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Posted on Apr 7, 2021, 4:56 am
#561

Quote from: StrydeNailChallenge on April 04, 2021, 10:53:08 PMThurs., April 1: Nail Removal Surgery Day also Day 252  (8 months and 9 days) Post-CLL Surgery

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Quote from: StrydeNailChallenge on April 04, 2021, 05:49:26 AMFriday, April 2: Day 1 Post-Nail Removal - Day 253  (8 months and 10 days) Post-CLL Surgery....
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Quote from: StrydeNailChallenge on April 04, 2021, 10:53:08 PMSat., April 3: Day 2 Post-Nail Removal - Day 254  (8 months and 11 days) Post-CLL

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Sun., April 4: Day 3 Post-Nail Removal - Day 255  (8 months and 12 days) Post-CLL - Marking the official end of my CLL Challenge

I felt the improvement was exponential today from morning to night. By the evening time, I felt very confident that there was no chance my femurs or old screw areas would fracture, while walking. That allowed me to bring my gait to a 100% and walk fast. I have recorded a video of the evening walk and I'll post it soon. I overall walked for 3.7 miles today. By evening, I felt like I was back to my normal me like in pre-NailRemoval, or Pre-CLL times. 

Per post-surgery instructions, I removed the bandages and took a shower for the first time since the surgery day. The cuts seem to have healed much faster this time (than post-CLL).

I believe for the next 3 months or so, I will use safe ways (walking, safe stretching exercises) to build strength while not pushing it too far. I should then be good to resume intense exercises I used to do (biking, swimming, etc.)

I am going to stop reporting daily. However I will post whenever I have some major updates. I believe the next one would be on the coming Friday, after I'll have met Dr. M. for my post-removal visit.

Ladies and Gentlemen!
This officially marks my end of the CLL challenge. I would like to thank everyone in this forum who have inspired and guided me throughout the journey.

Cheers,
SNC

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Posted on Apr 9, 2021, 9:22 pm
#562

Man I'm so happy for you..

Can't wait for you to post that video!

Kind request....

Please dont stop reporting ever.....



Not daily, bt say weekly?


A video per week?


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Posted on Apr 9, 2021, 9:34 pm
#563

Quote from: StrydeNailChallenge on April 07, 2021, 04:56:57 AM....


Sun., April 4: Day 3 Post-Nail Removal - Day 255  (8 months and 12 days) Post-CLL - Marking the official end of my CLL Challenge

I felt the improvement was exponential today from morning to night. By the evening time, I felt very confident that there was no chance my femurs or old screw areas would fracture, while walking. That allowed me to bring my gait to a 100% and walk fast. I have recorded a video of the evening walk and I'll post it soon. I overall walked for 3.7 miles today. By evening, I felt like I was back to my normal me like in pre-NailRemoval, or Pre-CLL times. 

Per post-surgery instructions, I removed the bandages and took a shower for the first time since the surgery day. The cuts seem to have healed much faster this time (than post-CLL).

I believe for the next 3 months or so, I will use safe ways (walking, safe stretching exercises) to build strength while not pushing it too far. I should then be good to resume intense exercises I used to do (biking, swimming, etc.)

I am going to stop reporting daily. However I will post whenever I have some major updates. I believe the next one would be on the coming Friday, after I'll have met Dr. M. for my post-removal visit.

Ladies and Gentlemen!
This officially marks my end of the CLL challenge. I would like to thank everyone in this forum who have inspired and guided me throughout the journey.

Cheers,
SNC
Never seen a recovery as fast as yours. You are a true wolverine. Femurs with Dr. Shahab Mahboubian - July 2020

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Posted on Apr 10, 2021, 4:37 am
#564

Congrats, SNC.  You conquered yet another challenge!

On to the Next!

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Posted on Apr 10, 2021, 6:11 am
#565

Quote from: Dreamer57 on April 09, 2021, 09:22:50 PMMan I'm so happy for you..

Thanks man!

Quote from: Dreamer57 on April 09, 2021, 09:22:50 PM
Can't wait for you to post that video!


Sorry it has taken long. I typically pass the videos to a friend who takes care of covering/blurring my face, etc. for privacy reasons. That friend got busy Femurs with Dr. Shahab Mahboubian - July 2020 I will post it as soon as I get the video.

Quote from: Dreamer57 on April 09, 2021, 09:22:50 PM
Kind request....

Please dont stop reporting ever.....

Not daily, bt say weekly?

A video per week?

If I know frequent videos would help, then why not. I am not sure I have material for weekly videos though Femurs with Dr. Shahab Mahboubian - July 2020 In any case I will continue to monitor this forum and try to help out as much as I can with any tips, videos, etc. that I can offer.

SNC

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Posted on Apr 10, 2021, 6:14 am
#566

Quote from: Tartar on April 09, 2021, 09:34:32 PMNever seen a recovery as fast as yours. You are a true wolverine. Femurs with Dr. Shahab Mahboubian - July 2020

Thanks Tartar!  I owe it partly to you and also many others. You guys helped me a lot, especially during distraction, with advice on stretching, pain management, etc.

