd just like to point out that I just realized this is probably another guy from the old forum who's currently undergoing LL. It took me awhile but putting two and two together...yeah I'm sure it's him. lol

Anyways, good to see things are going well for you, guess things will wrap up for you on August 23rd huh?

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Posted on Sep 18, 2015, 11:12 am
#110

The pain has gone down significantly a week after slowing down my lengthening to .75 mm a day. I would recommend this to anyone who had a lot of pain towards the end and want an easier time. Before, the pain hovered around 7-8 when off Oxycodone. Now it is a 3-5 when off Oxycodone. Nothing else changed. Still doing a lot of PT. This is looking hopeful for me as I feared that the pain would stay forever. But it appears that the pain goes away a week after you stop lengthening, according to another patient who finished.

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