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Quadrilateral Lengthening with Dr. Paley

D
DoingItForMe
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Posts: 419
Joined: Apr 2015
Posted on Nov 16, 2015, 8:53 am
#51
Quote from: Iamready on November 16, 2015, 05:41:01 AMThe constipation is a side of effect of pain killers.  I take very little but still, it's enough to make me dread the number 2.
Are you taking any laxatives? Also, try to eat a lot of meat. You need the calories/fat/proteins to heal up faster anyway. I ate a lot of meat at the hotel, and skipped most of the salads. This ensured that I had a healthy flow of number 2. At one point it became too much, and ended up being diarrhea. That's when I put back more salads in my diet.

If you order take out on the weekends, I recommend the Tuna Melt from Pronto's Pizza. So good.
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A
alps
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Posts: 69
Joined: Sep 2013
Posted on Nov 16, 2015, 12:53 pm
#52
is it possible to get pain killers before LLing to see how your body will react to it?

constipation *can* be a big deal. it can ruin your food intake which is very important. what happens if you laxatives constantly for 2-3 months? you will become slightly addicted to it, but it should eventually subside, shouldn't it?
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D
DoingItForMe
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Posts: 224
Joined: Apr 2015
Posted on Nov 16, 2015, 7:31 pm
#53
Quote from: SAD on November 16, 2015, 12:53:33 PMis it possible to get pain killers before LLing to see how your body will react to it?

constipation *can* be a big deal. it can ruin your food intake which is very important. what happens if you laxatives constantly for 2-3 months? you will become slightly addicted to it, but it should eventually subside, shouldn't it?
No, the pain killers given are narcotics, and illegal to prescribe unless medically necessary. You only need laxatives in the beginning, until your body gets used to the pain killers. I had a lot of weird side effects from the pain killers from the beginning like hallucinations. But it went away after a few weeks.
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I
Iamready
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Posts: 284
Joined: Jul 2015
Posted on Nov 17, 2015, 3:42 pm
#54
I'm just taking the stool softener that they prescribed. I've got some laxatives on hand for an emergency situation.

There's been a slight change of plan.  I have moved the date of my femur lengthening to February 18.
This was a decision I made after hearing from the doctors that my goal of 12-13cm would only be achievable by a miracle.
After asking a few of the physical therapists about quadrilateral patients they also concurred that the most anyone achieved was 9.75 inches and the rest below that number.  It doesn't benefit me to pay double the cost to achieve the same amount of length that could be achieved in a single femur operation so I am bettering my chances by waiting until my tibia's are finished lengthening and then immediately lengthening my femurs.  I'll keep you posted.

I'd also like to mention that Homewood Suites is not very Wheelchair friendly.  There are no automatic doors, and the hallways are carpeted and sloped, making the long road to my room an unnecessary adventure. I will be looking for an apartment soon and will eat the cost of transportation.
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G
glenn
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Posts: 142
Joined: Dec 2014
Posted on Nov 17, 2015, 3:50 pm
#55
Quote from: Iamready on November 17, 2015, 03:42:35 PMThere's been a slight change of plan.  I have moved the date of my femur lengthening to February 18.
This was a decision I made after hearing from the doctors that my goal of 12-13cm would only be achievable by a miracle.
After asking a few of the physical therapists about quadrilateral patients they also concurred that the most anyone achieved was 9.75 inches and the rest below that number.  It doesn't benefit me to pay double the cost to achieve the same amount of length that could be achieved in a single femur operation so I am bettering my chances by waiting until my tibia's are finished lengthening and then immediately lengthening my femurs.  I'll keep you posted.

I'd also like to mention that Homewood Suites is not very Wheelchair friendly.  There are no automatic doors, and the hallways are carpeted and sloped, making the long road to my room an unnecessary adventure. I will be looking for an apartment soon and will eat the cost of transportation.

Hi Iamready,

Is that a typo? "12-13cm would only be achievable by a miracle"... That doesn't sound right, does it? Or did they mean "12-13cm in one segment?"

I'm doing cross-leg quadrilateral and I've successfully done one tibia (5cm) and one femur (7.2cm) without incident. I have yet to do the remaining segments, though. Did they say where the bottlenecks are, that would prevent one from achieving "12-13cm" ? Is there something that people should watch out for if they aim for those types of gains?
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Iamready
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Posted on Nov 17, 2015, 4:38 pm
#56
That's not a typo. It may be achievable with another doctor and nail system but the Paley Center is very conservative and strict when it comes to safety concerns.  I'm not in a position to dispute with a doctors statement so I'm doing what is best for my safety and for my ultimate goal.
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G
glenn
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Posts: 428
Joined: Dec 2014
Posted on Nov 17, 2015, 4:50 pm
#57
Hi Iamready,

I was just wondering if there's some bottleneck I should watch out for. Thank you for your reply! Good luck on the rest of the process!

Glenn
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A
alps
Member
Posts: 468
Joined: Sep 2013
Posted on Nov 17, 2015, 5:32 pm
#58
Quote from: DoingItForMe on November 16, 2015, 07:31:14 PMNo, the pain killers given are narcotics, and illegal to prescribe unless medically necessary. You only need laxatives in the beginning, until your body gets used to the pain killers. I had a lot of weird side effects from the pain killers from the beginning like hallucinations. But it went away after a few weeks.

what are the narcotics prescribed?

are you sure the body will get used to pain killers?
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G
Ghostfish
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Posts: 494
Joined: Dec 2014
Posted on Nov 18, 2015, 3:50 am
#59
Quote from: glenn on November 17, 2015, 04:50:18 PMHi Iamready,

I was just wondering if there's some bottleneck I should watch out for. Thank you for your reply! Good luck on the rest of the process!

Glenn

Hi Glenn

I think there is something you need to remember about what Iamreaady is doing.  Although both of you are doing QLL, the original time frame is different between yours and Iamready's. Iamready was originally planning on doing qll in about 3 months of lengthening which is a common period of lengthening for one segment. However, according to Paley center, he realized that it would be very hard or even not possible for him to achieve 12-13 cm which is his original goal "IN 3 Months", since most of qll patients achieved less than 10 cm. Therefore, he decided to finish tibia lengthening and go to femurs right after, meaning that he will need additional 3 months or so for femurs. So taken together, he may need to take 5-6 months, which becomes kind of similar to your time frame. As far as I remember, you are doing one cross segments lengthening for 2-3 months and do another cross segments after that.  So you will also need to spend 5-6 months like Iamready's modified plan. So overall you and Iamready will take a similar amount of time of lengthening for 12-13 cm or perhaps Iamready may be able to get one month or so faster than you. I am quite impressed by the determination of Iamready. He will definitely achieve his goal!!
     
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glenn
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Posts: 63
Joined: Dec 2014
Posted on Nov 18, 2015, 4:12 am
#60
Hi Ghostfish,

Ah, ok.. Totally didn't see the 12-13cm "IN 3 months" context. Thank you for the clarification! Makes a lot more sense now.
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