Gotcha yeah a place to stay with others is definitely a plus, but yes I actually met with someone who did it solo here, saw him a couple times and helped him on his day of discharge to get into his house safely, it's doable, but yes it would be difficult, mind you this was with Stryde. so he could at least stand up and with the walker go to the kitchen and cook for himself.
I’m going to blaspheme. I think at this point there is little reason to go with Paley. There are equally skilled surgeons who charge less, and care more. This is an intense surgery and can be pretty scary, and it’s important for me to feel like my doctor is both skilled and caring, I think Paley only has skill. He has a past of sketchy and very egotistical practices. This includes doing multiple peoples surgery at once, deleting negative reviews, and denying the possibility that a patient had an infection under his care. Dr. Assayag seems to not only be one of the most skilled surgeons but he genuinely seems to care about the LL community. I’d go with him even if he cost as much as Paley.
I had femurs done by Paley in 2014 and now Assayag will be removing the nails and fixing my tibs.
When I came for my consultation with Dr. A, my insurance policy only covered me in California and imaging would have cost me hundreds of dollars at his hospital. Instead of insisting I pay out of pocket at his hospital, Assayag personally called an Imaging tech 3,000 miles away and instructed him on how to perform the unique type of CT scan he needed to diagnose my condition, so I could get the scan covered by my insurance. Although Paley may be the most experienced in the field, I am choosing Assayag this time because I trust him to advocate for me through this process.
Quote from: Sambollio on October 14, 2021, 11:05:19 PMI’m going to blaspheme. I think at this point there is little reason to go with Paley. There are equally skilled surgeons who charge less, and care more. This is an intense surgery and can be pretty scary, and it’s important for me to feel like my doctor is both skilled and caring, I think Paley only has skill. He has a past of sketchy and very egotistical practices. This includes doing multiple peoples surgery at once, deleting negative reviews, and denying the possibility that a patient had an infection under his care. Dr. Assayag seems to not only be one of the most skilled surgeons but he genuinely seems to care about the LL community. I’d go with him even if he cost as much as Paley.
Quote from: 6CMFemurs on October 15, 2021, 08:20:17 PMI had femurs done by Paley in 2014 and now Assayag will be removing the nails and fixing my tibs.
When I came for my consultation with Dr. A, my insurance policy only covered me in California and imaging would have cost me hundreds of dollars at his hospital. Instead of insisting I pay out of pocket at his hospital, Assayag personally called an Imaging tech 3,000 miles away and instructed him on how to perform the unique type of CT scan he needed to diagnose my condition, so I could get the scan covered by my insurance. Although Paley may be the most experienced in the field, I am choosing Assayag this time because I trust him to advocate for me through this process.
Can't agree with all of this more. At Paley institute you are literally dealing with a faceless entity (their team). Not to mention you are likely not even going to see him for the duration of your time there. While his team may be good, this arrangement doesn't feel very fair to the patient. Dr. Paley may be the best in this field, but what good is a doctor that you will never interact with? I'm paying 100k to have my legs broken and stretched, I damn well deserve full access to my doctor until I can walk out of there. Go for Dr. Assayag!
at the risk of not adding anything new here, want to quickly jump in to also give my vote of confidence in Dr Assayag (how can i not) - he did my femurs in April 2021 and managed the lengthening process so well - was 100% accessible, prompt in responding to my questions/concerns, and really careful to make sure we prevented any complications. he also takes the time to proactively reach out and make sure you're doing okay. i don't have any thoughts on Paley, I'm sure he's also great, but I really wouldn't worry about the process at all if you're going with Dr A.
Quote from: ab608 on October 16, 2021, 05:35:42 PMat the risk of not adding anything new here, want to quickly jump in to also give my vote of confidence in Dr Assayag (how can i not) - he did my femurs in April 2021 and managed the lengthening process so well - was 100% accessible, prompt in responding to my questions/concerns, and really careful to make sure we prevented any complications. he also takes the time to proactively reach out and make sure you're doing okay. i don't have any thoughts on Paley, I'm sure he's also great, but I really wouldn't worry about the process at all if you're going with Dr A.
I was going to jump in here and say of course Paley is the GOAT, but from what I've heard Dr. Robbins usually follows up and both of them are busy. so Dr. A might be able to give you more 1 on 1 time if any complications occur
Does Dr. Paley perform every lengthening surgeries ? Maybe Dr. Robbins performs some surgeries on his own.
Quote from: Atomic on October 19, 2021, 05:00:43 PMDoes Dr. Paley perform every lengthening surgeries ? Maybe Dr. Robbins performs some surgeries on his own.
From what I heard last from a patient I know, Paley does one leg on every patient while Robbins does the other. The person told me this was somewhat frustrated since he expected to be operated on by they GOAT (Paley), but it was really half and half.
I personally would choose Paley because of his history and how many expert surgeons he has taught, but Assayag would probably be great choice too. He works with Dr Herzenberg and if you dig deep into the literature he is very much Paley level, arguably even more. So I would trust Assayag.
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