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Posted on Apr 25, 2021, 6:29 pm
#221

Quote from: Going-For-Three on April 25, 2021, 05:17:14 PMDo you mean the surgery + lengthening made your posture worse? If the posture is about the same before and after surgery, then the gain would have been normalized, I would imagine.

I think my posture worsened when I passed 5 cm, and every day it has gotten worse due to the tension in my hips ... I am sure that if I manage to correct my posture I will increase my initial height by almost 8 cm, although if I manage to increase 7.5 cm at my initial height I will be satisfied Femurs with Dr. Assayag in MD

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Posted on Apr 26, 2021, 1:34 am
#222

Hi everyone,

So to be clear on ERC I have lengthened 73MM or 7.3 CM but in X-rays I am showing 69MM (6.9CM)

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Posted on Apr 26, 2021, 1:35 am
#223


Finally done with Lengthening  yay!  Femurs with Dr. Assayag in MD

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Posted on Apr 26, 2021, 2:04 am
#224

I am so happy for you Razal!

Congratulations man! Not on just the height (you're almost as tall as Dr. Assayg now haha) but your feeling of height neurosis being cured. At the end of the day that is what we are here for. And there is no better feeling than to be free of those nagging thoughts in your head. It really changes things when your at the Baltimore zoo and not self conscious about your height but instead caring about real issues like your wife and son eh? Everything changes. We start to appreciate life more. And that is the best thing you can get from this surgery.

So happy for you. Not many diaries where I truly appreciate the author so much. Thanks for sharing your entire journey with us. 🙏🏻

🍻 🍻

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Posted on Apr 26, 2021, 2:33 am
#225

Congrats on finishing lengthening, RD! I totally get that feeling of the lengthening phase dragging on after months and months. Do you feel like your gait and flexibility are a bit worse than they were in the middle of lengthening? It was like that for me at the end of lengthening, but my muscles have loosened up a lot since then. Are you going to continue going to PT? I'm still going, but I can't decide if it's worth it or not. I feel like the consolidation phase is starting to drag on for me as well because I was expecting to have a normal gait by this point, but I'm not quite there yet. Best of luck fighting the tightness!

Also, thanks for reminding me, I need to return my ERCs to Nuvasive! Femurs with Dr. Assayag in MD

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Posted on Apr 26, 2021, 4:45 am
#226

Congrats, RD!! Very happpy for you 😄. Thanks again for all the insights and being so open about sharing your journey - very helpful and much appreciated!!

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Posted on Apr 26, 2021, 5:10 am
#227

Congrats RD! 7cm is nothing to sneeze at brother!

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Posted on Apr 26, 2021, 5:35 am
#228

Man Razal I am REALLY happy for you. In one of the camera angles I see from your perspective and you almost look eye level with Dr Assayag.

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Posted on Apr 26, 2021, 6:07 am
#229

Congrats brother

Looking good. I’m also tagging along behind you and thank you for your videos.

I agree last phase of reaching goal and constant repetition of lengthening day after day gets mentally exhausting.

Btw I got answers for our questions on adjustment of vessels and organs like heart for the increased height

The answer was this no doctor has had extensive research in field of long term effects of limb lengthening.  However data suggests that taller people have less high blood pressure issues.

The right way to ascertain the effects would be for every cll patient to have his ultrasound and ecg before surgery and after surgery have that monitored to see difference if any in the organs or flow of blood.

I think doctors should inform patients and we should have this data for ourselves to be able to know this for future.

So if you want you can get an ultra sound and have that taken evenly 3 months to see what difference arises and if al truly adjusts.

Hope I was able to help with that.

Once again congrats on your journey and hope consolidation goes smooth

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Posted on Apr 26, 2021, 8:11 am
#230

Yup I posted a video from Dr Assayag in another thread. Clinical examination seems to be the main way by which this procedure is considered to be safe to perform.

Like you said it would be good if doctors performed more detailed research. They can use unilateral cases too. Especially because the ethical dilemma of CLL is so high, it would be worthwhile to have every bit of research in place to help everyone take an informed decision.

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