I had LL in 2007 and I'm still here. Ask me anything!

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Quote from: Medium Drink Of Water on July 22, 2022, 05:36:51 PMThe basics you mentioned don't hurt me.

Thanks medium.  Do those basics hurt most LON tibia patients? Based on stories you’ve heard and patients you’ve spoken to and your research. 

Thanks again

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I haven't heard of anyone having problems like that.

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How long after frame removal were you allowed to start lifting weights again? I’ve gotta take an X-ray after 4 weeks

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I don't remember.

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Quote from: Medium Drink Of Water on May 16, 2022, 11:43:48 PMHere's a rough timeline:

June 2007: frame installation surgery.  Could only use a walker or wheelchair.
November 2007: frame removal surgery, no instant change in mobility
February 2008: crutches
April 2008: slow walking (about half speed maximum) without crutches
November 2008: my current gait, normal walking, able to run with reasonalbe confidence despite internal nail
December 2008: nail removal surgery, full confidence in running

Hey

I’m currently going through lizarov/Lon combine technique for tibia - think the technique is a lot similar to what you had done.  Just interested as to why it took so long to go from frame removal in November 2007 to using crutches in February 2008. Were you still using wheelchair or Walker for four month after frame removal. And was this the recommendation of your doctor or a case of your body just not being ready to use crutches.
Thanks

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I used a wheelchair mostly at first, then moved on to the walker except for long distances, then it was walker only for a while until switching to crutches.  It was all my decision.  I was having difficulty balancing.  It took a while for my legs to get strong enough that I was confident I wouldn't fall.

I switched to crutches an unknown number of weeks sooner, but I clearly remember using the crutches in early February 2008.

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Have you come across patients who’ve had LL with Italian doctor Dr Daniele Pili. His preferred LL method is the Lumiere device on tibia with no rod inserted. This procedure is different to external Lon tibia in one major way as there is no rod inserted so the patient has to keep device on after lengthening until full bone consolidation. But he allows patients to lengthen tibia close to 10 cm. Most of his patients typically lengthen tibias to 9+ cm with no complaints or complications during or after lengthening/recovery.
I’ve been wondering if the insertion of a rod makes a difference in the lengthening limitations. And if so why. Would you know this based on your research or what you have heard.

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I don't think it makes a difference.  Some LON patients have done 10+ cm of lengthening, including many in Beijing with me.

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I think you may have mentioned the other patients with you in the centre who lengthened more than your 7.5 cm. As far as you are aware did the people who did 8+ cm recover as well as you in terms of final recovery and also amount of time it took to to recover compared to time it took you. By recovery I mostly mean walking with a normal gait again
Thanks for always coming back to answer queries here btw

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I don't know.