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Posted on Aug 28, 2019, 3:13 pm
#1

Hey people, how are you? its been a long time since I was here.

Life is great. However I noticed some issues post LL. When I go to extreme weather such as very high altitute places with very cold weather, I have moderate leg pain. I still have the rods.
 Do you have the same issue?

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Posted on Aug 28, 2019, 3:19 pm
#2

I have heard that the rods should be romoved because it can lead to pain.

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Posted on Aug 28, 2019, 3:25 pm
#3

I plan to remove the rods but my surgery was 2 years ago and according to the doctor only now am I allowed to remove them.

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Posted on Aug 28, 2019, 5:22 pm
#4

Not an LLer but what temperatures do you mean by "very cold weather"?

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Posted on Aug 28, 2019, 8:27 pm
#5

Did you only lengthened 6 cm?

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Posted on Aug 29, 2019, 8:39 pm
#6

Hi mate, its been a long time since ive seen you on this forum. Its great to hear that you are well.

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Posted on Aug 30, 2019, 2:03 pm
#7

I still have mine in, since 2013, and I’m living in a very cold  ountry.

I’m doing very well. They hurt a little sometimes but I just qualified to the highest competitive level in my sport.
And I still have x legs.

I won’t be removing my rods.

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Posted on Aug 30, 2019, 2:51 pm
#8

Quote from: LLSouthAmerica on August 28, 2019, 03:13:24 PMHey people, how are you? its been a long time since I was here.

Life is great. However I noticed some issues post LL. When I go to extreme weather such as very high altitute places with very cold weather, I have moderate leg pain. I still have the rods.
 Do you have the same issue?


I had the same exact issue with my femur rods, and it persisted until I took them out. I'd say 7/10 times, when I'd travel by plane, I'd get very bad pain (just in my right leg, oddly) that would persist even up to several hours after having landed. It also happened when I was hiking in a high altitude area, and I had to stop the hike halfway because the pain was that bad. I also would occasionally get very bad knee pain from squatting/deadlifting/leg press. All of these problems were resolved from taking the rods out and I'm now lifting heavier than ever.

My advice to anyone (except for maybe Sweden, who seems to be mostly fine) - TAKE THE HARDWARE OUT.

I also kept my rods after removal, and will be keeping them as a souvenir. They had a ruler that shows exactly how much I lengthened, nice to know I actually did get my 3 inches (7.5+cm for both). Might even get them framed  To all CLL survivors

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Posted on Aug 30, 2019, 3:27 pm
#9

Metal expands with heat, maybe this is the reason for pain or the different temperature between flesh and metal which nerves register.

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Posted on Aug 31, 2019, 8:34 am
#10

Quote from: Sweden on August 30, 2019, 02:03:04 PMI still have mine in, since 2013, and I’m living in a very cold  ountry.

I’m doing very well. They hurt a little sometimes but I just qualified to the highest competitive level in my sport.
And I still have x legs.

I won’t be removing my rods.

Hi Sweden
I am glad that you are doing great and even qualified to the highest competitive level in your sport, which I guess, is some sort of martial art.
But, I don't understand why you do not want to remove your rods.  They are not good for our body in the long run, I believe.

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