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Posted on Jan 31, 2023, 9:46 pm
#1
I'm excited to share that I'll be undergoing CLL with Dr. Rozbruch in NYC very soon (next two weeks).  I will do my best to document my experience for others who are contemplating the surgery.

Vital stats: male, in excellent health, over 35. Non smoker/drinker/no drugs. Measured at 5'10" (178cm) or so in Dr. Rozbruch's office - though my Dr. and home measurements have me somewhere around 5'10.5' (179cm or thereabouts). Weigh 150 lbs. and plan to get to 145 lbs. by surgery time.  My canals are wide enough for the 12.5" nails which will allow some limited mobility with crutches during lengthening.

I pre-qualified through psychological assessments and consult with Dr. Rozbruch. Consulted both Dr. Rozbruch and Dr. Paley, and while both are obviously excellent choices, ultimately felt more comfortable with Dr. Rozbruch's approach and the reputation of HSS as being a world class hospital.

Given the (slow but certain) disappearing stigma around this procedure, its increase, and clinical acceptance of height dysmorphia, I am hoping this will be a judgment free place to post and help others through my experience.  I've been open about the procedure with my immediate family, close friends and significant other, who have all been encouraging.  I won't engage in any back/forth around why I'm having the procedure done with my height being what it is. I've suffered from height dysmorphia for decades and Dr. Paley has an excellent write-up on his experience with a 5'11" patient.  This is something I'm doing for ME, not for relationships, career, otherwise.

Will respond to most questions and do my best to keep a thorough journal.  Will not post pics - x-rays all look the same.

Thanks, and wish me luck!!
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Posted on Jan 31, 2023, 10:24 pm
#2
Can I ask you why are you doing this? Not shaming but just curious as to why someone of an upper average height would pay so much and ensure ao much.

I wish you a safe and successful journey
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Posted on Jan 31, 2023, 10:27 pm
#3
Quote from: informationispower on January 31, 2023, 10:24:50 PMCan I ask you why are you doing this? Not shaming but just curious as to why someone of an upper average height would pay so much and ensure ao much.

I wish you a safe and successful journey

I've had severe height dysmorphia since I was 15 years old.  I weighted the pros and cons and decided it was worth it for me to no longer bear this mental burden.  Really, that's it. 

Page 6 of this document by Dr. Paley has a very good explanation with someone near my starting height.

https://paleyinstitute.org/wp-content/uploads/Cosmetic-Stature-Lengthening-FAQs.pdf
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Posted on Jan 31, 2023, 10:46 pm
#4
What made you decide to go with the tibias over femurs?
Best of luck, you got this
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Posted on Jan 31, 2023, 10:52 pm
#5
Quote from: stretched on January 31, 2023, 10:46:25 PMWhat made you decide to go with the tibias over femurs?
Best of luck, you got this

Both Dr. Paley and Dr. Rozbruch recommended femurs.  My sincere apologies and thank you for catching this.  I also edited the subject.

Both also had the same reasons.  My tibias are proportionate, and my femurs are objectively and visibly short. I have a long torso and above average wingspan.  Lengthening the femurs will actually bring me into proportion ratio-wise, and is safer, so it all made sense.
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Posted on Feb 1, 2023, 12:15 am
#6
Quote from: uponly on January 31, 2023, 09:46:30 PMI'm excited to share that I'll be undergoing CLL with Dr. Rozbruch in NYC very soon (next two weeks).  I will do my best to document my experience for others who are contemplating the surgery.

Vital stats: male, in excellent health, over 35. Non smoker/drinker/no drugs. Measured at 5'10" (178cm) or so in Dr. Rozbruch's office - though my Dr. and home measurements have me somewhere around 5'10.5' (179cm or thereabouts). Weigh 150 lbs. and plan to get to 145 lbs. by surgery time.  My canals are wide enough for the 12.5" nails which will allow some limited mobility with crutches during lengthening.

I pre-qualified through psychological assessments and consult with Dr. Rozbruch. Consulted both Dr. Rozbruch and Dr. Paley, and while both are obviously excellent choices, ultimately felt more comfortable with Dr. Rozbruch's approach and the reputation of HSS as being a world class hospital.

