Quote from: Antonio on December 14, 2017, 02:42:32 PMHi pretty lady! How are things going?
Hi Antonio,
Nothing's happening 
I'm taking painkillers to continue working out my walking muscles. While risky, I can amble from one leg to the other without crutches. I looked up the word 'amble' to see if I can better describe my walking gait. I guess what Penguinn described was perfect, penguin walk or as the dictionary says, as someone looks for seashells they amble from one leg to another.
What hurts for now is joint pain (KNEES esp the left one) when I'm seated for too long. Getting up hurts like crap, and my legs cannot hold me up, so I need crutches to prop myself up. While I should rely on my quads to stand up like a normal person, I'm programmed by Guichet to never rely on my quads/femur and to use my triceps instead. I'd rather err on the side of caution since I've no bones on the right leg.
I think this is the moment where guy muscles speed up healing. My glutes and abs are still weak. I went to an osteopath this week and he felt my ab muscles being pulled down by my short quads as well. This is HOW amazing our bodies work, EVERYTHING is related
I do not want to overdo the crutchless walking either since there's nothing supporting my right leg gap except for the nail and we have no surefire way of knowing how long it can last. I know I'm not consolidating the least bit because 3 more accidental clicks happened in the last 2-3 weeks when I sit down. So if it can rotate, nothing is healing.
I got suicidal again twice before I left for the holidays and after I arrived, due to insensitivity on the part of family and close friends. People TRY to correct my posture or give me advise that I should not hunch as a habit or be lazy, when they know very little about what I actually suffer. Short soft tissues as a result of longer bones, is definitely not a symptom normal people digest easily.
Hence, for you pre-LLers, once you undergo surgery, please please please keep stretching those psoas, IT bands, hamstrings and quads so that you're lengthening soft tissues along with your bones. Otherwise, my experience tells me that it takes even longer to lengthen muscles/soft tissues than bones Again, not something that is spelled out clearly PRE-LL surgery. We simply thought, off crutches, back to normal walking. Forget about bone consolidation, rebuilding muscles AND soft tissues needing to catch up
https://www.instagram.com/unicorn_gets_taller/
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
Quote from: Unicorn888 on December 14, 2017, 04:50:30 PMHi Antonio,
Nothing's happening I'm taking painkillers to continue working out my walking muscles. While risky, I can amble from one leg to the other without crutches. I looked up the word 'amble' to see if I can better describe my walking gait. I guess what Penguinn described was perfect, penguin walk or as the dictionary says, as someone looks for seashells they amble from one leg to another.
What hurts for now is joint pain (KNEES esp the left one) when I'm seated for too long. Getting up hurts like crap, and my legs cannot hold me up, so I need crutches to prop myself up. While I should rely on my quads to stand up like a normal person, I'm programmed by Guichet to never rely on my quads/femur and to use my triceps instead. I'd rather err on the side of caution since I've no bones on the right leg.
I think this is the moment where guy muscles speed up healing. My glutes and abs are still weak. I went to an osteopath this week and he felt my ab muscles being pulled down by my short quads as well. This is HOW amazing our bodies work, EVERYTHING is related
I do not want to overdo the crutchless walking either since there's nothing supporting my right leg gap except for the nail and we have no surefire way of knowing how long it can last. I know I'm not consolidating the least bit because 3 more accidental clicks happened in the last 2-3 weeks when I sit down. So if it can rotate, nothing is healing.
I got suicidal again twice before I left for the holidays and after I arrived, due to insensitivity on the part of family and close friends. People TRY to correct my posture or give me advise that I should not hunch as a habit or be lazy, when they know very little about what I actually suffer. Short soft tissues as a result of longer bones, is definitely not a symptom normal people digest easily.
Hence, for you pre-LLers, once you undergo surgery, please please please keep stretching those psoas, IT bands, hamstrings and quads so that you're lengthening soft tissues along with your bones. Otherwise, my experience tells me that it takes even longer to lengthen muscles/soft tissues than bones Again, not something that is spelled out clearly PRE-LL surgery. We simply thought, off crutches, back to normal walking. Forget about bone consolidation, rebuilding muscles AND soft tissues needing to catch up
https://www.instagram.com/unicorn_gets_taller/
Hi Unicorn, I'm extremely saddened by your continued plight and the sheer callousness (pardon the pun) of your insensitive family members. Unfortunately we can't choose our family but I understand your situation coming from a high achieving one myself. I hope you can forgive them for their ignorance.
Is there no way the doctors that you are seeing can help with the bone consolidation? How about seeing a specialist, or asking for experimental treatment? What about that bone graft you referred to? In this day and age, there must be some way to fix your bones for good.
Hoping the holidays are good to you, and if there is anything that I can do, don't hesitate...
It seems they aren't "uber" in everything.
To be honest, I lost track of all the misfortune you have sufered but I do hope you get your right leg consolidated asap. I can see you recovering much faster afterwards.
Hi, Unicorn. Have you been getting therapy? I'm really sorry to hear about the recent suicidal thoughts. Don't forget about addressing any psychological problems you're having too.
Stay strong.
Quote from: Antonio on December 14, 2017, 05:41:47 PMHi Unicorn, I'm extremely saddened by your continued plight and the sheer callousness (pardon the pun) of your insensitive family members. Unfortunately we can't choose our family but I understand your situation coming from a high achieving one myself. I hope you can forgive them for their ignorance.
Is there no way the doctors that you are seeing can help with the bone consolidation? How about seeing a specialist, or asking for experimental treatment? What about that bone graft you referred to? In this day and age, there must be some way to fix your bones for good.
Hoping the holidays are good to you, and if there is anything that I can do, don't hesitate...
