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Posted on Apr 3, 2021, 4:46 pm
#541

Quote from: Serilium on April 03, 2021, 04:22:07 AMCongrats SNC! I recommend to couch potato for 10 days, don't bother walking too much. I do not want to scare you, but a person called programdude removed his nails somewhat early like you, and decided to return to normalcy too soon and snapped his femur! Just be a couch potato for 10 days! Then slowly pick it up and walk a little! This is a success- but please take it easy SNC! It's okay to be a potato for 10 days !

You are already world record haha! Back then 8 months is when Precice patients STARTED walking unassisted. You REMOVED the nails at 8 months. You are f**king insane (in a good way!)

Actually probably worried that you will go too hard this week on recovery- you have that grind mentality and will work 200% hard and you will probably hate to slack off- but please forgive yourself and be a potato for 10 days Femurs with Dr. Shahab Mahboubian - July 2020 10 days of slacking and eating and then months of easy, no stress exercise.

congrats SNC! Best diary ever!

Thanks very much Serilium.   I remember ghkid told me about the programdude story, when I was in month 4 postop. I believe based on programdude's diary, he did precise with rods that are not as weight bearing as stryde nails back in July 2014. He then had his rods removes in July 2015. A few months later in October 2015 (around month 13 post-op), he had a left leg bone fracture.

There is a high chance his left callus was not fully consolidated and his walking and stretching exercises, gradually deepened a fracture that probably started possibly earlier than October 2015. I think had stryde been available at his time, he would not have experienced the fracture. In any case I am not a medical doctor and my guesses could all be wrong. That is the reason I have done what you said; I have been extra careful. I also listen to my body to make sure I continue to have zero pain. If any pain starts, I will immediately go for an x-ray.

I walked only 0.8 miles on the day of surgery and only 1.7 miles, yesterday, day 1 post-op. I made every move very slowly and cautiously. I have also stopped all other activities, including daily stretching exercises.

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Posted on Apr 3, 2021, 4:50 pm
#542

Quote from: itseasy on April 03, 2021, 07:03:25 AMLet’s see those corroded strydes....lol.  Just kidding!! But seriously, I really want to see what’s up because I’m really wondering if mine are corroding in my legs right now. I’m about to start drinking WD-40 every night!! Hahaha

Sorry I have not posted them yet. Dr. M. said he would have them cleaned. When I got them, I saw some stuff close to the edges and I assumed corrosion. However when I got home, and double checked them, I found out they were my own bone marrow. I am trying to carefully clean it such as I remove the bone marrow parts, but do not remove any corroded parts and make a high quality picture, so we all get some good perspective of how much corrosion occurs month 8 post-op.

In any case, I trust Dr. M. that at least in my case, even if there were any corrosion, I would not have any long term impacts, considering how my body has responded so far.

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Posted on Apr 3, 2021, 4:51 pm
#543

Quote from: Tartar on April 03, 2021, 04:23:58 PMFastest removal ever, your healing is blessed

Thanks Tartar,

How is it going? I hope all is well on your side.

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Posted on Apr 4, 2021, 5:49 am
#544

Friday, April 2: Day 1 Post-Nail Removal - Day 253  (8 months and 10 days) Post-CLL Surgery

Cold
Unfortunately the sore throat I felt, has persisted. The only time I removed my mask was after the surgery while eating. I may have gotten it from the nurses who were around during the lunch time; or possibly in the surgery room when they must have removed my mask for the oxygen tube. It's unfortunate I got cold. It's not that bad. I don't have a fever, nor body pain, runny nose, etc., but only mild sore throat now; perhaps because it's viral and I had the flu vaccine back in late September 2020; but I wish I were more careful while outside.

The last time I got cold like this was back in December 2020. I think I could avoid getting sick for this long, mostly cause of WFH and social distancing policies.

This is a good reminder for me and possibly you guys to be extra careful, especially if you are scheduled for a surgery; to do all it takes to minimize the risk of getting covid, cold, etc. while at the hospital.


Update:


I continued to be extremely cautious. My sitting and standing at times took more than 30 seconds, to make sure I leave no chance to any possible bone fracture near the old screw or nail areas.

The only thing I did that may seem crazy was trying driving. I was pretty confident I could drive even a couple hours after the nail removal; therefore listening to my body, I saw the risk of driving at day 1, as zero.

