Precise 2.2 CLL (femurs) with Dr. Rozbruch - February 2023

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Thanks for restarting. Appreciate your journal. Congrats on the great bone growth!

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Well said. Please update regularly.
I agree with u. SAFE is first priority and very important. If I cannot afford with top surgeon, I would rather to give up. Dr R is one of the best of course. If I stay in local after the surgery, can I do PT in HSS? How about the PT in HSS?

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Quote from: Yau on April 20, 2023, 12:44:44 AMWell said. Please update regularly.
I agree with u. SAFE is first priority and very important. If I cannot afford with top surgeon, I would rather to give up. Dr R is one of the best of course. If I stay in local after the surgery, can I do PT in HSS? How about the PT in HSS?

I will not update the diary after this, but wanted to answer the question. I don't know how the PT is at HSS, but I assume very good. HSS is arguably the top orthopedic hospital in the world. I can tell you the level of care you get post-surgery is excellent.

All top doctors will have great PT programs, so you really cannot go wrong with any of the choices. In the US, I think the PT department in Baltimore (with Dr. Assayag) is the best known and renowned. You also have the option to do PT with Moshe Roth, who focuses exclusively on limb lengthening patients.

Whoever you choose to go with, I heavily recommend PT every day. Given that you can afford these doctors and this level of care, the investment in daily physical therapy will be one of the best decisions you can make. My PT is amazing and he tracks my progress, knows how to get me out of pain, where to push, where to slow down, etc. Having daily PT is hands down the best part of my recovery.

Best of luck!!

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Would u PM me your PT? I also think that if I do LL surgery, I don’t care to invest in PT.

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Hey man,

Great job with the bone growth!

Do you mind sharing what supplements you're taking (if any)? Also, are you still lengthening at 1mm per day?

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Quote from: thankscience on April 20, 2023, 02:44:08 PMHey man,

Great job with the bone growth!

Do you mind sharing what supplements you're taking (if any)? Also, are you still lengthening at 1mm per day?

OK fine, last entry , this is an important topic.

Starting backwards from lengthening: I lengthen at .8 mm/day. That's Dr. Rozbruch's standard, he does not start at 1 mm. I am currently alternating between .8 and .6 (one day each), due to saphenous nerve pain. I will go back to .8 mm/day every day once the nerve pain dissipates. Dr. Rozbruch likes to slow his patients down to .6 mm/day right about this time, but I don't think he'll do that with me given my bone growth and flexibility/recovery. He's indicated that he's going to keep me at .8 mm/day until the end, unless there's an absolute need to change that.

Regarding supplements/nutrition: it's important to note what I did before the surgery. I came in with excellent blood work results with not a single deviation, and great Vitamin D levels. I did that by having a mostly healthy diet, no drinking, no smoking, exercise, and the following daily supplements:

Vitamin C (500 mg), Vitamin D (5000 iu), Vitamin B complex, Magnesium Citrate (500 mg), Zinc Picolinate (50 mg)

After the surgery, I added:

Calcium Citrate (650 mg, twice a day), Full Spectrum Vitamin K2 (600 mg, twice daily)

And doubled my intake of Vitamins C, D and Magnesium.

I ran my vitamin intake by Dr. Rozbruch and the only thing he added was the Calcium Citrate. I did a vitamin panel about 8 months ago to find out exactly what my body needed. My primary care doc told me to double the C, D and Magnesium during distraction and consolidation, and strongly advocated adding the K2. Apparently that takes calcium and deposits it right where it needs to go, instead of clogging up your arteries.

I also eat a LOT of protein. I weigh 150 lbs, but I consume at least 200 grams of protein a day. It's not that hard, frankly, I'm consistently hungry from growing. I eat very healthy, protein-rich meals, and supplement with vegetable heavy smoothies with whey protein, low sugar protein bars, and LOTS of collagen. I minimize my sugar intake as much as possible.

It's all working great, or has, up to this point. I get new x-rays next week so I hope the crazy bone growth continues.

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Quote from: uponly on April 21, 2023, 11:13:15 PMOK fine, last entry , this is an important topic.

