VERY FERST STEP - INDIA - Dr. Anil Raheja

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Your nerves can't lengthen that fast. They will be destroyed, probably permanently. Skin numbness, loss of temperature feeling for the body in that part, increased sweating and more.

There is always more to it than you can find in forums.

Doing quadrilateral lengthening, especially with monorails AND without any nails, is to destroy your life as you know it.

You will both be aware of this next summer. If you fall into a serious depression you could end up hurting yourself even more.

I hope you guys really are lucky with this. There is SOOOO MUCH that can go wrong with this approach.

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isn't the idea that they will lengthen with monorails and then insert nails inside the bones so they can weight bear after lengthening.

I don't see why u cant lengthen 4 bones providing u don't break them all in one sitting. if the surgeries r done 20 days apart I DONT think 5cm on tibia and 5cm on femur is such a bad idea.

assuming u lengthen for 50 days and then insert wb nails u can expect to be trying to walk after initial surgery within 75 days or so.

I don't see why Sweden keeps saying ppl wont be able to walk for many years.

he has only done his surgery less than a year ago so how does he conclude that others will not walk for 3 years and possibly be ruined for life.  some of the things he says r just his thoughts and not facts that have been proven. he is too conservative.

I dont think we should be critisizing others for taking risks and doing things that our outside the norm.

lets not forget that ones personal LL experience is one of the many possible outcomes of LL. Just because u take  more than 6 months to recover from ballerina doesnt mean every one will.

I like the advice of LL vets but sometimes they talk like they have done LL and tried many possible scenarios. BUT no they haven't. so I don't like how some one who did LL less than a yr ago can conclude that some one  who tries something different to what they did will result in total failure or permanent damage.

I don't agree with breaking 4 bones  and using external LL. but if they r targerting small gains per bone I think they can pull it off.

The kind of criticizing that's been given to this girl is similar to that which is given to new LL doctors that r  not popular.

well guys look at Dr Siringari and his patients. they r doing really well (providing everything is what it is  and not polished like most thins over there at old forum )

When that dr came on the forum and it appeared new patients where going to do surgery with him, most ppl, especially vets, were all on the persimistic side of the fence.

so come on guys, lets be thankful for those who push things to the edge because it is the only way we can know what is really possible with LL.

I am surprised that this girl still posts on forums after the way she has been attacked. and what a loss it would be if she stopped updating because everyones is treating her like she is some kind of a lunatic.

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You have no clue at all. I have.
I have seen what the monorail can and can't do. I know how long it takes for the general patient to recover. I have contact with lots of patients, discussing their progress and abilities.
I have read through old forum  since the beginning of its existence.
I have spoken to several doctors about LL and everything that happens to the body when going thorough such a procedure.

I know of many patients that came back a couple of years after finishing LL to do a tendon release surgery bc they've been fighting the stiffness for 5 years without any progress.

There is so much we never get to know through old forum  or in here that you might get chocked when you finally have your own LL and understand what it's all about.

Why do you think EVERY SINGLE PATIENT EVERYWHERE stop writing in their diary? They are permanently hurt and too proud or embarrassed to tell about it.
Some claim they are perfectly fine and then they show up next year for a tendon release surgery.....

There is so much you don't know what is happening to the body. You can never find it on LL-boards.

The girl didn't even know if she was getting a nail inside her bone, come on!!

I hope this diary continues - everyone wants to see her doing well.

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Saying people stop their diaries because they're "too embarrassed to tell about it" is just an erroneous claim.  People move on with their lives, and after a certain point, you have no need/desire to continue updating your diary.  Your diary was created in the beginning with a purpose- to track your progress and receive advice from other LLers.  Once you're done with LL, what other purpose do you have in continuing it?  At that point, it's just a waste of time that can better be spent elsewhere.

You have read through old forum  since its existence in 2006, have you also read about all the studies done on LL since the 50s?  There are many people who have gotten LL for the past decades, and they have no need to share their story because they've made it through life fine.  You're unhappy with your surgery and putting that unhappiness on everyone else, give it a break.

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Quote from: BilateralDamage on November 19, 2013, 04:18:16 PMSaying people stop their diaries because they're "too embarrassed to tell about it" is just an erroneous claim.  People move on with their lives, and after a certain point, you have no need/desire to continue updating your diary.  Your diary was created in the beginning with a purpose- to track your progress and receive advice from other LLers.  Once you're done with LL, what other purpose do you have in continuing it?  At that point, it's just a waste of time that can better be spent elsewhere.