Yes, I really do think though that most people have my best interest at heart (hopefully) when they give advise or judge me. And it's definitely my fault because what I did to myself cannot be easily explained and understood Example : My mum tells me to just tell anyone who asks about my crutches that I just sprained my ankle skiing... Again, glossing over my struggles to maintain dignity... and NOBODY notices that I'm taller now because I'm hunched over/duckass, so there is some good news here
The other Guichet non-union guy received a full bone graft from NHS a month ago with just cadaver bone chips. I think his body accepted it and the last xrays show healing. So I think I'm next on the NHS list 10cm is a huge jump, so I have no choice but to chance it. And will try something else if this doesn't work.
I wrote to every 'experimental' expert I researched but nobody replied. All these people who can print 3D bone or even collagen scaffolds to ease bone cells to bridge from one end to the other. If anyone knows anyone directly, please do PM me. At this stage, I don't mind being a guinea pig (a tall one at that ) I did notice that most experiments are done on pigs, rabbits and mice
https://www.instagram.com/unicorn_gets_taller/
Quote from: Auron on December 14, 2017, 05:44:42 PMIt seems they aren't "uber" in everything.
To be honest, I lost track of all the misfortune you have sufered but I do hope you get your right leg consolidated asap. I can see you recovering much faster afterwards.
I'll post some walking gait without crutches today but it's definitely getting better superficially Walking without bones
I'm still blown away by how good looking you are, hahaha! We are not misfits but people who dare to strive for height.
edited: excessive Instagram link
Quote from: myloginacct on December 14, 2017, 05:45:07 PMHi, Unicorn. Have you been getting therapy? I'm really sorry to hear about the recent suicidal thoughts. Don't forget about addressing any psychological problems you're having too.
Stay strong.
Yes, I now suffer from psychological probs unfortunately. I tried to reason them away but after countless psychological and psychiatric sessions, they've put me on some pills to stabilize my depression and hopelessness. Apparently, all that has happened cause some kind of PTSD and other snowball effect issues.
I'm getting used to being home, around friends and on holiday right now, so hopefully, all this will diminish with time. I found out that when I told my parents/brother that when I got home from surgery in Milan and didn't have a nurse and survived on cornflakes, water and peeing into my cat's water bowl, they cried and got tickets to come to London to take care of me.
So I do understand that while sometimes friends and family do not know how to express the right words in front of me, I am very much loved.
Thank you for your message because the psychological aspect is quite important in trauma & ortho cases as our heads and bodies try to grasp and adapt to all these sudden changes. It's not always good news everyday with LL, so being prepared for any imminent change in psychological outlook and addressing it promptly, is KEY.
https://www.instagram.com/unicorn_gets_taller/
Quote from: Maxrules22 on December 13, 2017, 02:01:12 AMHey Unicorn,
I just spent the last couple of days reading all of your posts. So sorry you are going through this! Do you think your right leg would have not have had non-union if the gap was not so big? I am new to LL forum so I do not know much. But I do know things will get better eventually. It may take a while but time heals all wounds. Also your legs are much straighter in your recent Instagram posts so good job!!
You are in my prayers <3
Hi Maxrules22,
Yes, my right leg would not have non-union if the gap is not so big. It's a series of problems that lead to where I am today.
My right leg was lengthened way too fast, before the calluses can keep up with bridging. In addition, I found out my nail is non-reversible, too late. If it were reversible, I could have shortened it again until the calluses touch each other, and re-lengthen very slowly to ensure bone consolidation.
The other issue that I've learnt as well is external LL is better for older people probably because they don't need to ream their femurs to insert the internal nails. When you ream too much, you lose all the active cells and matrices that help with bone healing. Hence, people who use external nails have a better chance of consolidation because they can reverse and they have full femur bones to work with 
This is my 20/20 perfect hindsight for you 
https://www.instagram.com/unicorn_gets_taller/
Quote from: Unicorn888 on December 14, 2017, 11:37:39 PMI'll post some walking gait without crutches today but it's definitely getting better superficially Walking without bones
I'm still blown away by how good looking you are, hahaha! We are not misfits but people who dare to strive for height.
https://www.instagram.com/unicorn_gets_taller/
Yes, your proportions definetely look much better for a girl now. I hope it works as a motivation for your recovery. I had a look at your insta, you're smart and beautiful just like Helloworld said, so don't waste that gift. We are not misfits at all 
Quote from: Unicorn888 on December 14, 2017, 11:29:52 PMYes, I really do think though that most people have my best interest at heart (hopefully) when they give advise or judge me. And it's definitely my fault because what I did to myself cannot be easily explained and understood Example : My mum tells me to just tell anyone who asks about my crutches that I just sprained my ankle skiing... Again, glossing over my struggles to maintain dignity... and NOBODY notices that I'm taller now because I'm hunched over/duckass, so there is some good news here
The other Guichet non-union guy received a full bone graft from NHS a month ago with just cadaver bone chips. I think his body accepted it and the last xrays show healing. So I think I'm next on the NHS list 10cm is a huge jump, so I have no choice but to chance it. And will try something else if this doesn't work.
I wrote to every 'experimental' expert I researched but nobody replied. All these people who can print 3D bone or even collagen scaffolds to ease bone cells to bridge from one end to the other. If anyone knows anyone directly, please do PM me. At this stage, I don't mind being a guinea pig (a tall one at that ) I did notice that most experiments are done on pigs, rabbits and mice
https://www.instagram.com/unicorn_gets_taller/
You would be the cutest guinea pig ever! But seriously it's wonderful that you are next in line for the bone graft. And I think that you have such determination and positive energy that you will come through. And then when you stride out in your heels and new height you will just be slaying...
Please, more posts on Instagram!
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