Quote from: OzBoy39 on September 14, 2022, 01:11:53 PMHi Thankscience,
Hopefully they'll help someone. But for anybody who's doing this, please try to find what works best for you. Sometime it's just about slightly changing the angle of your quad or lower legs to make the clicking easy. Try, to not get discouraged if it doesn't work at first. But try and be concious of your body response and feeling. Adjust a little and try again, slowly. Don't push to the point of extreme pain. If you twisted 45 degrees and it didn't click yet... you're doing it wrong. You don't have to push harder. You gotta change the way you're doing it.
For the compression socks, I use to wash them every 2or 3 days. So one pair was ok. I'm sure if I had asked more they would give me right away.
Xeralto, I do t really wanna take it for longer than a month. Talking to the Doc he says that at that point, the risk of blood clotting (for G-Nail or other weight bearing patients) is extremely low, so there's no point in maintaining the same regime (and by doing so further damaging the liver).
It is a different thing for precice patients who cannot really move much other than the wheelchair. They will use xeralto throughout the lengthening if I understood correctly.
I'm already pretty mobile and active throughout the day, and I hope it'll only go up from here in terms of mobility.
He'll then give me xeralto again a few days prior and after my flight home together with the compression socks to wear during the flight.
Thanks for the tip about Xarelto, I've also heard it has some adverse affects. Maybe I'll ask Evi/Bill/Dr Giotikas about this too
G-Nail on femurs in Greece on Aug24th. Let's do this!!!
Hey Ozboy39.
There was a guy who died due to a pulmonary embolism some months ago. Did your doctor mention something about this case? Didn't he take the Xarelto pill?
Quote from: Limbfan2020 on September 16, 2022, 10:41:50 PMHey Ozboy39.
There was a guy who died due to a pulmonary embolism some months ago. Did your doctor mention something about this case? Didn't he take the Xarelto pill?
Hi Limbfan2020, I don't know at the moment.
I'm not sure if he was referring to this specific patient, but the day before the surgery during the pre-op consultation, we were talking about the various schedules and the pros vs cons of each medication.
He stressed the fact that Xeralto was among the most important medication among all because not taking it could significantly increase the risk of clots that lead to clots and therefore could induce a PE.
Together with that he alluded to some patients not really cooperating with the doctor and nurses in the way of basically not taking the meds (and not even informing them) which developed an embolism
I don't know if the two are related, I was just listening at the time, but I'll try to remember to ask next time I have a checkup with him. I'm curious too.
Quote from: SpeedDialer on September 16, 2022, 10:15:34 PMThanks for the tip about Xarelto, I've also heard it has some adverse affects. Maybe I'll ask Evi/Bill/Dr Giotikas about this too
Yeah, they all do. Especially if taken long term. Many of them are hard on your stomach/liver whereas some others (like the tramadol) being an opioid can create addiction.
Quote from: OzBoy39 on September 17, 2022, 12:09:29 AMYeah, they all do. Especially if taken long term. Many of them are hard on your stomach/liver whereas some others (like the tramadol) being an opioid can create addiction.
What are your thoughts on the best times of the day to sleep? My first physical therapy session is Monday in the afternoon and then the nearby Strip Club loud music near Montaza starts at night (not sure when?). Not exactly sure what my regular physical therapy schedule will be. But putting this all together, I think that means that the evening is actually the best time to sleep + get in random naps at other times like the morning, but what has worked out for you?
Right now, the music isn't so bad, I just hear the loud beat of the strip club music
Quote from: SpeedDialer on September 17, 2022, 01:36:40 AMWhat are your thoughts on the best times of the day to sleep? My first physical therapy session is Monday in the afternoon and then the nearby Strip Club loud music near Montaza starts at night (not sure when?). Not exactly sure what my regular physical therapy schedule will be. But putting this all together, I think that means that the evening is actually the best time to sleep + get in random naps at other times like the morning, but what has worked out for you?
Right now, the music isn't so bad, I just hear the loud beat of the strip club music
Judging by the time we're writing these messages, I guess sleep is not our strong point at the moment. Lol
Just kidding. I am trying (hard) to have as long a sleep as I can at night AND I'm keeping my mornings free for naps.
I say that because I believe that you'll also be doing PT between 12 and 1pm and that can last up to 2 hours.
At the beginning I was napping in the afternoon but that made it really problematic to fall asleep at night.
So, to maximise my sleep and at the same time be somewhat efficient and have some sort of decent routine itry to do this.
I'm going to bed relatively early (9 to 10pm) and try to get at least 6 hours of combined sleep. As you can see... I'm awake now at 442am so my sleep is still...patchy.
Then I wake up at around 6am...
Catch up with emails, socials, friends and basically just... Slowly wake up.
Around 7am i do my clicks routine (I just want to get them done asap and I like the sunrise light in my room at that time. It makes me feel relaxed and that helps with my clicking routine).which involves a light warmup (all in bed), light stretching, light twisting of the leg and then....the clicks.
Then I Go down and have a huge breakfast either in the hotel or in a coffee shop nearby.
The rest of the morning I chill and stretch and often (especially when I don't get much sleep the night before) I squeeze in another nap which comes much easier than at night.
Then PT, lunch, work, chill, clicks, dinner and repeat.
How many days a week are you going to the PT centre? And if your hotel has a gym have you been using that at all?
We do 4 days per week (Mon, Tue, Thursday and Fri).
Yeah Novotel has a "little" gym that I've been using.
It has an elliptical, a treadmill, a static bike and a compound weight machine where you can do a bit of chest presses and flies, lats puldowns, biceps and triceps, leg extensions.
They don't have benches or dumbbells unfortunately.
Quote from: OzBoy39 on September 17, 2022, 05:12:06 AMWe do 4 days per week (Mon, Tue, Thursday and Fri).
Yeah Novotel has a "little" gym that I've been using.
It has an elliptical, a treadmill, a static bike and a compound weight machine where you can do a bit of chest presses and flies, lats puldowns, biceps and triceps, leg extensions.
They don't have benches or dumbbells unfortunately.
Interesting. Do you find you have energy to do upper body workouts given how much energy and time is required for your legs? Also, I noticed some people seem to have static bikes in their rooms. Is this provided by Dr G's team?
Yes, as the days go by I am regaining normal energy levels and so I feel I can do some workouts. Not everyday still, but 3 or 4 times per week.
Yes I do have the bycicle provided by Dr G. He also provided the Walker, wheelchair and crutches. And the PT guys have me a strap and a nice manual with the summary of all stretches to do during lengthening.
Fyi... Many stretches are absolutely a no no given that you could damage the nail/screws
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