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Posted on Oct 2, 2017, 2:26 pm
#11

Quote from: FDR101 on October 02, 2017, 02:04:28 PMSo you'd recommend going purely external with hexapod?

How long would one have to keep external hexapod frame on for a 4 cm increase, if we assume there are no complications?

I've heard it takes 1-2 years for full consolidation

Between LON and LATN yes, I recommend external-only with the ability to correct any created misalignment of the bone/knee during the lengthening with a hexapod-like device.

You can search on pubmed for "healing index" and limb/leg lengthening. It takes 1-2 months for every cm lengthened - depends on your bone consolidation speed which is individual, so no one can tell the exact time you will spend with exfix.

I wore exfix for 8 months for 7.5 cm FEMUR lengthening once. The other time it was 10 months.

Tibia is slower to heal generally. But 1-2 years for 4 cms is not the norm. 6-8 months is.

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Posted on Oct 3, 2017, 5:01 am
#12

Quote from: Overdozer on October 02, 2017, 02:26:42 PMBetween LON and LATN yes, I recommend external-only with the ability to correct any created misalignment of the bone/knee during the lengthening with a hexapod-like device.

You can search on pubmed for "healing index" and limb/leg lengthening. It takes 1-2 months for every cm lengthened - depends on your bone consolidation speed which is individual, so no one can tell the exact time you will spend with exfix.

I wore exfix for 8 months for 7.5 cm FEMUR lengthening once. The other time it was 10 months.

Tibia is slower to heal generally. But 1-2 years for 4 cms is not the norm. 6-8 months is.


thanks, so basically you are saying that pure lizarov is better  than LON or LATN, correct? what is your opinion/input on internal method for tibia? thanks

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Posted on Nov 22, 2017, 3:01 pm
#13

Have you already decided on a doctor and method, Prakash?

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Posted on Nov 22, 2017, 6:38 pm
#14

Quote from: myloginacct on November 22, 2017, 03:01:15 PMHave you already decided on a doctor and method, Prakash?


Method - Yes, Doctor - No.

For Method I am going to have external lizarov hexapod for tibia and internal precise II for femur.
For Doctor - I am still undecided, considering Parihar, Birkholtz, Mahboubian and Giotikas. I am leaning towards Giotikas or Parihar at the moment. 

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Posted on Nov 22, 2017, 6:51 pm
#15

I've read good things about Catagni and Pili. Their Ilizarov apparatus seems really good. Catagni also published studies on CLL with Ilizarov. I've never done LL, though, so don't take my word for it. This is my merely inexperienced, and still evolving, impression. Just thought I'd also mention them.

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Posted on Nov 22, 2017, 8:38 pm
#16

Quote from: myloginacct on November 22, 2017, 06:51:10 PMI've read good things about Catagni and Pili. Their Ilizarov apparatus seems really good. Catagni also published studies on CLL with Ilizarov. I've never done LL, though, so don't take my word for it. This is my merely inexperienced, and still evolving, impression. Just thought I'd also mention them.


I never thought about Catagni (have heard the name but dont have much info) and I heard some really bad things about Pili (from his former patients, though personal messages) - so I dropped him from list.

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Posted on Nov 23, 2017, 12:14 am
#17

Quote from: prakash419 on November 22, 2017, 08:38:50 PMI never thought about Catagni (have heard the name but dont have much info) and I heard some really bad things about Pili (from his former patients, though personal messages) - so I dropped him from list.


All, since I am getting many anxious PMs from many asking me what I heard about Pili etc, I want to clear the air here. I did not do much research on Pili neither was he one of my top choices (though my impression was and is that he is highly capable), he was like a back of mind option for me. What I had noticed is the high prevalence and recommendation(by the doctor) of Achilles tendon lengthening for Pili patients, this was odd (I have perfect GMAT, GRE, PMP, Stats match score and if there is anything odd - I see/notice it faster than others, lets say this is a skill of mine - made my living as a software tester for 7 years, at least I think I am good at picking up oddities/anomalies) at least to my eyes( may not be to others) . Since I dont kno much about LL (still a novice) I was asking a Pili patient (wont take names, plz don't ask for name) that why so (this was just a side talk, we were not discussing Pili, I was seeking his opinion on something else when Pili topic came up by chance)? why other doctors are not recommending Achilles lengthening to the extent Pili does? is Pili right in doing so? what is his opinion and he ripped apart the idea of Achilles lengthening (he said it had ruined his life and he had to get tendon shortening surgery done to get back to life). I trust this guy (who gave me the feedback) and his feedback, couple with the oddly high number of Achilles lengthening cases in Pili patients, I have decided to keep Pili off my list of possible options (not to say he was one of my first choices - not because he is bad - I think he is good - but because of logistics related reasons). I may be wrong, I am a third person, plz don't go by what I heard from somebody, I have not done enough research on Pili, plz talk directly to Pili patients. Thanks.

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Posted on Nov 23, 2017, 12:36 am
#18

Thanks for elaborating, Prakash.

From what I've read in a study by Catagni, they seem to favor ATL and seemed to associate it with regaining athletic ability:

QuoteDuring treatment 30 patients (15 students and 15 office workers) continued to attend school or work full time, four (three physicians and one engineer) delegated some of their work, 19 (manual and factory workers) took sick or unpaid leave for ten to 12 months; and one was unemployed. All patients resumed fully their previous sporting activities, with the exception of the patient who refused lengthening of tendo Achillis.


However, most of the users I've seen on the forums have expressed distaste at ATL, when they had an opinion on it. I don't know who is correct.

Anyone know if there is a "time frame" for doing ATL? Could I just try postponing it as much as possible and still get whatever beneficial results I'm supposed to get from it by doing ATL at a later date?

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Posted on Nov 23, 2017, 2:45 pm
#19

Quote from: myloginacct on November 23, 2017, 12:36:47 AMThanks for elaborating, Prakash.

From what I've read in a study by Catagni, they seem to favor ATL and seemed to associate it with regaining athletic ability:

However, most of the users I've seen on the forums have expressed distaste at ATL, when they had an opinion on it. I don't know who is correct.

Anyone know if there is a "time frame" for doing ATL? Could I just try postponing it as much as possible and still get whatever beneficial results I'm supposed to get from it by doing ATL at a later date?


One thing I will say - I don't trust any study or survey coming out of Italy (just like I don trust any study or survey coming out of India, China etc.), the only surveys/study I can trust are those coming out of US and maybe UK and Scandinavian countries, that's about it. I recommend you take Paley's opinion on ATL , that would be a useful data point.

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Posted on Nov 23, 2017, 3:12 pm
#20

Italy has a high number of scientific Nobel laureates per capita, so I think that's an unfair judgement. It's a developed EU country which gifted us many great minds.

With that said, can you tell me where I could find Paley's opinion on ATL? That sounds like a great read.

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