Questions for surgeons? Here's your chance...

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Hey Victor, could you bring back Dr.Lee in an interview and also contact doctor Kevin tetsworth ?
He often appears with Lee and Thaller in international convention and he seems pretty knowledgeable.
I personaly have no interest in getting this done in Australia but I would like to have more doctors who do not promote LL a lot but have 20+ years experience .
I want the procedure done by a good surgeon but not by someone who is taking advantage of my insecurity to get my money ,therefore I wish we could have on this forum less of  some butchers and more of respectable surgeons/mans .
After recent case I feel we need to refresh some names and stop promoting some surgeons as "skilled" just because their names appears more in this forum .
A lot of top notch surgeons do not perform this or advertise it for cosmetic reasons therefore we might be missing huge opportunities next to us to reach incompetent ones across the globe just because more popular here .

I feel it would be beneficial so please take a look at him since he started his career in Baltimore and trained under Paley as well .

(I know Australian government is against it if I am not wrong but an interview would not hurt .
Maybe he do not promote but still perform is you have the money for it )

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Gotcha tacoma94 I'll ask that question tomorrow about nail size effects.

Masteryourlife I have heard good things about Dr. Tetsworth also, I'll have to look into him more.

Another surgeon who doesn't care to promote stature lengthening much but definitely is experienced enough, highly regarded by other surgeons and in Australia is Dr. Munjed Al Muderis. In our interview on osseointegration, Dr. Rozbruch mentioned Dr. Muderis is a top talent in OI, which makes a LL procedure look easy. I reached out for interview but no response yet. I bet if I asked for OI he'd be all over it since it's a rapidly growing field and bc CLL is probably not a big scope of practice like the others you mentioned.

Reminder - tomorrow 6pm EST - Dr. Conway will be on LL LIVE. She's actually another who doesn't promote stature lengthening much but very experienced.

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Quote from: cyborg4life on December 09, 2021, 03:22:49 AMGotcha tacoma94 I'll ask that question tomorrow about nail size effects.

Masteryourlife I have heard good things about Dr. Tetsworth also, I'll have to look into him more.

Another surgeon who doesn't care to promote stature lengthening much but definitely is experienced enough, highly regarded by other surgeons and in Australia is Dr. Munjed Al Muderis. In our interview on osseointegration, Dr. Rozbruch mentioned Dr. Muderis is a top talent in OI, which makes a LL procedure look easy. I reached out for interview but no response yet. I bet if I asked for OI he'd be all over it since it's a rapidly growing field and bc CLL is probably not a big scope of practice like the others you mentioned.

Reminder - tomorrow 6pm EST - Dr. Conway will be on LL LIVE. She's actually another who doesn't promote stature lengthening much but very experienced.

Yes , those doctors are what I personally need to look for .
I wish more doctors where more open to suggest others like dr.Lee and Rozbruch did .
From a top notch surgeon , a suggestion towards someone is a big thing , more then few diares ..therefore if they and maybe Paley as well , put out there some names about doctors who do not promote CLL but are equally skilled ,the community would benefit A LOT .
I understand that might take couple patients from them but they already made history in the orthopedic field so I believe those extra k would not impact them the way it would impact this community  if we had  ACTUALLY more talented and moral surgeons .

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Hey cyborg another question. Are there any risks to patients getting dental treatment eg getting a crown replaced during limb lengthening?

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Hi Victor,

my question to LL docs:

Does it make sense to wear a smart watch (like Apple Watch Series 6) after the surgery to monitor blood oxygen in order to detect a potential pulmonary embolism?

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Got your questions Limbfan2020 and Highest thanks.

Also here's the LL LIVE episode with Dr. Conway where we answered some patient questions that were asked in this thread.

Medium Drink of Water's was at 18:45 and the one many were worried about on pulmonary embolism was at 20:30

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Quote from: canadian on December 02, 2021, 01:37:12 PMHey CyborgForLife,

I want to ask Dr. Marie Gdalevitch why does not do cosmetic LL unilaterally i.e, left first and then right or vice versa? What are the risks she sees that it should be avoided even though it lets the patient be more mobile and reduces chances of embolisms?

Thanks Victor.

My questions to Dr Marie:

"How necessary is it to know French as a CLL patient in Montreal who is coming there from outside solely for CLL?"

"If a patient cannot stay in Montreal for the full duration of lengthening is there anything that can be done to accommodate them?"

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Quote from: canadian on December 02, 2021, 01:37:12 PMHey CyborgForLife,

I want to ask Dr. Marie Gdalevitch why does not do cosmetic LL unilaterally i.e, left first and then right or vice versa? What are the risks she sees that it should be avoided even though it lets the patient be more mobile and reduces chances of embolisms?

Thanks Victor.

This is an interesting approach for CLL. Even though it reduces the chances of embolism per surgery does it not double the total chances because you're doing the procedure twice?

Siegfried is doing this with Dr Kohne and what you say about mobility is true. He is not using a wheelchair and is on crutches. I am also tempted by this but the idea of stretching out this whole ordeal for a year seems daunting. But so does staying in a wheelchair for 6 months haha. Ever since Stryde was taken off the shelves I have been extremely hesitant to commit to this surgery because the sight of a wheelchair scares me.

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I'll be sure to ask thanks mod.

Here's the link to the last surgeon LL LIVE Q&A of the year with Dr. Marie Gdalevitch of Montreal, Canada. I have a list of submitted questions but we should have time for some from the live chat too. We should be going live in about 15min from now but you can just watch it later of course...

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Quote from: chicitita on November 26, 2021, 11:50:05 PMLol WHY? We should be asking these questions! Its a matter of a lost life.

She's 100% right in this case. And that's why we are here and doctors there: to answer as best as we can any patient or fellow concern (or ask questions). We have right to be optimistic but others, provided they don't become just fear mongering and destructive, also have the right to be more afraid or skeptical, and at the same time LL being as important to them as to others...

(I won't elaborate more on this forum about that, but two of the mainstream doctors in this forum had at least one death each, altough possibly not their direct fault - but they couldn't avoid outcome after manifestation either: thrombosis due to clots)