Femurs with Dr. Shahab Mahboubian - July 2020

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Quote from: StrydeNailChallenge on April 05, 2021, 04:44:37 AM

I finally got a chance to make a video on the nails. The vide appears below.

After carefully checking the nails to make sure not much bone marrow is still on the nails, I don't see any sign of corrosion/rusting.

I see one of the Stryde nails as a few millimeters longer. That must be the one for my left femur. I had already noted in my diary that I went to max (of 8cm) on left, but 7.97 mm or so on the right; as my right femur was a bit longer than my left pre-op. The longer left Stryde seems to have a design pattern towards the end. In the video I point at it. That does not show on the right one, cause I did not max the right out, so it must be inside the nail.

Just because I don't see corrosion/rusting does not mean there cannot be.

Please check the pictures that Azman had provided on his corroded Stryde nails. In fact Dr. M. had also told me that they see rusting/corrosion, on Stryde nails when they remove the nails. I hope the recall finds any issues including rusting related and resolves them.

However rusting/corrosion must be a function of time, as well as some parameters related to the patient's body (chemical, etc.). It just happens that perhaps in my case there was no rusting/corrosion. 

Let me know if you have any comments, or questions.
It's pretty cool that you can measure the nails after taking them out to know what the true amount lengthened was. I am definitely curious and plan to measure mine when I take them out because I don't think I actually maxed out either leg, but I should be very very close.

It makes sense that you were less likely to have corrosion since you didn't exactly have the nails in for a long time!

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Quote from: BelowTheMean on April 05, 2021, 06:17:29 PMDon't want to go totally off topic in SNC's journal, but do you notice that sometimes when you're walking down the street and you see a guy from far away and he looks taller than you, but then when you cross paths you are actually taller than the other guy? It has happened to me so many times since surgery! I don't think my perception has fully adjusted to being taller yet

OMG you hit the nail right on the head!!! I thought it was only me thinking that. It happens ALL THE TIME! I would see a guy far from me and think he’s way taller than he is, then I get closer and POOF, I’m taller than him. Then I actually start to think if I look super tall to people now from far away. So strange huh???  Sure makes you feel great and confident though!Do you think it’s our old perception still trained to perceive things in our old ways??? I’ll tell you what man, you definetly get to experience the world in a whole new way now. Almost as if we are living a new life or journey.

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Congrats SNC! staying tuned to the post removal updates 

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Quote from: itseasy on April 05, 2021, 09:07:46 AMDude, that video gave me hope. I know people’s body’s can produce different chemicals which in turn affects corrosion possibilities, but hopefully mine are as clean as yours. I had to speed up lengthening due to fast consolidation too, so maybe I can remove them soon as well. My last xrays showed excellent bone growth as if they are consolidation fast. I’m 3 months into consolidation.

I’m glad I have the stainless steel stryde. I’m hitting the gym and walking without fear and it’s great.

Another side note, being 6’ now at the gym (easily 6’1” with my shoes), I’m noticing that I’m nearly taller than 90% of everyone in there. It’s a great confidence booster and building the upper body along with hitting the shoulders (delts) gets me to the serious physique I’ve been looking for.

So for all those prospective LL’rs, Stryde is the shiznit and COMPLETELY, and I mean COMPLETELY solved any height neurosis I may have had. ITS GONE!!!!!

Hello itseasy,
I am glad the video had some positive impact on you. I hope all goes well for you and you'll also be completely happy with your nail removal and finally mark the end of your CLL journey.

Also glad that you are happy with your results.

Cheers,
SNC

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Quote from: las vegas baby on April 05, 2021, 10:11:14 AMdamn dude 8 months. You gotta pay respect to the stryde nails by keeping it in your body for atleast 1 year. Thats the protocol.

Anyway if you had made up your mind on the removal, I wouldve requested you to remove only one first and then the other after 12 months so we could see if corrosion happens between 8 and 12 months. Now youve crossed off that possibility 


Hi lvb
While reading this, in my mind I was imagining a platform for one of the nails to be kept in a human-body-like emulator for 4 more months to see how much it would corrode. It would need a lot of mechanical engineering and AI. Perhaps someone should do a Ph.D. on it

Had the recall not happened, I would have removed my nails in July 2021 or later. I did not have much motivation for early removal, even if my consolidation went extremely great and formed completely by month 5 post-op, and also that Dr. M. had told me that I could do the removal as early as March 2021. . The nails did not bother me at all. I felt normal with them. However as soon as I heard about the recall, I called Dr. M.'s office and asked for the earliest surgery date. They gave me April 1st, which makes it 8 months post-op; something I had never imagined to happen, when I started my CLL journey. I hope the recall ultimately turns out to be a success for future CLL'ers.

