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Posted on Dec 16, 2014, 9:19 pm
#351
So Doc Parihar wants me to start walking with crutches now. A bit nervous in transitioning to crutches from the Zimmer frame. Would hate the thought of falling again. What's it feel like walking with crutches while wearing frames? Does it feel stable or does it feel as if you're going to topple over like a tree?
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Posted on Dec 16, 2014, 10:07 pm
#352
Quote from: KiloKAHN on December 16, 2014, 09:19:25 PMSo Doc Parihar wants me to start walking with crutches now. A bit nervous in transitioning to crutches from the Zimmer frame. Would hate the thought of falling again. What's it feel like walking with crutches while wearing frames? Does it feel stable or does it feel as if you're going to topple over like a tree?

I had big problems with walking with crutches first. I would take it step by step 5 min in afternoon and 5 minutes in the evening and ask for someone to stand next to you in case you will fall (which you won't but you will be thinking about falling a lot while starting to walk with crutches  No More Mal-Kahn-Tent - External Tibias - Dr Parihar). Then you will get used to it, and remember left crutch, right leg, right crutch, left leg and keep your back straight and try to not look on the ground.

After 3-4 days of "training" you will walk like champ, just concentrate on your movements and everything will be alright.
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Posted on Dec 17, 2014, 2:41 am
#353
Quote from: 123 on December 16, 2014, 10:07:36 PMI had big problems with walking with crutches first. I would take it step by step 5 min in afternoon and 5 minutes in the evening and ask for someone to stand next to you in case you will fall (which you won't but you will be thinking about falling a lot while starting to walk with crutches  No More Mal-Kahn-Tent - External Tibias - Dr Parihar). Then you will get used to it, and remember left crutch, right leg, right crutch, left leg and keep your back straight and try to not look on the ground.

After 3-4 days of "training" you will walk like champ, just concentrate on your movements and everything will be alright.

so left crutch as support, right leg move forward. now right crutch as support, left leg move forward???
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Posted on Jan 9, 2015, 7:34 pm
#354
Update: 1/9/2014
Just picked up my dicom images from the medical records office, so I posted the most recent set of x-rays. I had them taken on 12/30/2014 before I saw my orthopedist's assistant (usual ortho was at a seminar or something). He decided to check all of my pin sites for infection and took off all the dressings. No infections, but the skin had stretched more underneath one of the pins, leaving a lot more ooze when I clean it. Two people who worked in the hospital changed my dressings for me. Turns out they like to cover the gauze in antibacterial soap and wrap it around each individual pin as opposed to using boiled and cooled water and scrubbing each pin and wire from all directions as I've been doing. The ortho assistant told me to come back in six weeks and he and my usual ortho will have a plan ready for when they think I should get my frames removed. I think my insurance is going to cover removal, so I don't have to fly all the way back to Mumbai for that fortunately. I'll still wait for the okay to have my frames removed from Dr Parihar before I let my local ortho do it though.

The frames have become much more annoying recently. As the muscles continue to atrophy over time the pain from walking continues to increase, particularly below my knees. It's also become more difficult to go to sleep, reminiscent of my lengthening days. I've been drinking hot tea or whiskey to help knock me out. I guess my body is signaling that it's sick of wearing these things. Right now the worst part is that because my mom is out of town for a week I have to stay at a friend's house, and it's not at all handicap friendly. The bathroom is far from the living room where I have to sleep and there are two sets of large steps that I have to go down in between. I'm exhausted by the time I go to the restroom and back.

Consolidation progress just over 6 months after my initial surgery (lengthened 6.2 cm).
No More Mal-Kahn-Tent - External Tibias - Dr Parihar No More Mal-Kahn-Tent - External Tibias - Dr Parihar No More Mal-Kahn-Tent - External Tibias - Dr Parihar No More Mal-Kahn-Tent - External Tibias - Dr Parihar
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Posted on Jan 9, 2015, 7:44 pm
#355
You should have 2-3 more months left, by the way did the doctor tell you that u're doing well in terms of consolidation?
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Posted on Jan 9, 2015, 8:35 pm
#356
Looks like he's doing quite well in terms of consolidation, but I think 2-3 months is a little too optimistic.  Alignment looks good though.
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Posted on Jan 9, 2015, 10:14 pm
#357
Quote from: KiloKAHN on November 27, 2014, 08:18:25 PMOut of the three people I told about it the only one who said anything to anyone else was my mom. She swore up and down that she wouldn't say anything to anyone and then last night in the car her friend's daughter says "That sucks you have to wear those for so long, I wish I was taller too". When she and my sister had gone into the store for a bit I pressed my mom for information and then she admitted how many people she told about it. I didn't realize that she was such a huge gossip. It's amazing that I can trust a friend from school with this information more than I could trust my own mother. Anyway, I'm not too upset about it because I was prepared for the possibility that it might be found out by some people, but I'd rather have had them figure it out on their own instead of finding out my mom betrayed my trust like that.

Hotel Maharana was cool. I never got hot because of the big ceiling fan and powerful air conditioner, and the HDTV on the wall was pretty big. Not all the staff spoke English but there were three managers there and one or two people who brought food in that knew English pretty well. But they were all helpful with getting me to Dr Parihar's clinic and helping me back in my room. The only things that were irritating were the step leading into the bathroom that made getting in there by walking difficult (I found it easier just to scoot into it on the floor) and the elevator was a little small so it took a lot of experimentation to fit inside it on the wheelchair. Vegetarian menu had some pretty good items. The tawa mushroom and naan was great. If you get tired of veg food though they have a non-veg section on the menu and you can get those meals within minutes because they order them from a hotel right next door. If I went back for another round of lengthening I might look for another hotel just so I could experience a new setting for the months required, but I wouldn't mind staying there again based on my experience the first time around.

I don't think I would have been able to keep it a secret from my parents anyway because of how I ended up having to do the bank transfer into Dr Parihar's account. I don't think I could trust anyone else to go on a joint account with me and transfer a large sum of money without taking any of it. In hindsight I could have just told my stepfather and I would have been better off.

That's what I did and only the guys I told listened. It seems like women are more inclined to spill out a secret because they get together and talk for hours about all sorts of things.

Yep. Though it's primarily people I don't even see or talk to that know about it. At least all the people I hang out with and see often are oblivious to my current situation.

 maybe it is difficult to tell lies .... and some people just have bigger mouths. dont worry about it. she means no harm....
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Posted on Jan 10, 2015, 8:08 pm
#358
Quote from: Hallijah on January 09, 2015, 07:44:40 PMYou should have 2-3 more months left, by the way did the doctor tell you that u're doing well in terms of consolidation?

He said my bone healing shows good progress but the x-rays point out changes at the knee which indicate that I haven't been doing enough exercises. He suggested I get a physiotherapist through my local orthopedist for helping with ROM of the knee, muscle strengthening, ankle stretching and weight bearing ambulation training.
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Posted on Jan 10, 2015, 9:42 pm
#359
kilom,

regarding infections... do you shower every day?? would keep the pin sites clean...

dr rozbruch is the one that let me know its ok to shower if you have frames on
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Posted on Jan 10, 2015, 10:01 pm
#360
I get in the shower every three days. I sit in the bathtub and turn the shower on, getting the frames wet and everything. For the first two days I just get a bowl and a washcloth and scrub myself so I don't get the dressings wet. I haven't been getting infections so far. I've had a couple minor infections on a pinsite or two before, but I just take oral antibiotics for a few days and continue to clean the infected pin, and the infection goes away pretty fast.
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