DoingItForMe's Precice 2 Internal Femurs with Dr. Paley

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Hey bro.  Are you doing the stretching sessions alone when you're not at physical therapy?  Would it be better to hire someone to help me?

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Quote from: Iamready on September 04, 2015, 05:50:06 PMHey bro.  Are you doing the stretching sessions alone when you're not at physical therapy?  Would it be better to hire someone to help me?

I'm not the OP but I'm also a Paley patient and I much prefer stretching on my own. I can't do all of them but I can do the vast majority.

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It's possible to do the stretching on your own. I'm assuming that the nails can bend slightly as long as it is still lengthening. The ones who have to stop are probably the ones who fracture their bones or if the nails stop lengthening. I mean, my bones are adapting to the bent nails. It is growing around it and conforming to the shape. It'll probably be really hard to take out while bent though. Which is why I think programdude had hip pain after having his rods removed. The doctor must have had to use a lot of force to remove the bent rods.

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I asked Paley and he said that my xrays are perfect and that the slight bend is normal. He said that it's even desirable to have the bend for alignment reasons. According to my distraction machine, I distracted 68 mm by the end of the day. Which would mean that I should be around 6.4 cm taller right now.

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Quote from: DoingItForMe on September 05, 2015, 05:50:41 PMI asked Paley and he said that my xrays are perfect and that the slight bend is normal. He said that it's even desirable to have the bend for alignment reasons. According to my distraction machine, I distracted 68 mm by the end of the day. Which would mean that I should be around 6.4 cm taller right now.

Great info.  Thanks for asking!

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Good to know things are going well for ya at least. Keep it up! Also I'd love to hear more stories about your time with other patients who are undergoing LL (I think at least knowing that there is a chance to experience this with others sure does help); but that also begs the question of just how many people undergo LL at any point in time.

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I will talk about other patients after I am done lengthening. I don't want retaliation for saying negative things that happened to the other patients.

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Ahh I see, makes sense for the most part. Hopefully there wasn't anything too negative that might have happened to the other patients you were with. Like I said man keep it up, you seem to be doing great and your more constant feedback has been inspirational for me especially considering our similar circumstances. I do wish you well! (Even though you never did actually answer my question regarding your inseam lol). Godspeed.

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I don't know my inseam. There were a bunch of mistakes made by Paley/Paley's team. And several negative experiences (like make patients and parents cry type of situations). I will not elaborate because I fear retaliation. It is not hard to figure out which patient I am, since I am one of the only one within the group of patients who doesn't have a problem. I am one of the lucky ones. Perhaps those patients will write their own diaries explaining their negative experiences. But I really don't want to get on Paley's bad side, since I am still being treated by him. Plus, nothing bad happened to me, so I have nothing bad to say in my own experience other than not getting Oxycontin from the very start.

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There are about 8 other CLL patients that I know of right now. So I'd say around 7 CLL patients a month. Most patients are not doing it cosmetically. Lots of small children here. You really bound with the other CLL patients. Except there are stuck-up ones who think that they're too good to talk to other people.