You have read through old forum  since its existence in 2006, have you also read about all the studies done on LL since the 50s?  There are many people who have gotten LL for the past decades, and they have no need to share their story because they've made it through life fine.  You're unhappy with your surgery and putting that unhappiness on everyone else, give it a break.

Actually, check Andrew's diary on old forum , he just admitted to going silent for a very long time precisely because of sudden very stressful complications mixed with embarrassment and pride. While that doesn't have to be the case for everyone who stops updating, I don't think he's alone. He's just among the few that come back to admit to it in their diaries.

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"I don't agree with breaking 4 bones  and using external LL. but if they r targerting small gains per bone I think they can pull it off."

I agree with the statement above posted by Adriano -- Even Dr Paley somewhere in his website mentions that performing simultaneous lengthening for tibias & femurs saves time. However, I'm not saying that it is the best thing to do. I personally think that in all this controversy everyone who posted has a point. Sweden is right saying that this is extremely risky and MIGHT take a long time for one to recover, but let's remember that every individual is not created equal (pain tolerance, soft tissue laxatity, mental focusness, etc) and some respond differently than others. Of course if you have non-weight bearing frames and you don't move around for several months, then your muscles and other soft tissue are definitely going to get atrophied, and therefore your recovery might take a long time to happen. But I respect everyone's decision even if it goes against my own beliefs or point of view; and I think everyone is entitled to make their own choices and we should honor that. In my opinion if you just keep the lengthening target small to moderate, then your chances of success increase. For those who need more info on monorail here's an medical journal indicating the pros and cons of it:
 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2994627/
In Spain for instance they use monorail fixators to cosmetically lengthen bones and people do physical therapy and walk since day one. For those who understand Spanish here's a youtube link:
 
And remember Emma Richards (from Repley's believe it or not) from the UK did only external femurs with monorails and she did physiotherapy and walking and exercises and everthing. So, I know that is is possible to walk with it but better to keep your targets short.

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I'm not unhappy with my surgery. You're a total fool for even claiming so.

The monorail device fails very easy, I've seen it.

Nothing good can come if you stay in bed for 6-8 months.

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I'm a fool for thinking you were unhappy with your surgery when reading posts like these?

Quote from: Sweden on November 19, 2013, 02:43:05 PMI went from 5'8 to 5'11 and I'm not really sure how that have impacted on my life yet.
Actually so far it's been mostly embarrassing and I had to hide it.

There is no really benefit that I know of. I noticed some girls were looking at me at the gym the other day but they've done that lots of times before too.

Maybe I should try dating to see if there's any difference 

And I'm the fool.    It's pretty clear from most of your posts that you're regretful of your surgery.  Unless, you care to tell us otherwise?

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Sweden bro, I think you should recover (even if it takes you a long time) and enjoy your new height and forget about any further lengthening. I don't know for sure but I suppose that you don't want to spend a good chunk of your life recovering from the first surgery and then from a second one and missing on the good things of life, do you? I'm only 5'2 and to be honest I would kill to be at least your starting height before you had CLL. People in this forum are all going to have different opinions and that's understood, but the true of the matter is that you've proven yourself and definitely are an inspiration to many. You have good intentions in advising and warning others but remember that anyone is entitled to do what they want with their lives (in this case their bodies). So, let them be and if there are consequences let them learn from them. Peace!!!

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Quote from: Leonardo2013 on November 20, 2013, 01:01:23 AMSweden bro, I think you should recover (even if it takes you a long time) and enjoy your new height and forget about any further lengthening. I don't know for sure but I suppose that you don't want to spend a good chunk of your life recovering from the first surgery and then from a second one and missing on the good things of life, do you? I'm only 5'2 and to be honest I would kill to be at least your starting height before you had CLL. People in this forum are all going to have different opinions and that's understood, but the true of the matter is that you've proven yourself and definitely are an inspiration to many. You have good intentions in advising and warning others but remember that anyone is entitled to do what they want with their lives (in this case their bodies). So, let them be and if there are consequences let them learn from them. Peace!!!

If no one else has said this to you before, let me be the first to say it- it takes a lot of strength to be a 5' 2" male in today's society.  I'm 5' 6" and I still struggle with adversity because of my height.  Keep on keepin' on, I envy your strength!