Given the (slow but certain) disappearing stigma around this procedure, its increase, and clinical acceptance of height dysmorphia, I am hoping this will be a judgment free place to post and help others through my experience.  I've been open about the procedure with my immediate family, close friends and significant other, who have all been encouraging.  I won't engage in any back/forth around why I'm having the procedure done with my height being what it is. I've suffered from height dysmorphia for decades and Dr. Paley has an excellent write-up on his experience with a 5'11" patient.  This is something I'm doing for ME, not for relationships, career, otherwise.

Will respond to most questions and do my best to keep a thorough journal.  Will not post pics - x-rays all look the same.

Thanks, and wish me luck!!

What do you mean by "I pre-qualified through psychological assessments"? What is required to qualify? I am actually confused on what Dr. Rozbruch's stance on LL actually is.  He seems to lengthen patients, including you OP, that he claims he doesn't believe in lengthening.

https://www.businessinsider.com/limb-lengthening-surgery-not-make-you-taller-cosmetic-height-2022-12

 I am all for you or anyone with height disphorea getting LL. I think what Paley has in his brochure is the correct thinking. Good luck on your LL journey!
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Posted on Feb 1, 2023, 12:36 am
#7
Quote from: EndGame on February 01, 2023, 12:15:18 AMWhat do you mean by "I pre-qualified through psychological assessments"? What is required to qualify?

I had to undertake a psychological assessment.  It was very thorough and if I hadn't been approved by Dr. Westrich I would not have done the surgery with Dr. Rozbruch.

I'm not certain that Dr. Rozbruch doesn't believe in lengthening taller patients, or if he did, that thinking may have changed. I do know he requires a psychological eval, Dr. Paley no longer so. As I said, ultimately I think Dr. Rozbruch was the right choice for me - two excellent surgeons but felt more comfortable with Dr. Rozbruch and HSS.

By the way, really appreciate your well wishes, as well as everyone else's!!
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Posted on Feb 1, 2023, 1:00 am
#8
Quote from: uponly on January 31, 2023, 09:46:30 PMI'm excited to share that I'll be undergoing CLL with Dr. Rozbruch in NYC very soon (next two weeks).  I will do my best to document my experience for others who are contemplating the surgery.

Vital stats: male, in excellent health, over 35. Non smoker/drinker/no drugs. Measured at 5'10" (178cm) or so in Dr. Rozbruch's office - though my Dr. and home measurements have me somewhere around 5'10.5' (179cm or thereabouts). Weigh 150 lbs. and plan to get to 145 lbs. by surgery time.  My canals are wide enough for the 12.5" nails which will allow some limited mobility with crutches during lengthening.

I pre-qualified through psychological assessments and consult with Dr. Rozbruch. Consulted both Dr. Rozbruch and Dr. Paley, and while both are obviously excellent choices, ultimately felt more comfortable with Dr. Rozbruch's approach and the reputation of HSS as being a world class hospital.

Given the (slow but certain) disappearing stigma around this procedure, its increase, and clinical acceptance of height dysmorphia, I am hoping this will be a judgment free place to post and help others through my experience.  I've been open about the procedure with my immediate family, close friends and significant other, who have all been encouraging.  I won't engage in any back/forth around why I'm having the procedure done with my height being what it is. I've suffered from height dysmorphia for decades and Dr. Paley has an excellent write-up on his experience with a 5'11" patient.  This is something I'm doing for ME, not for relationships, career, otherwise.

Will respond to most questions and do my best to keep a thorough journal.  Will not post pics - x-rays all look the same.

Thanks, and wish me luck!!

Congrats!!!!

Good starting height, good starting low weight, good bone diameter, good doctor, good device, good health, I think you're going to do great! 
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Posted on Feb 2, 2023, 5:55 pm
#9
Pre-op procedures:

This had to be the absolute most thorough hospital/Dr.'s visit I have ever had and it only increased my confidence that I'm doing this procedure with the right doctor at the right hospital.