Everything else was super conservative. I only walked for 0.8 miles, yesterday on the surgery day, and today on day 1, only for 1.7 miles. I was careful on every step to make sure I don't sway or rotate that may increase the risk of a bone fracture.

I would not mind doing assisted walks to minimize the risk, however I had donated my wheelchair and walker long ago! I also planned to use the crutches only outside (to not make home dirty) therefore the plan is to continue to walk unassisted while at home and use crutches outside, if necessary.

As long as I don't walk, it feels as if I never did any surgery. However when I move (sit, stand, walk) I feel some very low level of soreness, on the two screw spots (mainly hips, and rarely above knees, where screws had been put). I should say the best surprise I have had, has been the zero pain I have experienced since I woke up from the surgery yesterday. It's amazing, that the removal may not create any pain at all! I have had great night sleeps since a couple weeks into consolidation. I am so happy that my night sleep quality did not degrade after the nail removal. I am also glad I have not needed to take painkillers for this surgery.

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Posted on Apr 4, 2021, 10:53 pm
#545

Sat., April 3: Day 2 Post-Nail Removal - Day 254  (8 months and 11 days) Post-CLL


Updates:
Forgot to mention before that I have been taking aspirin (prescribed by Dr. M. as a blood thinner medicine) twice per day.

I walked unassisted, for 1.8 miles only today. Similarly to Day 1, I was extra careful in taking steps, sitting and standing. My gait is not yet perfect. I also figured as a tradeoff of gait vs safety; I compromise on gait by trying to minimize standing on one leg and instead quickly going on both legs on the ground, so that I can make my steps safer. Similarly to the surgery day and day 1, no pain and therefore no painkillers. My biggest happiest surprise of the surgery Femurs with Dr. Shahab Mahboubian - July 2020 Soreness on right leg is almost gone now, however left leg lags and I feel some soreness on the left hip area, while walking.

Night 3 post-op:  As usual I had a great sleep of more than 8 hours. I woke up a couple times to use the restroom, though. I believe the first time I woke up (around 2am) I felt like my sore throat and left ear irritation are gone. This means my cold took little over 48 hours. I hope now that I have recovered from cold, I can focus on brining my gait to a 100%.

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Posted on Apr 5, 2021, 4:44 am
#546

Quote from: itseasy on April 03, 2021, 07:03:25 AMLet’s see those corroded strydes....lol.  Just kidding!! But seriously, I really want to see what’s up because I’m really wondering if mine are corroding in my legs right now. I’m about to start drinking WD-40 every night!! Hahaha


Quote from: StrydeNailChallenge on April 03, 2021, 04:50:20 PMSorry I have not posted them yet. Dr. M. said he would have them cleaned. When I got them, I saw some stuff close to the edges and I assumed corrosion. However when I got home, and double checked them, I found out they were my own bone marrow. I am trying to carefully clean them such that I remove the bone marrow parts, but do not remove any corroded parts, and then make a high quality picture, so we all get some good perspective of how much corrosion occurs month 8 post-op.

In any case, I trust Dr. M. that at least in my case, even if there were any corrosion, I would not have any long term impacts, considering how my body has responded so far.


I finally got a chance to make a video on the nails. The vide appears below.

After carefully checking the nails to make sure not much bone marrow is still on the nails, I don't see any sign of corrosion/rusting.

I see one of the Stryde nails as a few millimeters longer. That must be the one for my left femur. I had already noted in my diary that I went to max (of 8cm) on left, but 7.97 mm or so on the right; as my right femur was a bit longer than my left pre-op. The longer left Stryde seems to have a design pattern towards the end. In the video I point at it. That does not show on the right one, cause I did not max the right out, so it must be inside the nail.

Just because I don't see corrosion/rusting does not mean there cannot be.

Please check the pictures that Azman had provided on his corroded Stryde nails. In fact Dr. M. had also told me that they see rusting/corrosion, on Stryde nails when they remove the nails. I hope the recall finds any issues including rusting related and resolves them.

However rusting/corrosion must be a function of time, as well as some parameters related to the patient's body (chemical, etc.). It just happens that perhaps in my case there was no rusting/corrosion. 

Let me know if you have any comments, or questions.

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Posted on Apr 5, 2021, 9:07 am
#547

Quote from: StrydeNailChallenge on April 05, 2021, 04:44:37 AM

I finally got a chance to make a video on the nails. The vide appears below.