Starting backwards from lengthening: I lengthen at .8 mm/day. That's Dr. Rozbruch's standard, he does not start at 1 mm. I am currently alternating between .8 and .6 (one day each), due to saphenous nerve pain. I will go back to .8 mm/day every day once the nerve pain dissipates. Dr. Rozbruch likes to slow his patients down to .6 mm/day right about this time, but I don't think he'll do that with me given my bone growth and flexibility/recovery. He's indicated that he's going to keep me at .8 mm/day until the end, unless there's an absolute need to change that.

Regarding supplements/nutrition: it's important to note what I did before the surgery. I came in with excellent blood work results with not a single deviation, and great Vitamin D levels. I did that by having a mostly healthy diet, no drinking, no smoking, exercise, and the following daily supplements:

Vitamin C (500 mg), Vitamin D (5000 iu), Vitamin B complex, Magnesium Citrate (500 mg), Zinc Picolinate (50 mg)

After the surgery, I added:

Calcium Citrate (650 mg, twice a day), Full Spectrum Vitamin K2 (600 mg, twice daily)

And doubled my intake of Vitamins C, D and Magnesium.

I ran my vitamin intake by Dr. Rozbruch and the only thing he added was the Calcium Citrate. I did a vitamin panel about 8 months ago to find out exactly what my body needed. My primary care doc told me to double the C, D and Magnesium during distraction and consolidation, and strongly advocated adding the K2. Apparently that takes calcium and deposits it right where it needs to go, instead of clogging up your arteries.

I also eat a LOT of protein. I weigh 150 lbs, but I consume at least 200 grams of protein a day. It's not that hard, frankly, I'm consistently hungry from growing. I eat very healthy, protein-rich meals, and supplement with vegetable heavy smoothies with whey protein, low sugar protein bars, and LOTS of collagen. I minimize my sugar intake as much as possible.

It's all working great, or has, up to this point. I get new x-rays next week so I hope the crazy bone growth continues.


Your answers are useful. Thank u so much.
Dr. Rozbruch is one of the best LL surgeon. After reading your posts, I am considering to have surgery with Dr. Rozbruch. But I want to stay local nearby HSS and have PT sessions in HSS, it seems that the living cost in New York is very expensive and PT sessions in HSS is very expensive too. Right?

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Interesting. I don't think I'd heard of Vitamin K2 before. Quick Google search suggests it's great for bones. Just ordered some. Hope you change your mind and continue posting in your journal. Good luck with your x-rays.

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Quote from: Yau on April 22, 2023, 02:42:04 AMDr. Rozbruch is one of the best LL surgeon. After reading your posts, I am considering to have surgery with Dr. Rozbruch. But I want to stay local nearby HSS and have PT sessions in HSS, it seems that the living cost in New York is very expensive and PT sessions in HSS is very expensive too. Right?

Are you living in the US? If so, you're better off not staying in NY. It'll cost you a fortune and honestly it just doesn't worth it. Most of his patients aren't local so he's used to it and perfectly fine with it (with the right patients).

You can do PT at HSS but both Rozbruch & his team don't seem to particularly push it. I'm sure there are great PTs there, but I wouldn't emphasize it. It's very different than someone like Paley where he has a dedicated center and your PT will have tons of experience with LL.

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Quote from: hippo60 on April 23, 2023, 12:32:18 AMAre you living in the US? If so, you're better off not staying in NY. It'll cost you a fortune and honestly it just doesn't worth it. Most of his patients aren't local so he's used to it and perfectly fine with it (with the right patients).

You can do PT at HSS but both Rozbruch & his team don't seem to particularly push it. I'm sure there are great PTs there, but I wouldn't emphasize it. It's very different than someone like Paley where he has a dedicated center and your PT will have tons of experience with LL.

I am living in Canada. Therefore, I will live nearby the hospital/institute after surgery. Maybe 6 months after consolidation phase. I have 6 months travel visa to stay local. Yes, Dr Paley has a dedicated center and LL PT, and living cost in WPB is so far OK.