You arrive on the 3rd floor, you check in and you're immediately sent to 6th to obtain Dr.'s clearance. Note: this is in HSS, but a separate part of the hospital from Dr. Rozbruch's practice. You first meet with a RN who will ask you every question imaginable about your health history, medicine you take, past surgeries, family health history and so on. Blood pressure, heart rate, oxygen, height (I measured 179 cm!!), weight. They even measured my neck circumference. They go over protocols for before/after surgery: what you can eat/drink, what to avoid, what supplements to take/stop, etc., even shower procedures. You get a special scrubber that you need to scrub your femurs (in my case) for 2 minutes each night before surgery. They print all this out for you.

Then a Dr. comes in, and asks even more detailed questions, and upon satisfactory answers she orders tests and sends you to get an EKG, blood work (which will inform what supplements/meds you will need), and COVID test. Note: COVID protocols are in place at HSS, everyone is wearing masks and everything is sanitized.

After the COVID test you're sent to Dr. Rozbruch's office across the street (still part of HSS), where you go in for the specialized x-rays. They take them from different angles. You then see staff who take before pictures from all angles and video of walking, gait, etc. Then a PA comes in to answer any other questions you have about procedure, logistics, and to ensure you have support. They tell you what you can expect day of surgery. You get brochures and paperwork on recovery, facilities, etc.

Everything is done on time and the process works like a finely tuned machine. Everyone is incredibly nice and supportive. Pro tip: doing the paperwork through the portal saves time, do that before you go to the pre-op appointment.

Obviously do not lie to doctors or hospital staff, it would not be in your best interest going into any type of surgery. I answered every question with full honesty. The pre-op visit actually eliminated a lot of anxiety and I'm going into the surgery with a great degree of confidence.
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Posted on Feb 7, 2023, 9:41 am
#10
Day Zero, through operation

I'm officially a cyborg. The operation went off without a hitch.

Pain level: 3/10 - where 0 is no pain and 10 is the worst pain of your life.

There's a lot of really good information that's missing about what happens up to and during the procedure, especially with Dr. Rozbruch and HSS, so I will do my best to add.

3 days before the surgery, you get a call with your surgery time. You're supposed to arrive 2 hours early, check in, get a wrist band and are sent to the 4th floor. If you have someone accompanying you, they MUST either have been vaccinated or have a PCR test (not antigen) no later than 5 days prior. This hospital is incredibly serious about COVID. Everyone is masked, everyone sanitizes frequently, which is awesome. The hospital and facilities appear to be very clean.

I went to 4 where I changed into a gown and got a bag for my personal items. Valuables are checked in with security. You're advised to not bring too much that is checked in. You get an IV drip going, and lots of people come and ask you both medical as well as safety/security related questions. You get your legs shaved with surgical clippers, which I'm going to buy based on their sheer effectiveness, assuming I can find them. Then you get scrubbed/sanitized again. Everything is super thorough. No one wants to make a mistake. You even get a visit from a "spiritual helper" of some sort who is just there to pep you up, and you have the option of having a chaplain (or other faith based leader) if needed prior to and post surgery.

You're eventually seen by an anesthesiologist, then Dr. Rozbruch, who signs the areas operated on, your bracelet and talks to you about what's going to happen, when you can expect to be released, and answers questions. Dr. Rozbruch informed me that he would try the 12.5mm diameter nails, but had the 10.7 just in case the former did not fit. Thankfully they did!!

My surgery was a bit delayed because the OR was very busy. This is apparently normal, and I took it as a good sign that they weren't rushing people through like an assembly line. When I got wheeled into the OR, there was music playing and a ton of staff just for me. I saw two Nuvasive boxes, was transferred to the operating bed, and chatted with the nurses and staff a bit. Then the anesthesiologist came in, went over what we discussed, and began to administer the epidural (general anesthesia is a last resort option) and nerve block. You essentially feel nothing from the waist down and it's safer, and you sleep the entire time. I wondered if I would. I did, because shortly after that I remember nothing and woke up several hours later in the recovery room. I never even saw Dr. Rozbruch enter the OR lol.
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