After carefully checking the nails to make sure not much bone marrow is still on the nails, I don't see any sign of corrosion/rusting.

I see one of the Stryde nails as a few millimeters longer. That must be the one for my left femur. I had already noted in my diary that I went to max (of 8cm) on left, but 7.97 mm or so on the right; as my right femur was a bit longer than my left pre-op. The longer left Stryde seems to have a design pattern towards the end. In the video I point at it. That does not show on the right one, cause I did not max the right out, so it must be inside the nail.

Just because I don't see corrosion/rusting does not mean there cannot be.

Please check the pictures that Azman had provided on his corroded Stryde nails. In fact Dr. M. had also told me that they see rusting/corrosion, on Stryde nails when they remove the nails. I hope the recall finds any issues including rusting related and resolves them.

However rusting/corrosion must be a function of time, as well as some parameters related to the patient's body (chemical, etc.). It just happens that perhaps in my case there was no rusting/corrosion. 

Let me know if you have any comments, or questions.



Dude, that video gave me hope. I know people’s body’s can produce different chemicals which in turn affects corrosion possibilities, but hopefully mine are as clean as yours. I had to speed up lengthening due to fast consolidation too, so maybe I can remove them soon as well. My last xrays showed excellent bone growth as if they are consolidation fast. I’m 3 months into consolidation.

I’m glad I have the stainless steel stryde. I’m hitting the gym and walking without fear and it’s great.

Another side note, being 6’ now at the gym (easily 6’1” with my shoes), I’m noticing that I’m nearly taller than 90% of everyone in there. It’s a great confidence booster and building the upper body along with hitting the shoulders (delts) gets me to the serious physique I’ve been looking for.

So for all those prospective LL’rs, Stryde is the shiznit and COMPLETELY, and I mean COMPLETELY solved any height neurosis I may have had. ITS GONE!!!!!

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Posted on Apr 5, 2021, 10:11 am
#548

damn dude 8 months. You gotta pay respect to the stryde nails by keeping it in your body for atleast 1 year. Thats the protocol.

Anyway if you had made up your mind on the removal, I wouldve requested you to remove only one first and then the other after 12 months so we could see if corrosion happens between 8 and 12 months. Now youve crossed off that possibility  Femurs with Dr. Shahab Mahboubian - July 2020

anyway sir, jokes aside, congrats on your completion of the journey and we still look forward to seeing how you recover. of course none of this is useful to us because just because YOU recover and do crazy things doesnt mean us common plebs can because we dont have that superman DNA.

cheers SNC, I like the idea of living life challenge to challenge and lookin' forward to challenges instead of cryin' about them.

btw whats your next challenge?

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Posted on Apr 5, 2021, 5:24 pm
#549

SNC,

I read through your diary again and I like your attitude in general. it's prob all genes but do you have some stuff younger guys can read/watch to become like you in attitude?

Even though I am a full adult now I have a habit of blaming things on others and the situation instead of taking control over it with full responsibility.

thank senor

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Posted on Apr 5, 2021, 6:17 pm
#550

Quote from: itseasy on April 05, 2021, 09:07:46 AMDude, that video gave me hope. I know people’s body’s can produce different chemicals which in turn affects corrosion possibilities, but hopefully mine are as clean as yours. I had to speed up lengthening due to fast consolidation too, so maybe I can remove them soon as well. My last xrays showed excellent bone growth as if they are consolidation fast. I’m 3 months into consolidation.

I’m glad I have the stainless steel stryde. I’m hitting the gym and walking without fear and it’s great.

Another side note, being 6’ now at the gym (easily 6’1” with my shoes), I’m noticing that I’m nearly taller than 90% of everyone in there. It’s a great confidence booster and building the upper body along with hitting the shoulders (delts) gets me to the serious physique I’ve been looking for.

So for all those prospective LL’rs, Stryde is the shiznit and COMPLETELY, and I mean COMPLETELY solved any height neurosis I may have had. ITS GONE!!!!!

Don't want to go totally off topic in SNC's journal, but do you notice that sometimes when you're walking down the street and you see a guy from far away and he looks taller than you, but then when you cross paths you are actually taller than the other guy? It has happened to me so many times since surgery! I don't think my perception has fully adjusted to being taller yet Femurs with Dr. Shahab Mahboubian - July 2020

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