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Posted on Jul 25, 2014, 11:59 pm
#211

Quote from: just_me on July 25, 2014, 07:14:55 PMWannabegiants, Great that you could manage the stairs so early.
Regarding your times in Ilizarov frames on your legs. Have you in all this times noticed at any times any small craking sounds coming from your Ilizarov frames when you stand and start to walk.
With Ilizarov frames like yours is it a big problem if one have small craking sound coming from the Ilizarov frames time to time when you stand up and begin to walk several times during the whole times in the Ilizarov frames?

Hmm no i dont think so, some times before when my knees where stiff there would be noises coming from them occassionally when i tried to walk etc, but it stopped happening a long while ago. The frames themselves havent made any noise though..

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Posted on Jul 26, 2014, 12:00 am
#212

Quote from: Medium Drink Of Water on July 25, 2014, 06:16:34 PMWow.  I just plain could not do stairs while I had my frames on.  I didn't have the leg strength to do it.

Maybe its harder to do it with the internal nail inside, at least initially since im guessing the trauma to the legs would be worse with the LON surgery.

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Posted on Jul 26, 2014, 7:53 am
#213

Wannabegiants, You say that you maybe will remove some of the pins before you remove your frames. Can you please show/tell by referring to your very good X-ray pictures where these pins is placed that can be removed before you remove your frames?

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Posted on Jul 28, 2014, 2:18 am
#214

Quote from: just_me on July 26, 2014, 07:53:40 AMWannabegiants, You say that you maybe will remove some of the pins before you remove your frames. Can you please show/tell by referring to your very good X-ray pictures where these pins is placed that can be removed before you remove your frames?

Im not sure since he didnt tell me what pins he will remove (i didnt ask for specifics at the time) But im guessing he will remove the middle pins that are right under the knee, (i guess he removes 2 or 3 of them, keeping the outer ones and the thick one in the lower half ring. He probably doesnt remove any of the ankle pins before its done.

Btw i want to add, that Dr Bagirov also actually does this method of removing some pins at an earlier date before the frame removal.
I didnt know about it since he hadnt mentioned it before but he did it to another patient which i have contact with.

Its not optimal to do it with him if you are a foreign patient though, as you would either have to fly back and forth several more times or stay at the hospital again for an extended period of time which would be expensive, or rent some apartment in Moscow.

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Posted on Jul 30, 2014, 12:10 am
#215

Small update:

Dr Bagirov thought it was a bit to early to remove some pins, didnt give me an estimate how long i have left though. I expected this and intend to be careful. He knows about this stuff better than the local orthopedic, but at the same time its hard to get concrete answers from him, since he is mainly talking through his assistant. He did say that the bone healing looked very good though.

I think i have at most 3 months left until im completely done with the frames, so not to bad. My lower leg muscles have regained so much of their strength now that the frames feel very light when walking and moving. Recovery goes very fast it seems when lengthening smaller than average ammounts.

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Posted on Aug 1, 2014, 2:27 pm
#216

hi wannabegiants...i read your diary and you mentioned that you prescribed blood thinning pills...other patient KILOKAHN with dr mangal in india doesnt get it, from what i read on internet blood thinner is required to avoid blood cloth which is a very dangerous complication if occur...i would like to know what kind of blood thinner you'd given and at what cost because i want to go to india for surgery since i can't stand cold weather....i want to ask KILO also why he doesnt given this med by the dr....thanks, i wish you have successful journey...

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Posted on Aug 1, 2014, 2:27 pm
#217

hi wannabegiants...i read your diary and you mentioned that you prescribed blood thinning pills...other patient KILOKAHN with dr mangal in india doesnt get it, from what i read on internet blood thinner is required to avoid blood cloth which is a very dangerous complication if occur...i would like to know what kind of blood thinner you'd given and at what cost because i want to go to india for surgery since i can't stand cold weather....i want to ask KILO also why he doesnt given this med by the dr....thanks, i wish you have successful journey...

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Posted on Aug 3, 2014, 12:01 am
#218

Quote from: yudha on August 01, 2014, 02:27:35 PMhi wannabegiants...i read your diary and you mentioned that you prescribed blood thinning pills...other patient KILOKAHN with dr mangal in india doesnt get it, from what i read on internet blood thinner is required to avoid blood cloth which is a very dangerous complication if occur...i would like to know what kind of blood thinner you'd given and at what cost because i want to go to india for surgery since i can't stand cold weather....i want to ask KILO also why he doesnt given this med by the dr....thanks, i wish you have successful journey...

Hi Yudha, im sorry but i do not know the names of the painkillers i used, since they had russian names and they use a different alphabet. they where included in the daily price for staying at the clinic, and when it was time to go home to continue lengthening, i bought a few packs of them (2 i think) along with lots of other medicines. So i dont know the specific price. But considering how much meds i got for the combined price i dont think they where expensive at all.

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Posted on Aug 3, 2014, 12:01 am
#219

Quote from: yudha on August 01, 2014, 02:27:35 PMhi wannabegiants...i read your diary and you mentioned that you prescribed blood thinning pills...other patient KILOKAHN with dr mangal in india doesnt get it, from what i read on internet blood thinner is required to avoid blood cloth which is a very dangerous complication if occur...i would like to know what kind of blood thinner you'd given and at what cost because i want to go to india for surgery since i can't stand cold weather....i want to ask KILO also why he doesnt given this med by the dr....thanks, i wish you have successful journey...

Hi Yudha, im sorry but i do not know the names of the painkillers i used, since they had russian names and they use a different alphabet. they where included in the daily price for staying at the clinic, and when it was time to go home to continue lengthening, i bought a few packs of them (2 i think) along with lots of other medicines. So i dont know the specific price. But considering how much meds i got for the combined price i dont think they where expensive at all.

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Posted on Aug 3, 2014, 11:48 pm
#220

are you sure blood thinners is included or it is just pain killers and other thing? as i know blood thinners is expensive that may be reason some dr don't give it to their patients...

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