I understand that for Dr. Rozberch, medical insurance covers the hospital stay. But do you happen to know exactly what is covered by insurance and what has to be paid out of pocket.
1) what exactly is covered by medical insurance: estimated $ value
2) what has to be paid out of pocket: estimated $ value
3) if this is true why is there not a lot of hype about this information?
Detailed answers would be very much appreciated. I’ve read a few diaries on Dr. Rozberch but the LL patients seem to skim over this detail. Idk why they would but for me this is like make it or break it when it comes to deciding when to do LL (in one year or four) and with who I’ll do LL with (Paley or Rozberch)
On a side note, I wonder when the first precice STRYDE diary will be made. My main question is to find out whether or not you can really walk during lengthening and if so, to what extent. It would be great way to avoid atrophy and maintain mobility before consolidation. Hope someone makes one in the near future.
PRECICE UNYTE Cobalt Chrome (PRECICE v3.0)
Quote from: Dmtseeker on May 22, 2018, 10:58:37 PMOn a side note, I wonder when the first precice STRYDE diary will be made. My main question is to find out whether or not you can really walk during lengthening and if so, to what extent. It would be great way to avoid atrophy and maintain mobility before consolidation. Hope someone makes one in the near future.
I don't know about the "side" note - the other concerns you had are better suited for a different thread.
Now onto this thread - today I met the first STRYDE patient. He's aware of the forums and I suggested that posting his diary will gain him a minor celebrity status. Until then, here are a few non-identifiable things I've learned (in case he wants to be super private):
- Had femurs surgery last week on Thu and looks in great shape and positive
- 5'8" going for 5'11". The 8cm is the nail's max but Paley said the recovery will be much better than for the old nail patients who aimed for 8cm.
- He does take Xarelto and was prescribed a 1-month supply
- Paley said he should be able to walk without assistance in three weeks, and that he should come to PT using a walker instead of the wheelchair as soon as possible
- He could stand without a walker for 30 seconds.
- The post-op pain manifests mostly at night.
- He's been talking with Paley since Jan, and Paley did not explicitly mention STRYDE (!). The patient saw an option in the surgical cost estimate for "STRYDE, $5k extra" and asked about that.
The last bullet is a bit odd to me because I met another patient who had quadrilateral surgeries (both tibias and femurs on the same day, because she had old rods in the femurs, so no extra risk of fat embolism from the femur marrow) and she had no idea about the STRYDE.
Anyway, this is what I have for now. I hope he does post a diary - even though it will render my blog largely obsolete 
Quote from: OverrideYourGenetics on May 23, 2018, 02:49:42 AMand that he should come to PT using a walker instead of the wheelchair as soon as possible
I thought this was generally advised? PTs seemed to think it made for a better(quicker?) recovery.
Interesting that Stryde wasn't explicitly offered, it sure does pay to read the fine print sometimes.
Thanks for sharing!
Quote from: FormerKidd on May 23, 2018, 02:53:35 AMI thought this was generally advised? PTs seemed to think it made for a better(quicker?) recovery.
Yeah, it helps to walk whenever possible, but in some cases, it's just not practical to get to PT in any way but in a wheelchair. My room at Homewood Suites is the farthest possible from the entrance, getting to the first floor involves using elevator buttons, and using a walker to get out would be a feat I'm not sure I would try even pre-op, let alone now when my endurance is shot after 2 months without much use of my legs.
Interesting and sad fact: it used to be quite a bit easier to wheel myself the ~500ft out of the room to the lobby a month ago than it is now.
Quote from: Stadiometer, Esq on May 19, 2018, 12:18:42 PM$50,000-$100,000 is an unreachable amount of money for most people in a single payment. Dr. Debiparshad has stated he is trying to work with NuVasive to arrange financing options for patients, but that is currently not in place with no specific target date.
The following companies offer financing with competitive rates for up to $100,000 in the form of a straightforward personal loan. These products can potentially offer patients financial access to the top doctors around the world listed in the previous posts in this thread who are or will be using the full weight bearing STRYDE nail. Everyone should be able to have this surgery without taking extremely dangerous risks to their legs and life simply because they don't have the money.
Dr. Debiparshad is not the doctor you want to have doing these procedures. On both a clinical level or a cost friendly level for patients. Don’t make yourself an advocate for this surgeon. Or, if you think you are, please tell this group exactly how many cases Dr. Debiparshad has done in Las Vegas since he’s been there? Either normal LL or cosmetic? I know the answer....do you? It’s zero. Zero cases in three years there. There are other surgeons that have used Precice there in those three years, he can’t even get patients for the regular LL cases.
Anyone know if the UK does something similar for loans like this? Would be nice to take out a £40k loan for this to help me pay. Not sure if they care what you use it for though. I feel like a thread where the best lenders are for around the world for people doing CLL would be cool (if that's even possible)
Quote from: OverrideYourGenetics on May 23, 2018, 02:49:42 AM Anyway, this is what I have for now. I hope he does post a diary - even though it will render my blog largely obsolete
You are a great contributor and not even precise 4 (hover mode) will render your blog meaningless 
Quote from: Stadiometer, Esq on May 18, 2018, 05:44:35 PM
Dr. Donghoon Lee: * Includes 90 Days of Food, Housing, Medication, Physical Therapy
Femur: $72,900
Would the 90days be enough for Stryde ? Or do you have to stay longer there afterwards? And how can you actually contact Dr. Lee? On his website he doesn't seem to respond frequently..
Quote from: Great321 on May 25, 2018, 09:52:54 PMWould the 90days be enough for Stryde ? Or do you have to stay longer there afterwards? And how can you actually contact Dr. Lee? On his website he doesn't seem to respond frequently..
You don’t even need hospitalization for months.
Doctor told me that a week after the surgery I can go home and come back and forth from japan every 2weeks for consultations.
now he is probably very busy because his new clinic is opening in June.
I only have the email address of a Japanese translator. I heard there was an English translator.
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