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Posted on Apr 26, 2021, 11:23 am
#231

Agreed

I wish I had done my ultrasound and ecg before surgery and not just blood tests

This way i would have had more data to compare with for long run. 

I guess only person with over 20 years of experience in this is PALEY.

If someone can ask PALEY to give accurate information on this would be very beneficial

But I know some of his patients who have done 15 cm are all fine and healthy

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Posted on Apr 26, 2021, 11:25 am
#232

Quote from: RazalDazal on April 26, 2021, 01:35:33 AMFinally done with Lengthening  yay!  Femurs with Dr. Assayag in MD



Congratulations Razal !!
I hope that your recovery in the recovery phase is as good as possible and that you regain your way of walking as before the operation.
I'm sure you will get it soon
Stay strong my friend !!

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Posted on Apr 26, 2021, 12:20 pm
#233

Quote from: Ahd1978 on April 26, 2021, 11:23:38 AMAgreed

I wish I had done my ultrasound and ecg before surgery and not just blood tests

This way i would have had more data to compare with for long run. 

I guess only person with over 20 years of experience in this is PALEY.

If someone can ask PALEY to give accurate information on this would be very beneficial

But I know some of his patients who have done 15 cm are all fine and healthy

Hmm you're probably the best to ask Paley since you're a current patient Femurs with Dr. Assayag in MD

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Posted on Apr 26, 2021, 12:51 pm
#234

Victor from cyborg for life best person as he gives doctors mileage

I was a patient till I didn’t pay fees.

Once fees paid surgery done than PALEY leaves you with his assistants

lol

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Posted on Apr 26, 2021, 8:09 pm
#235

Quote from: RazalDazal on April 26, 2021, 01:35:33 AMFinally done with Lengthening  yay!  Femurs with Dr. Assayag in MD


Best whishes! You deserve the best recovery possible Femurs with Dr. Assayag in MD
Quote from: Ahd1978 on April 26, 2021, 06:07:55 AMCongrats brother

Looking good. I’m also tagging along behind you and thank you for your videos.

I agree last phase of reaching goal and constant repetition of lengthening day after day gets mentally exhausting.

Btw I got answers for our questions on adjustment of vessels and organs like heart for the increased height

The answer was this no doctor has had extensive research in field of long term effects of limb lengthening.  However data suggests that taller people have less high blood pressure issues.

The right way to ascertain the effects would be for every cll patient to have his ultrasound and ecg before surgery and after surgery have that monitored to see difference if any in the organs or flow of blood.

I think doctors should inform patients and we should have this data for ourselves to be able to know this for future.

So if you want you can get an ultra sound and have that taken evenly 3 months to see what difference arises and if al truly adjusts.

Hope I was able to help with that.

Once again congrats on your journey and hope consolidation goes smooth


Don't bee hypochondriac. During the lenghtening and for months after I was always tired, no breath sometimes even after few steps, then it goes way better. At your stage you are still totally broken Idk what can you expect better than that. It's a very long journey.

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Posted on Apr 26, 2021, 10:30 pm
#236

Thank you everyone <3

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Posted on Apr 26, 2021, 10:31 pm
#237

PT during consolidation

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Posted on Apr 27, 2021, 3:03 am
#238

Amazing!! RD can you do a video about proportions please (:

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Posted on Apr 27, 2021, 6:50 am
#239

I have had best recovery here at institute in first 5 cm.

I was walking a km at 3,5 and was ready to max out nail going steady at 1mm

My issue didn’t arise in my head. I had severe erratic heartbeat. Being out of breath and tired I could handle. And then dimmer levels being high and elevating wasn’t a good sign.

Had I not increased level of heparin in time it could have been another story.

In any case I am not scared by it. I have only asked others as breathing has not been a complication for many. But I think o am to bottom of it.

It seems like a severe case of GERD due to all heparin and pain killers where stomach lining is all messed up and acid reflux is entering lungs causing this breathing.

Have started pills for same and in 3 days I already feel lot better.

Only reason I shared with all is for all to know as each body is different and reacts with different complications.

Where I thought my bone formation was going great and all going like text book I now have GERD issue which I would have never seen coming.

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Posted on Apr 27, 2021, 1:20 pm
#240

Quote from: billsmafia on April 27, 2021, 03:03:17 AMAmazing!! RD can you do a video about proportions please (:

You notice nothing. Just look at his videos 3 inch in femur will never screw your proportions.

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