Femoral Lengthening with Dr. Paley

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Quote from: Purushrottam on December 04, 2017, 02:11:06 AMI stopped lengthening at 65 mm yesterday. The pain is completely gone. My legs feel like nothing happened except for the loss of flexibility and inability to weight bear. The doctor gave me the go ahead to continue lengthening but I decided to stop because I have reached my goal height (5'9").

I'm going to continue another week of physical therapy and then fly back home.

That's awesome, man. Congratulations! Hope everything keeps going well from now on.

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Quote from: Purushrottam on December 04, 2017, 02:11:06 AMI stopped lengthening at 65 mm yesterday. The pain is completely gone. My legs feel like nothing happened except for the loss of flexibility and inability to weight bear. The doctor gave me the go ahead to continue lengthening but I decided to stop because I have reached my goal height (5'9").

I'm going to continue another week of physical therapy and then fly back home.

Hi Puru,

Been curious to hear of your progress.  Glad to hear you're well.  5'9" is an awesome height,  with shoes,  you're 5'10"+.  Congratulations.  Happy for you.

So you lengthened 65 days?  At 1mm per day?   Seemed so quick.   Now 30 days of consolidating before full weight bear?

Have you been taking any supplements or doing anything other than PT during your lengthening?  Are you happy you did this?    Any words of advice ?   I'm scheduled for  femurs in January 2018, God willing 7.6 CM.

All the best.  Thanks for posting !!

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Quote from: myloginacct on December 04, 2017, 03:58:32 AMThat's awesome, man. Congratulations! Hope everything keeps going well from now on.

Thank you!

Quote from: LAGrowin on December 04, 2017, 04:23:30 AMHi Puru,

Been curious to hear of your progress.  Glad to hear you're well.  5'9" is an awesome height,  with shoes,  you're 5'10"+.  Congratulations.  Happy for you.

So you lengthened 65 days?  At 1mm per day?   Seemed so quick.   Now 30 days of consolidating before full weight bear?

Have you been taking any supplements or doing anything other than PT during your lengthening?  Are you happy you did this?    Any words of advice ?   I'm scheduled for  femurs in January 2018, God willing 7.6 CM.

All the best.  Thanks for posting !!

I lengthened since Sept 26. I was at 1 mm per day until last weekend. I slowed down to .75 mm per day until yesterday. I have 30 - 60 days of consolidation depending on bone growth.

I've been taking Silical 1, 2, and Boost. Been eating lots of protein and calcium. I was mostly doing the recommended PT. However I did slack a bit which I don't recommend. Muscle tightness can really suck if you don't keep up.

 Good luck! Almost everyone who was there was able to get to at least 70 mm. Just be sure to follow all their instructions.

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Quote from: Purushrottam on December 04, 2017, 05:17:10 AMThank you!

I lengthened since Sept 26. I was at 1 mm per day until last weekend. I slowed down to .75 mm per day until yesterday. I have 30 - 60 days of consolidation depending on bone growth.

I've been taking Silical 1, 2, and Boost. Been eating lots of protein and calcium. I was mostly doing the recommended PT. However I did slack a bit which I don't recommend. Muscle tightness can really suck if you don't keep up.

 Good luck! Almost everyone who was there was able to get to at least 70 mm. Just be sure to follow all their instructions.

Thank you for your response Puru!   Would love to hear from you once you are clear to weight bear.  Sincerely happy that you are almost done.   I as others appreciate your updates.  Anything else you can share with us?

Silical 1 and 2 for bone growth?

Thanks again.

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Congrats on the LL...does dr Paley himself performed the operation?

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Quote from: LAGrowin on December 04, 2017, 05:58:59 AMThank you for your response Puru!   Would love to hear from you once you are clear to weight bear.  Sincerely happy that you are almost done.   I as others appreciate your updates.  Anything else you can share with us?

Silical 1 and 2 for bone growth?

Thanks again.

No problem! I will definitely update once I'm ready to weight bear. Thanks for your support!

Quote from: Honore on December 04, 2017, 02:10:00 PMCongrats on the LL...does dr Paley himself performed the operation?

Thanks! Dr. Robbins performed on my left leg and Dr. Paley performed on my right. I didn't really perceive a difference between the legs. Its a team of surgeons, anesthesiologists, assistants, etc.

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Update:

I went to the doctor for my last X-Ray/visit and to return my Precice controller.

He said everything looked good. I verified that both of my legs lengthened equally (65 mm). They suggested that I send an X-Ray next month and then they can let me know if I am clear to fully weight bear.

They also mentioned that there was a documentary being created about the Paley Institute. They needed cosmetic LL patients who wanted to talk about how their life changed after therapy (positive and negative). The documentary would be aired at primetime. I said that I wanted to remain anonymous so I can't do it.

I am finishing up my last week of therapy. They are teaching me to use crutches up and down the stairs. The stretches are no longer painful. My body is slowly gaining its flexibilty back.

So far, its been a really smooth ride. I'll post my next update probably in a month after my X-ray.

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Quote from: Purushrottam on December 05, 2017, 05:40:27 PMUpdate:

I went to the doctor for my last X-Ray/visit and to return my Precice controller.

He said everything looked good. I verified that both of my legs lengthened equally (65 mm). They suggested that I send an X-Ray next month and then they can let me know if I am clear to fully weight bear.

They also mentioned that there was a documentary being created about the Paley Institute. They needed cosmetic LL patients who wanted to talk about how their life changed after therapy (positive and negative). The documentary would be aired at primetime. I said that I wanted to remain anonymous so I can't do it.

I am finishing up my last week of therapy. They are teaching me to use crutches up and down the stairs. The stretches are no longer painful. My body is slowly gaining its flexibilty back.

So far, its been a really smooth ride. I'll post my next update probably in a month after my X-ray.


Congratulations on your journey so far, thanks for sharing your experience!

That's interesting about the documentary, I wonder when and where it'll be aired.

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Quote from: Purushrottam on December 05, 2017, 05:34:29 PM
Thanks! Dr. Robbins performed on my left leg and Dr. Paley performed on my right. I didn't really perceive a difference between the legs. Its a team of surgeons, anesthesiologists, assistants, etc.

Were you told about this before?

That's a little concerning.

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Can you post some pics and Xrays ?
Thanks