Quadrilateral Lengthening with Dr. Paley

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Posted on Nov 25, 2015, 8:37 pm

#81

I think i'm convinced the manufacturer in China made a recent change to the front wheels of the wheelchair without thinking about how it would affect the opening and closing of the chair and how it fits with the frame. I'm going to give the main company a call- as opposed to the reseller they referred me to- on friday to see if I can get a unit with the old wheels that seem to open and close with no issue. Hopefully they still make units with the smaller black wheels.

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DoingItForMe

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Posted on Nov 26, 2015, 5:45 am

#82

Quote from: Iamready on November 25, 2015, 08:17:38 PMOk so I was able to rent the wheelchair in Miami for the week. There is a big design flaw. Do you have the version with the grey wheels or the black wheels? After closing up the wheel chair it takes way too much force to open itback up because the rims of the bulkier new grey wheels gets caught on the bottom frame of the chair and requires potentially damaging the battery casing and the frame of the chair. I'm guessing you have the older version with black wheels because when we tried that there were no issues closing and opening the chair. I simply can't drop this much money on something with such a poor design error. We had the owner of the shop open up another wheelchair and it had the same issue so it wasn't because of a single chair defect. Other than that the chair is fine but I might have to go with a more expensive one that is a bit better built.

Yea, I mentioned this in one of my previous replies. The grey wheel gets stuck if it's tilted, because the screw gets stuck. If it's stuck, the easiest fix is to just untilt the wheel until both of them are parallel again. Make sure that the screw for the grey wheel isn't touching the frame, and it'll unfold easily. The frame/battery won't get damaged.

Also if the chair doesn't fold fully, it's because you have the grey wheels backwards. Rotate them 180 degrees so that the longer part of the screw is on the outside rather than the inside. It's really not difficult to figure out once you know what's up. That's why I warned you that newbies will have trouble unfolding the chair.

I wouldn't recommend getting a smaller wheel. You want more traction. A smaller wheel might have more trouble getting over taller bumps.

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Quote from: Iamready on November 25, 2015, 08:17:38 PMOk so I was able to rent the wheelchair in Miami for the week. There is a big design flaw. Do you have the version with the grey wheels or the black wheels? After closing up the wheel chair it takes way too much force to open itback up because the rims of the bulkier new grey wheels gets caught on the bottom frame of the chair and requires potentially damaging the battery casing and the frame of the chair. I'm guessing you have the older version with black wheels because when we tried that there were no issues closing and opening the chair. I simply can't drop this much money on something with such a poor design error. We had the owner of the shop open up another wheelchair and it had the same issue so it wasn't because of a single chair defect. Other than that the chair is fine but I might have to go with a more expensive one that is a bit better built.

Yea, I mentioned this in one of my previous replies. The grey wheel gets stuck if it's tilted, because the screw gets stuck. If it's stuck, the easiest fix is to just untilt the wheel until both of them are parallel again. Make sure that the screw for the grey wheel isn't touching the frame, and it'll unfold easily. The frame/battery won't get damaged.

Also if the chair doesn't fold fully, it's because you have the grey wheels backwards. Rotate them 180 degrees so that the longer part of the screw is on the outside rather than the inside. It's really not difficult to figure out once you know what's up. That's why I warned you that newbies will have trouble unfolding the chair.

I wouldn't recommend getting a smaller wheel. You want more traction. A smaller wheel might have more trouble getting over taller bumps.

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Iamready

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Posted on Nov 27, 2015, 6:51 pm

#83

Ok thanks for the tips. I researched wheelchairs and there is nothing I can find that has as much positive feedback so I got a black friday special and will be returning my rental on Saturday. Did you tip the uber drivers extra for sotring the chair for you because I can imagine it being difficult to lift. BTW do you choose uber XL?

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DoingItForMe

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Posted on Nov 27, 2015, 10:43 pm

#84

Quote from: Iamready on November 27, 2015, 06:51:58 PMOk thanks for the tips. I researched wheelchairs and there is nothing I can find that has as much positive feedback so I got a black friday special and will be returning my rental on Saturday. Did you tip the uber drivers extra for sotring the chair for you because I can imagine it being difficult to lift. BTW do you choose uber XL?

UberX is fine. The chair fits in most trunks once folded. You don't have to tip your Uber driver. It's already included in the fare, and Uber drivers are used to helping people put things in their trunk. The chair is only 50 lbs. That's around the same weight as a large checked-in luggage. If they can't lift it, you can remove the two batteries to separate the weight. If you want to be nice, you can tip your driver extra. They'll remember it if you ever get them again.