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Quote from: las vegas baby on April 05, 2021, 10:11:14 AM
anyway sir, jokes aside, congrats on your completion of the journey and we still look forward to seeing how you recover.


Thanks lvb.
I don't believe in life after death!!! this life is all I have and I wanna max out my happiness and satisfaction feelings. I learnt long ago that helping others gives me this extreme joy.   I started checking this forum one week before my surgery and throughout my CLL journey and I decided to write my own diary to hopefully help others. I will try my best to check this forum as frequently as possible to answer any questions.

Quote from: las vegas baby on April 05, 2021, 10:11:14 AM
of course none of this is useful to us because just because YOU recover and do crazy things doesnt mean us common plebs can because we dont have that superman DNA.

cheers SNC, I like the idea of living life challenge to challenge and lookin' forward to challenges instead of cryin' about them.


I believe ANYONE can be a superman or superwoman. No one is common. Everybody can do something crazy special. I truly believe in that.

Quote from: las vegas baby on April 05, 2021, 10:11:14 AM
btw whats your next challenge?

I had started practicing for 180 split and seeing your post [to make a video of side split] further motivated me. The best I could do happened a few days before my removal surgery with my center height to the ground as about 15cm. Considering when I started practicing splitting I was worse than 90 degrees, it was a great improvement for me, but not perfect enough to make a video. Unfortunately I have to wait for 3 months before I can resume my split challenge

I had decided to learn hoverboarding, however it turned out to not be a real challenge. I figured it out in less than a minute and I am sure anyone else could figure it out quickly. 

My other challenges are all related to my main profession and I am afraid I cannot go into too much details, but they are all finance and mathematics related and they take a lot of brain power and determination. I find them harder than CLL, but I hope I can succeed at least in a couple of them.

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Quote from: las vegas baby on April 05, 2021, 05:24:07 PMSNC,

I read through your diary again and I like your attitude in general. it's prob all genes but do you have some stuff younger guys can read/watch to become like you in attitude?

Even though I am a full adult now I have a habit of blaming things on others and the situation instead of taking control over it with full responsibility.

thank senor

Hi lvb,

Thanks for all the kind words. Actually what you said nailed it: in the even of failures, even if others are to blame, we should look at ways to avoid similar future incidents, that they get the opportunity to hurt us again. E.g., let's say a team or individual claims after the game that bad weather and the unfair referee where the reasons they lost the game. Then they should train themselves at such a high level that the external factors such as extreme weather conditions and unfair judgements, would not make much difference, cause relatively they trained themselves to be the best by far. 

I know it's easy to say the above, and it takes a lot of energy and attention to follow, but it would be effective most of the times.

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Quote from: BelowTheMean on April 05, 2021, 06:21:53 PMIt's pretty cool that you can measure the nails after taking them out to know what the true amount lengthened was. I am definitely curious and plan to measure mine when I take them out because I don't think I actually maxed out either leg, but I should be very very close.


Hi BTM, I can see the length difference between the two, but I did not see clear marks to follow to double check whether the left Stryde got lengthened by 8cm. Do you see any marks or indications for that?

Quote from: BelowTheMean on April 05, 2021, 06:21:53 PM
It makes sense that you were less likely to have corrosion since you didn't exactly have the nails in for a long time!

Yes, I think time is an important factor. I am curious if any paper specifically showed the impact of time on corrosion in Stryde nails. E.g., is the corrosion to time dependency linear? sublinear? I hope not superlinear!

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Quote from: BelowTheMean on April 05, 2021, 06:17:29 PMDon't want to go totally off topic in SNC's journal, but do you notice that sometimes when you're walking down the street and you see a guy from far away and he looks taller than you, but then when you cross paths you are actually taller than the other guy? It has happened to me so many times since surgery! I don't think my perception has fully adjusted to being taller yet

It seems very weird, but it has also happened to me, exactly how you described it. It has happened at places, where I could actually verify that my eyes and brain were being inaccurate at start: e.g., we are standing at a cashier line and the guy next to me seems taller, but then we pass in front of a mirror and I see I am taller than him by an inch or so    

I think as time has passed the accuracy of height comparison has increased for me, though.

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Quote from: Movie on April 05, 2021, 11:27:57 PMCongrats SNC! staying tuned to the post removal updates 

Thanks Movie.

Definitely. I continue to report daily till full recovery and then I will continue to post whenever I have any major updates.

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snc i think the lack of corrosion its 100% due to you early removal good to know you wont have elevated chromium levels and stuff

i am still in shock that you removed your nail in month 8. thats a world record, especially for 8 cm lengthening. it wasnt 5cm, or 6cm, no no, it was EIGHT!

cheers snc