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Posted on Apr 10, 2021, 6:16 am
#567

Quote from: InFullStryde on April 10, 2021, 04:37:19 AMCongrats, SNC.  You conquered yet another challenge!

On to the Next!

Thanks very much IFS!  On to the Next Femurs with Dr. Shahab Mahboubian - July 2020

Cheers!

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Posted on Apr 10, 2021, 9:35 am
#568

Quote from: StrydeNailChallenge on April 03, 2021, 04:50:20 PMSorry I have not posted them yet. Dr. M. said he would have them cleaned. When I got them, I saw some stuff close to the edges and I assumed corrosion. However when I got home, and double checked them, I found out they were my own bone marrow. I am trying to carefully clean it such that I remove the bone marrow parts, but do not remove any corroded parts and make a high quality picture, so we all get some good perspective of how much corrosion occurs month 8 post-op.

In any case, I trust Dr. M. that at least in my case, even if there were any corrosion, I would not have any long term impacts, considering how my body has responded so far.


Quote from: StrydeNailChallenge on April 05, 2021, 04:44:37 AM

I finally got a chance to make a video on the nails. The vide appears below.

After carefully checking the nails to make sure not much bone marrow is still on the nails, I don't see any sign of corrosion/rusting.

I see one of the Stryde nails as a few millimeters longer. That must be the one for my left femur. I had already noted in my diary that I went to max (of 8cm) on left, but 7.97 mm or so on the right; as my right femur was a bit longer than my left pre-op. The longer left Stryde seems to have a design pattern towards the end. In the video I point at it. That does not show on the right one, cause I did not max the right out, so it must be inside the nail.

Just because I don't see corrosion/rusting does not mean there cannot be.

Please check the pictures that Azman had provided on his corroded Stryde nails. In fact Dr. M. had also told me that they see rusting/corrosion, on Stryde nails when they remove the nails. I hope the recall finds any issues including rusting related and resolves them.

However rusting/corrosion must be a function of time, as well as some parameters related to the patient's body (chemical, etc.). It just happens that perhaps in my case there was no rusting/corrosion. 

Let me know if you have any comments, or questions.




My Final Visit with Dr. M. on Friday, April 9

Dear CLL'ers,

I had my final appointment (8 days after Nail-Removal on April 1st) today. Dr. M. said no x-ray was necessary, as he took some x-rays after the surgery and everything looked great. They removed the stitches.

I asked whether I could resume stretching sooner than 3 months, e.g., some right away. He said absolutely! He said I need to be careful with moves that put a lot of pressure on legs (such as intense running or jumping), but he said while being careful, I could resume jogging and stretching.

It was a short meeting, but towards the end Dr. M. asked whether I got the nails. I said I did. Then I told him that after carefully checking the nails, I found the minimal spots that we had thought to be corroded, were really bone marrow. However Dr. M., was certain they were NOT bone marrow, and they were indeed corrosion!!!   He said, his staff were careful in cleaning and what I saw, though minimal, was corrosion. He however repeated that I should not worry at all about that minimal corrosion, considering how my body has healed.


The few tiny spots I had cleaned were all at the edges where the nail lengthens. I used a wet napkin and my nails at times to remove those parts, assuming corroded parts cannot come off using a wet napkin and a push of my nail  Femurs with Dr. Shahab Mahboubian - July 2020   I am very sorry for making that assumption and concluding my nails had no corrosion; and possibly giving some false hope to all of us that corrosion can be at zero, if someone removed their nails very early.

I hope this news does not scare any of those who still have the Stryde nails. I think we soon would get better information regarding the recall, and whether corrosion is a major concern (e.g., resulting in cancer), but I am very confident based on my discussions with Dr. M., and quickly checking a couple articles that we should not worry about the level of corrosion we may get if our CLL process went well, and we removed our nails within a few years,   

SNC

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Posted on Apr 11, 2021, 6:08 am
#569

The stryde nail is gonna be fine. I’m not so worried about my corrosion if it’s there. I do more damage to my body with McDonalds and Starbucks....trust me!!! Breathing the fresh smog in downtown LA is more dangerous...lol.

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Posted on Apr 11, 2021, 5:42 pm
#570

Quote from: itseasy on April 11, 2021, 06:08:08 AMThe stryde nail is gonna be fine. I’m not so worried about my corrosion if it’s there. I do more damage to my body with McDonalds and Starbucks....trust me!!! Breathing the fresh smog in downtown LA is more dangerous...lol.

Hey itseasy,
Good to hear from you!  I am generally an optimistic and agree with you. Also Dr. M. has repeatedly tried to assure me that the risk (of corrosion or generally the recall findings) in my case is zero.

However I know some of us may wonder whether in the worst case there is a bit of corroded metal left inside bones, and then at some point that creates the body defense system to react and somehow enforce a surgery (for treatment), or even worse, to create cancer. Most likely the chance of both is zero, but I hope the recall findings shed some light on this.

All said, you are correct that the things we do on a daily basis (such as eating fast/restaurant food, drinking heavily, smoking stuff, breathing the city air, and long durations of sun exposure) result in serious issues in the long term.

SNC

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