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Iamready

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Posted on Nov 28, 2015, 2:30 am

#85

I've been having some serious pain lately. Mostly muscle spasms in the left calf and nerve pain in the ankles. Sleeping more than 2 hours at a time is impossible for the past week. This is all coming back to the time I asked the doctors about a time release medicine. I don't think I should feel ashamed for asking for a time release medicine to get an uninterrupted sleep. I really wish Dr.Paley was who we met with on a bi weekly basis rather than his under studies. They even lowered my oxycodone dosage to 5mg every 6 hours from 5mg every 4 hours without warning me when I got my refill. It's irritating especially when your someone like me who plays everything by the book and has to deal with agony during the nights.

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DoingItForMe

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Posted on Nov 28, 2015, 2:41 am

#86

Quote from: Iamready on November 28, 2015, 02:30:19 AMI've been having some serious pain lately. Mostly muscle spasms in the left calf and nerve pain in the ankles. Sleeping more than 2 hours at a time is impossible for the past week. This is all coming back to the time I asked the doctors about a time release medicine. I don't think I should feel ashamed for asking for a time release medicine to get an uninterrupted sleep. I really wish Dr.Paley was who we met with on a bi weekly basis rather than his under studies. They even lowered my oxycodone dosage to 5mg every 6 hours from 5mg every 4 hours without warning me when I got my refill. It's irritating especially when your someone like me who plays everything by the book and has to deal with agony during the nights.

No. You DON'T want Dr. Paley for the bi weekly meetings. Trust me on this. He's going to say the same stuff the other doctors will say anyway. But the difference is that Dr. Paley has a 3-6 hours wait. Yes, you heard me right. I had an appointment with him once at 2 pm. I didn't see him until around 6 pm. When I meet with Dr. Packer, it's usually less than an hour wait.

And yes, it sucked when they lowered my Oxy dosage as well. They're going to keep lowering it every 2 weeks. Savor your oxycodone. It's going to be more scarce as time goes on. Try to only take it when you can't bear the pain. For muscle spasms, take valium.

Lack of sleep is a common complaint in the diaries I've read. Sucks that they don't give you Oxycontin. That's what I used to help me sleep at night.

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Iamready

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Posted on Nov 28, 2015, 2:48 am

#87

The pain is real! Hah I guess I'm really in for the journey of a lifetime. What I don't understand is when I read peoples diaries like Agrios and he boasts about no pain and no problem sleeping. How is it possible we got the same surgery? There is definitely pain in the tibia lengthening and for me it all began during week 3 which was supposedly the time when pain was supposed to subside. All I can do is become a stronger person, it's tough and I just wish there were more tibia lengthening journals I could refer to for advice.

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DoingItForMe

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Posted on Nov 28, 2015, 8:01 am

#88

Quote from: Iamready on November 28, 2015, 02:48:23 AMThe pain is real! Hah I guess I'm really in for the journey of a lifetime. What I don't understand is when I read peoples diaries like Agrios and he boasts about no pain and no problem sleeping. How is it possible we got the same surgery? There is definitely pain in the tibia lengthening and for me it all began during week 3 which was supposedly the time when pain was supposed to subside. All I can do is become a stronger person, it's tough and I just wish there were more tibia lengthening journals I could refer to for advice.

I believe it's real. I went through the same pain. Never felt level 10 physical pain in my life until this surgery. And that includes getting hit by a car. Oxy was very rare for me as well, and I was popping those things while the other teenaged patients even STOPPED taking them. So my guess is that the younger you are, the less pain you feel. But even then, it depends on how your body reacts and how much your soft tissues allow you to stretch. Everybody's body is different. Anyway, talk to the doctors about it, and maybe they might let you keep the same dosage amount for the next prescription. Or maybe you'll get lucky and they'll increase your dosage.

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Iamready

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Posted on Nov 28, 2015, 2:54 pm

#89

Hey by the way thanks for all the help. Just want to say I appreciate it.

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DoingItForMe

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Posted on Nov 29, 2015, 1:42 am

#90

Quote from: Iamready on November 28, 2015, 02:54:38 PMHey by the way thanks for all the help. Just want to say I appreciate it.

No problem. Hang in there. Just keep in mind that the pain will go away once you stop lengthening. Keeping that in the back of my mind was what got me through the whole lengthening. Also, enjoy the Oxy when you take them. You probably will never get any more for the rest of your life. They are some really good legalized highs. That's if euphoria is one of the side effects you have from taking 2 at a time. It was for me, and it was great.

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