Quote from: zakika on August 11, 2018, 10:23:27 AMThanks Bonez!
The important things to do routinely:
PT and walking min. 2x/day: in the morning I - logically - go to the bathroom with walker, after coming back try to do some rounds more (if the pain is not too high, but with a tramadol-lyrica preliminary combo it is easier to overcome soreness). In the afternoon/ evening second round of walking, and before going to bed the last round. Dr Giotikas insists on walking, he calls me regularly, and checks every crucial steps.
Eating - as much as you can, low sodium, sugar meal 3x/day, I'm using a specific unflavoured protein shake brand (that I'm flavouring for myself with organic cocoa, eritrit combo) as well (for dessert it is perfect). I brought with me a huge amount of vitamins, supplements which I'm not taking currently, I will use them for the consolidation phase. Btw all the meds are included in the price (like xarelto, painkillers, chlorhexidin, even vitamin d in small liquid bottles - which i was surprised about).
Sleeping is crucial. I agree with many, that discipline is essential for us during this journey. By that I mean, if you don't have a proper schedule, don't occupy yourself, or loose focus because of pain, the level of discomfort, and pain get get substantially higher. I'm not saying if your mindset is optimal you don't feel it, just the whole experience can be better or worse, and pain is the primary burden of getting a good quality sleep.
Independence is getting better with every day, but have to be patient. I don't personally cook, as standing for longer makes my legs sore, but I let the house aid cook, clean, shop everything.
Try to cook seriously. I could so can you. The only problem with cooking , using walker and wheelchair is that after a while my feet would swell and i had massive discomfort. It actually might not happen to you since you dont have foot holders. Walk , stand as much as possible and I know its but you legs need to work. I was learning walking with crutches by putting a wheelchair in front of me in case of falling and then making small steps. It worked but was difficult.
Thanks dooms, I think I'll try to push myself more, just I'm maybe to cautious to avoid all failure points.
Day 17
I'm doing 1mm/day (4 clicks) and reached 1 cm. Try to walk as much as possible, yesterday walked 6 times (smaller distances, more frequently). When I start to walk, at the beginning it is quite painful, but after 1-2 min it becomes a lot better, I guess because of the enhanced circulation, and the diminishment of piled up blood in the lower extremities (these are just guesses).
Sleeping was surprisingly good, I slept around 8 hours (usually I sleep during the distraction between 5-8 hours, but with some breaks in between), but because of the dull, gnawing pain I can only fall asleep after a tramal (50)/lyrica (75) combo. I'm thinking to do 0,75/day, maybe I wouldn't need the painkillers, or stay at this rate, but in this case I'll have to take 2xtramal+lyrica/day (before physio, and before sleep). Guys, if you have experience with painkillers, and how to take, or not, could you write how you decided?
is difficult to do the clicks o turns ? is accurate ?
also imo 1 mm per day on tibias is to much, You have talked about this rate with Dr. Giotikas?
No, the clicks are easy, no substantial sense during that.
He just told me to do 1mm/day until I think 5 cm, over that 0.75 until 6.5, and maybe over it one should do 0.5 or so. I'm however thinking to make the whole process with 0.75, I'll mention it him next time, until than 1mm (or by feeling, if would make my sleep too hard).
hi boss i am also doing limb lengthening myn is 20th day of lengthening and 28th day post surgery.I stopped taking pain killers from almost a week.
same like you I am also walking 5times a day it was really helpfull
Cool, I also will diminish the dose to 0 with time, and take only after a lot of work, or if falling asleep is hard.
Happy to hear from you Zakika. Get well soon!
Good to hear that you are able to walk more and that the sleep isn't too bad. Are you still at 1mm/day? You should see if it's ok with Dr. Giotikas to reduce the rate hopefully that will lessen the pain.
Wishing you a speedy recovery
Quote from: Great321 on August 14, 2018, 03:23:44 PMHappy to hear from you Zakika. Get well soon!
Hey Great321 I remember you saying that you were also going to have surgery with Giotikas in a few months. Is this still the case?
Hi Bonez,
yes, I'm doing 1 mm/day, still doable, but recently was too eager, and I was walking the last 3 days like 7-8 times a day (almost every hour), and one of the pinsites get irritated, inflamed, and finally ulcerated, so after discussing with Dr Giotikas, he suggested to walk only 2-3 times/day, until the wound heals. I'm taking the painkillers, however pain is getting slightly better every day (now the inflamed pinsite is tender, when bending knee), but sleep would be hard without them.
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