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Posted on Jan 31, 2016, 5:59 pm
#281

Quote from: Deads on January 31, 2016, 04:34:33 AMI stood on a 5cm book... Didn't make much of a difference in my eyes.

Yeah i'm at nearly 5 cm and while I feel taller, i'm still not satisfied. We'll see when I hit the 10cm mark how I feel.  When I had the cast on, it made me an inch and a half taller because there were special shoes that I had to walk with.  I felt good at that height, but ultimately unless my arms start looking odd I will come back to max out my rods the following year.

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Posted on Jan 31, 2016, 7:38 pm
#282

Quote from: Iamready on January 31, 2016, 05:59:29 PMYeah i'm at nearly 5 cm and while I feel taller, i'm still not satisfied. We'll see when I hit the 10cm mark how I feel.  When I had the cast on, it made me an inch and a half taller because there were special shoes that I had to walk with.  I felt good at that height, but ultimately unless my arms start looking odd I will come back to max out my rods the following year.

I think it depends on your starting height. Also to really see a difference, ask someone to stand near you.. Than put one feet on the book and one on the floor. stand on one feet at a time and you will feel and see the difference. But again, to me those 5-6cm difference is all I need.

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Posted on Jan 31, 2016, 9:04 pm
#283

Quote from: tx1111 on January 31, 2016, 06:01:02 AMlooked at my X-rays today. Looks like my bone is consolidated on three sides on both legs. However, oddly, there's rarely and bone growth on the left side of my left leg and on the right side of my right leg. There's plenty on the other three sides, though. Very odd. My bone is forming a U shape around the rod. Hopefully it will wrap around fully eventually. But it's been 6.5 months post op, with no signs of vertical growth on those two sides. It's as though the bone just stopped growing there. I guess my only hope is for the bone to grow horizontally and wrap around.



Have you asked your dr if this is normal? If its been 6.5 months shouldnt there be some hint of bone regeneration there?
I've looked at x-rays of other people online and yes, it does look like this happens. I just have to wait even longer for the bone to fully heal before I take out the rod. Dr. Paley didn't say anything about it, and told me that I was weight-bearing, so I'm guessing that it's normal.

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Posted on Feb 9, 2016, 1:10 am
#284

Hey DIFM, this is the first time I posted, but have been reading your diaries, I am curious of your progress sine the last time you made an entry, I am sure others are as well.  Hope to hear from you soon
Thanks
T

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Posted on Feb 9, 2016, 12:21 pm
#285

hi.   how much cm do you recommend for lengthening?

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Posted on Feb 9, 2016, 9:40 pm
#286

Quote from: Tiger5 on February 09, 2016, 01:10:58 AMHey DIFM, this is the first time I posted, but have been reading your diaries, I am curious of your progress sine the last time you made an entry, I am sure others are as well.  Hope to hear from you soon
Thanks
T
I'd had hope that my pain would be reduced as I rebuilt my strength, and some of it did. I'm at the gym almost every day now for at least an hour. I'm starting to use the exercise bike to regain stamina and strength. My stamina is starting to return to me, and I can walk maybe a mile before getting tired - when before it took only walking down the street to get tired. My heart rate drop down to 140-155 bpm when exercising. Before it was 170 bpm from just walking, which was exhausting. So I'm optimistic about my fitness, because it's starting to return to me, and it seems to be returning pretty quickly.

But aches and pain in my legs are still there. Some days I think that it's because I need to rest my legs. I get sore after working out the rest of my body, and usually the pain goes away after resting 3-4 days. So I tried that with my legs and let it rest - i.e. don't use them. After doing that, it actually made things worse, because leg muscles were tighter and less loose. And I guess they were weaker as well, so it hurt more when I used them. So no more rest days for my legs. That was a bad idea. I think that I just have to keep working out my legs until they're so strong that it no longer hurts to use them. That's my plan right now.

I still walk like a penguin, but less than before. I've also gained weight and am now 165 lbs - when before I was always 150 or under. This is the heaviest I've ever been in my life. I'm not exactly sure how this happened, because I've been exercising quite often. Most likely it's because I've been eating a lot. I'm going to cut carbs out of my diet to try to lose weight again - it worked back in October when I was only 142 lbs without even exercising. I've been eating whatever I wanted the past month, because I was afraid of depriving myself of nutrients for bone healing. But I think this weight is unhealthy.

Quote from: chineseguy on February 09, 2016, 12:21:51 PMhi.   how much cm do you recommend for lengthening?
This depends on how much your body can handle the adjustment. But in general, from the diaries I've read and the stories I've heard, 7-8 cm is really the limit, and most likely where you'll cause problems long-term. I would recommend 6 cm or less on the femurs if you want to reduce the risk significantly. But it should really depend on the individual patient. For example, I noticed during my lengthening that I had to take more pain killers than every other patient (except for one other patient who was older than me). So I think age plays a huge factor in this as well.

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Posted on Feb 9, 2016, 11:17 pm
#287

Hey man DoingItForMe's Precice 2 Internal Femurs with Dr. Paley Hope recovery is getting better.
  I wanted to ask you, I read also old forums and I saw that you were supposed to be at the same time as this "Agrios" dude at the Paley's institute. Did you see him?

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Posted on Feb 10, 2016, 2:08 am
#288

I'm sure they did but if I remember correctly he was at a different hotel

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Posted on Feb 10, 2016, 2:33 am
#289

The hotel is literally neighbors. Patients travel between hotels to visit each other all the time. 

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Posted on Feb 12, 2016, 5:35 pm
#290

mr DIFM,

do you think if you lenghten less maybe 5 cm, you can recover now? 

Thank you

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