Quadrilateral Lengthening with Dr. Paley

I get a bit pain relief but no high yet.  maybe as the pain settles i'll start feeling it.

Quote from: Iamready on November 29, 2015, 02:59:47 AMI get a bit pain relief but no high yet.  maybe as the pain settles i'll start feeling it.

It's not a high like weed unless you take a high dosage. It's more like a high where you're just really happy and everything just feel alright. You might not notice it when you're high because you probably think it's normal. I only noticed it after I went cold turkey on Oxy - don't ever do that btw. The difference between when I was on Oxy and not was like night and day. When I'm off Oxy, it feels like everyone's against me and I have a very low tolerance for people's behaviors around me. When I'm on it, I feel like I'm in a happy Disney movie where everything's all wonderful and nice. Also to get the high, I took 2 Oxycodones at a time, plus one oxycontin, and plus 2 extra strength tylenols. Oxycontin is 10 mg, so combined with 2 Oxycodones, that's 40 mg total. So for you to get high on Oxy without Oxycontin, you'd probably have to take 3-4 5 mg Oxycodones at once. That might be why they don't give you so much Oxy. The stuff can be highly addictive because the high makes you feel so good. But if you have a high tolerance for it, then it probably will do nothing for you.

I feel like I've failed.  Today I went in for a check up after thanksgiving weekend and told Paley about my pain and he told me I was too tight and needed to slow down to .5mm a day until the next check up in 2 weeks.  I also feel like the Paley Center has failed me by not communicating the proper exercises I should have been focusing on.  I've been busting my ass and going through lots of pain and I deserve better communication between the physical therapy team and the doctors.  There is a huge disconnect and it's absolutely frustrating to be in this position.

Relax dude you got this. You haven't failed; you're still lengthening after all. Take Paley's advice at heart. He knows what he's doing and while it sucks that you are now going slower it's probably the best option. These moments you're going through are gonna be defining moments in your life for better or worst. Don't feel down by this set back and be as cautious as possible.

Hi Iamready

I am sorry about your frustration and huge pain.  But it is not a failure but just going slower than you wanted it to be. While you slow down lengthening, it would be better for you to focus on PT to make muscle more flexible, which may reduce your pain and help you go back to normal speed as soon as possible. 
Hang in there buddy!  Be strong!!

Best,

Cheers Iamready,

Think that is a psychologycal game, more days of lengthening without pain is better, your soft tissues are telling that you have to reducere your ratio.

Take easy, you will able to enjoy your new height a lot of year, dont waste it growing faster.

Quote from: Iamready on November 30, 2015, 09:32:27 PMI feel like I've failed.  Today I went in for a check up after thanksgiving weekend and told Paley about my pain and he told me I was too tight and needed to slow down to .5mm a day until the next check up in 2 weeks.  I also feel like the Paley Center has failed me by not communicating the proper exercises I should have been focusing on.  I've been busting my ass and going through lots of pain and I deserve better communication between the physical therapy team and the doctors.  There is a huge disconnect and it's absolutely frustrating to be in this position.

Don't worry about it. A few other patients including myself have slowed down the lengthening at some point in their lengthening. Slowing down your lengthening will reduce your pain. Also keep in mind that your bone takes the same amount of time to consolidate anyway. So the total length in time spent in a wheelchair probably didn't change even though your lengthening time did.

How many days are the max Time period that you can doing lengthening?


Thank you

Quote from: yagen on December 01, 2015, 08:45:38 AMHow many days are the max Time period that you can doing lengthening?


Thank you

Depends on how fast you consolidate. Some people's bones grow too fast, so they have to lengthen faster or stop taking calcium supplements. This happened to one of the tib patients while I was here. If the bones consolidate too fast, there's a risk of bone union. Once the bones unite, you can't lengthen anymore without another surgery to break the bone again. In my case, where my bone is growing slower than average, I don't have to worry about bone union. I can lengthen longer. Looking at my x-rays, my bones didn't unite until around 4 months post-op, even though I stopped lengthen 3 months post-op. So I probably could have lengthened at .75 mm per day instead of 1 mm, and still be fine. And that's exactly what I did the last two weeks to give my legs a break. Lengthening when you're really tight is rough.

Looking at iamready's xrays, it doesn't look like his bones are consolidating too fast, so that's why he's allowed to slow down the lengthening and ease up on the pain caused by lengthening. This also allows his soft tissue to catch up to the lengthening.

I want to say thanks for the support guys.  This is the second PT of the day for me the bus will be here soon. I'll read all your comments once I am back and moved into my new apartment.  Thanks again.  You guys made my day to see you CARED.