Quote from: Ghostfish on October 24, 2019, 12:36:26 AMDoes Dr. Paley or Dr. Robin even allow one to lengthen 8 cm in tibia? I never heard about it. When I was there, a patient who was doing only tibia with Stryde tried to get more than 6 cm. But Paley or Robin didn't allow him to go further although his flexibility and mobility was actually quite excellent. I am wondering whether you can go beyond 6 cm at once in Paley institute. One way is that you may slow down lengthening perhaps after 5-6 cm and keep going until 8 cm at a low rate.
Honestly i have no real answer. I’ve met a couple patients who did like 6.4cm ish and ive been told by some PT that people have in fact hit 8cm in tibias but I guess by the time mid December hits I should be around the 6cm mark and that’s when we’ll see what happens!!
Maybe Stryde is safer to go for 8cm? That extra inch would be life changing not gonna lie
Femurs & Tibias with Dr Paley
Hi MyEvolution
Did you miss my questions?
Like what do you do for non LL related health problems?
Thank you
Quote from: cena on October 24, 2019, 04:02:43 AMHi MyEvolution
Did you miss my questions?
Like what do you do for non LL related health problems?
Thank you
Sorry I don’t fully understand your question. I am 25 and I don’t really run into health problems knock on wood. Usually it’s LL related like a fever, or an infection etc. Most of the times i dont go to the hospital but during the first 1-3 weeks if you have a fever or an infection its a good idea to go get it checked as it could be serious
I do have my brother here with me as my primary care taker but i dont really have non LL health problems
Quote from: MyEvolution on October 22, 2019, 03:58:47 AM*IMPORTANT UPDATE*
This is a lifestyle/quality update
Over the past 21 days of lengthening (surgery was 27 days ago) its been pretty much a cycle of random pain / uncomfort that has made my overall life quality feel pretty ty in general. Yes sometimes i feel strong like in the mornings, but in general i’ve been taking oxy (mostly to remove pain so that i can sleep at night) and slo trying to manage those night splints. For example, on the 17th of october (day 23 post op) I only slept 2 hours & the day before I only slept 3 hours. My first night of solid 8 hour sleep was day 24 post op. Well today I can finally say that my pain lvls overall, discomfort with the night splints, and quality of sleep have all turned for the better
I’ve started sleeping a regular 7-8 hours daily WITH the night splints on. The trick was to get the amazon ones and to remove the wedge that comes in it. Yesterday was honestly the first time ive ever slept with them on and not felt numbness. Ive also changed my stretch routin to be more tibias focused & i’m seeing myself actually getting more flexible in my ankle movement
Anyways jus took an edible high af and almost feels like oxy so i feel great
Ttyl
Thanks! I had a question- perhaps, I'm misunderstanding something
1. "The trick was to get the amazon ones and to remove the wedge that comes in it. "
Which ones did you get?
2. What was the problem with the older ones?
3. If you remove the wedges, isn't the splint not doing the stretching? Maybe I'm misunderstanding?
Thanks!!!!
Quote from: CodyTheDog on October 24, 2019, 12:07:15 PMThanks! I had a question- perhaps, I'm misunderstanding something
1. "The trick was to get the amazon ones and to remove the wedge that comes in it. "
Which ones did you get?
There should be a link! I got size Large
It comes with a wedge in it that makes it like past 90 degrees.
2. What was the problem with the older ones?
Made out of plastic they litterally squeeze your leg it hurts
3. If you remove the wedges, isn't the splint not doing the stretching? Maybe I'm misunderstanding?
No ya the wedges put you past 90 degrees not needed
U just need to maintain 90
Thanks!!!!
Quote from: MyEvolution on October 24, 2019, 11:47:27 PM
Something things to have happened on the forum- it didn't show your response. By chance, could you retype it? Thanks!!!!!
Hey MyEvolution,
The only thing, I am really curious about is that, when will they remove the nails? Are they generally removed a year after the surgery?
thanks.
Quote from: MyEvolution on October 24, 2019, 11:47:27 PM
Weird let me redo
1.
I got size large
https://www.amazon.com/gp/product/B00PX5HM9O/ref=ppx_yo_dt_b_asin_title_o01_s00?ie=UTF8&psc=1
It comes with a wedge in it
2. The paley ones are made from plastic, idk how they expect you to sleep with plastic on that litterally presses against your bones and hurts
3. No when you remove the wedge your feet go back to 90 degrees which is all thats needed. the wedges are optional even PT told me that, you dont need to go past 90 degrees
The only thing, I am really curious about is that, when will they remove the nails? Are they generally removed a year after the surgery?
- Yea they remove all the nails when you are fully consolodated which is 1-1.5 years afterward depending on your xray
Guys so my plan rn is im gonna go to 6cm which i'll be at around mid December, and from there I'll take it by ear. I REALLY WANT 8cm because that's gonna make a huge difference but we'll see.
How long is the surgery? My friend and I were thinking it must not be longer than 2-3 hours, especially with such skilled doctors?
Quote from: LittleLA on October 28, 2019, 06:31:59 AMHow long is the surgery? My friend and I were thinking it must not be longer than 2-3 hours, especially with such skilled doctors?
Honestly i’m not sure I didn’t ask
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