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Posted on Sep 15, 2021, 8:45 pm
#11

wjy are u spouting such crap - when u do ll - then talk - otherwise what u on about??

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Posted on Sep 15, 2021, 8:48 pm
#12

i've looked at ur comments - those who have done ll will know what i mean - when u have done ll - then speak - u & ur lol's fk

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Posted on Sep 15, 2021, 8:58 pm
#13

Quote from: Body Builder on September 15, 2021, 06:37:47 PMI told my then gf that I wanted to become taller and LL is something I planed to do and I will do it at all costs as I wasn't happy with my height. She was ok with that, she was just afraid that all this time with a so massive surgery will harm our relationship.
She was right as we broke up 1-2 months before I removed my frames.
And she was the one and only girl that knew about my LL. Nonother gf I had never learned anything about it and it is something that I will keep it confidential to anyone (except my parents and 2 very close friends of them) till I die.


Thanks for that perspective. I don’t mean to pry so please don’t feel like you need to answer but did you have a strong relationship before the surgery? Was the break up directly caused by CLL or were there other issues and this was just the final straw? 

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Posted on Sep 15, 2021, 9:05 pm
#14

Quote from: DonBones on September 15, 2021, 06:23:14 PMHey,

so far so good. I am at 4.2cm at this point, meaning that I should be able to reach my lengthening goal next week if all goes well.

In my case everything went smoothly so far. The clicking was fairly easy from the start and got even better after about 3cm, so that now it's a matter of 5 minutes per day for both legs. The X-Ray was good, showing callus, a perfectly aligned nail and all screws tightly in place. My walk is slightly wide, but both Betz and Peter Woll, my physiotherapist, told me that considering I am at an advanced stage it's still very good.

So on the whole I can't complain, but I will reserve my final verdict until I am actually done How did you tell loved ones?

It's actually no problem that you're from the US. There were two patients from the US while I was there, and even someone from Nigeria. I'd recommend you stay in Germany for a few weeks after the hospital, however, to make sure you can click confidently and there are no problems that need immediate attention from Betz because once you're back in the US seeing Betz will be difficult.

I personally spent time at Elke's guesthouse before the hospital and then the Parkhotel Weiskirchen after the hospital and have to say the Parkhotel is better because they have a gym, a pool, a park where you can walk and a big facility where you can book a massage or a lymphatic drainage. It is also very close to Peter Woll who I strongly recommend you see before you go out into the wild because he is an extremely experienced physiotherapist who has seen hundreds if not thousands of LL patients. He has a sharp eye for what you will have to focus on and advice on how to work on your weaknesses.

In case you are interested in the financial matters, it came to around 60000€ / $70000 for everything so far How did you tell loved ones?

Of course, also read all diaries of the current patients. It will give you a more well rounded view, particularly on topics like clicking, which can vary in terms of difficulty and pain. Perhaps I will also write my own diary or review at some point soon.

Good luck!


Thanks for all that info, I will definitely keep it in mind since I want to have a weight bearing nail and it doesn’t look like Stryde will be available for a while. Early next year would probably be the best time for me to start so I have to take that into consideration.

I don’t mind necessarily mind traveling to Germany although I would prefer to the procedure in the US. I guess my biggest question with it is how are check ups, x rays, prescription medication handled while I’m here. The US healthcare system is a whole mess so I’m not sure how it would work ie if I run out of medication can he prescribe me something if he’s in another country or would I have to go to a general doctor here? That’s the type of thing I gotta consider.

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Posted on Sep 15, 2021, 10:49 pm
#15

the type of thing you gotta consider is whether you will really do the surgery or not...

when/date

where

by whom

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Posted on Sep 15, 2021, 10:51 pm
#16

Quote from: Llentt90 on September 15, 2021, 08:58:13 PMThanks for that perspective. I don’t mean to pry so please don’t feel like you need to answer but did you have a strong relationship before the surgery? Was the break up directly caused by CLL or were there other issues and this was just the final straw?

I was 22 yo before LL so yes it was a strong relationship for that age but not as strong as a relationship that people have at their 30s and more.
LL and so many monthhs almost only at home made me to get angry and jealous much easier than before and that made things hard as we had many fights. Also I believed she was cheated on me at the end (never really found out if I was right or not) and I decided to finish it.
Before LL we had some fights but nothing important. But I believe that if you are in a more mature age and have a strong relationship, possibilities are that LL won't cause any major problems.

Still I think that it is better to keep it confidential from any other woman you'll have in your life if you are not with her when you do LL.
It is better for both to never know about it. Noone ever would truly understand an LLer, moreover a woman.

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Posted on Sep 15, 2021, 11:26 pm
#17

 . the only reason most  man go for LL is to be accepted more by society.
if society wasnt this toxic towards short men people wouldnt be going through all the pain.
my parents are actually complete losers they aint achieve a goddamn thing just made 3 kids and
we all on our own. life sucks when everything is against you  How did you tell loved ones?

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Posted on Sep 16, 2021, 5:58 am
#18

Quote from: Llentt90 on September 15, 2021, 09:05:59 PMThanks for all that info, I will definitely keep it in mind since I want to have a weight bearing nail and it doesn’t look like Stryde will be available for a while. Early next year would probably be the best time for me to start so I have to take that into consideration.

I don’t mind necessarily mind traveling to Germany although I would prefer to the procedure in the US. I guess my biggest question with it is how are check ups, x rays, prescription medication handled while I’m here. The US healthcare system is a whole mess so I’m not sure how it would work ie if I run out of medication can he prescribe me something if he’s in another country or would I have to go to a general doctor here? That’s the type of thing I gotta consider.


Re X-Rays - I had mine done here in London and they dropped Betz the DICOM file via a link. He gave me feedback within two hours. It's fairly easy.

Prescription medication - Betz will supply you with a bag containing all the medicine you need considering your lengthening goal. Should a top up be needed, the way it works in the UK is we ask our GP (who treat common conditions, give out prescriptions or refer people to specialists) to provide a prescription. Having said that, should you need to top up, you will not be able to get Novalgin in the US because it's not available there. In my opinion this is not a big deal because you will also get Tramadol, which is an effective painkiller by itself, and you can take something other than Novalgin in addition to it should you need to.

If you are seriously considering Betz I suggest you reach out soon because they're fully booked until mid 2022 and when I was there he was performing surgeries almost daily.

For any other questions feel free to reach out via a PM as we're kind of heading off topic here How did you tell loved ones?

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Posted on Sep 16, 2021, 6:50 pm
#19

Quote from: DonBones on September 16, 2021, 05:58:53 AMRe X-Rays - I had mine done here in London and they dropped Betz the DICOM file via a link. He gave me feedback within two hours. It's fairly easy.

Prescription medication - Betz will supply you with a bag containing all the medicine you need considering your lengthening goal. Should a top up be needed, the way it works in the UK is we ask our GP (who treat common conditions, give out prescriptions or refer people to specialists) to provide a prescription. Having said that, should you need to top up, you will not be able to get Novalgin in the US because it's not available there. In my opinion this is not a big deal because you will also get Tramadol, which is an effective painkiller by itself, and you can take something other than Novalgin in addition to it should you need to.

If you are seriously considering Betz I suggest you reach out soon because they're fully booked until mid 2022 and when I was there he was performing surgeries almost daily.

For any other questions feel free to reach out via a PM as we're kind of heading off topic here How did you tell loved ones?


Thanks I’ll do that!

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