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Posted on Jul 10, 2014, 8:09 pm
#181

Ballerina was an issue for me, but only a small issue that resolved itself eventually.  Different people's legs can stand to lengthen different amounts.

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Posted on Jul 11, 2014, 4:51 pm
#182

Quote from: Wannabegiant on July 10, 2014, 04:13:46 PMAre you swedish? (since you mentioned "skruva", i would translate it to "turning" in this case)

I havent measured my wingspan, but i have very long arms and wide shoulders (despite only weighing around 63 +/- kilos pre-surgery)
Even now after i have finished lengthening, my wingspan looks slightly longer than my height, so i would guess i have 180+ cm in wingspan.

I started lengthening 5 days after i had the surgery which was mars 01, and no they do not distract the bone during the surgery so you start from 0. I was done lengthening at the beginning of May, cant remember exact date, i slowed down my lengthening speed slightly when i was almost done because i had an infection, but it didnt make much difference overall in the total time it took, just a few days extra.

So the lengthening took me about 2 months, but i lengthened 4.3 cm to be exact.
Yes of course its "turning", what was I thinking, temporary lost my brain.
How long before u take of frames? Have u been walking out in public like to the store or are u only at home?

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Posted on Jul 11, 2014, 7:43 pm
#183

Quote from: westercoasten on July 11, 2014, 04:51:30 PMYes of course its "turning", what was I thinking, temporary lost my brain.
How long before u take of frames? Have u been walking out in public like to the store or are u only at home?

The clinic said before i had the surgery that 4 cm would take 6-9 months on average. And that lines up with what Dr franz said on this site, ie that it takes around 1.5 - 2 months per cm to consolidate in adults, however he mentioned that his patients on average take 1.3-1.5 months per cm, and that they add 0.5 months to that estimate so the patients wont get to high expectations.

With that said, if im average in terms of healing i should be done in 6 months total, which would mean the end of august, which is about 1.5 months from now. I have an appointment with a local orthopedic 24 of July, and he will probably be able to give me a more accurate estimate when i will be done.

My first x-ray which i did after ca 2 months post surgery showed a lot of callus "fog" along the whole distraction gap, an im young and have done lots of sports most of my life, ive never smoked in my life and i have been eating very healthy and taking supplements all this time, i expect the healing to be average or better.

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Posted on Jul 11, 2014, 11:21 pm
#184

I apologize of this has already been asked, but does Dr. Bagirov fixate the fibula bone on both ends?

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Posted on Jul 11, 2014, 11:40 pm
#185

Quote from: Tall on July 11, 2014, 11:21:32 PMI apologize of this has already been asked, but does Dr. Bagirov fixate the fibula bone on both ends?

I didnt ask him about it so i cant know for sure but im almost certain that he does fixate the fibula on both ends, since i have pins going into those exact spots where the fibula is located both near the ankle and on the outside of the knees. Also, i have no x-legs at all which is one of the complications which can happen if the fibula isnt fixed if i recall correctly, which makes it even more likely that he did fixate the fibula.

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Posted on Jul 12, 2014, 6:34 am
#186

Hey Wannabegiant,

Thanks again for posting your experience in such detail and answering all those questions, like I had mentioned earlier I am considering Dr. Bagirov for bilateral tibial lengthening and I have booked a date in August.

I still had a few questions at this point, do you think it would be okay if I PMed you?

Thanks in advance for replying!

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Posted on Jul 24, 2014, 1:00 pm
#187

Quote from: Converse on July 12, 2014, 06:34:44 AMHey Wannabegiant,

Thanks again for posting your experience in such detail and answering all those questions, like I had mentioned earlier I am considering Dr. Bagirov for bilateral tibial lengthening and I have booked a date in August.

I still had a few questions at this point, do you think it would be okay if I PMed you?

Thanks in advance for replying!

I dont remember if i answered your PM or not :p sorry, you are welcome to send me PM if you want.

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Posted on Jul 24, 2014, 1:06 pm
#188

Update:

Got some good news, I went to see the local orthopedic doctor in Sweden today, and as soon as he saw my frames the first thing he said was: "Ah so you have been to Russia" (in Swedish obviously). So he had seen other patients coming here with Ilizarovs before and he had prior experience with LL for non-cosmetic purposes (leg length discrepancy etc)

So when i told him how much i had lengthened, when i had the surgery and showed him my previous x-rays from May, he told me that it looked very good and that i probably dont need to wear the frames for that much longer. He also took into account the fact that i had no pain and could walk well unaided when he said this.

So he took x-rays and would analyze them and later send them to me through email along with his comments, and he will set up a proper time to meet up again depending on how well it has healed.

He claims to be able to remove the frames if i wanted to do it in Sweden instead of going back to russia (i dont want to bother with Visa again) and he seemed confident.

Since i will get the x-rays digitally this time, i will be able to post them here as soon as i get them. Shouldnt have to wait that long.

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Posted on Jul 24, 2014, 1:15 pm
#189

Awesome new man!!! Yeah taking off frames is not a big deal im sure if he says he can then he can!))) My inly concern is the xray. Make sure your doctor in russia also look at it before removing frames

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Posted on Jul 24, 2014, 1:18 pm
#190

Awesome update. Congrats on making it this far! If you get the chance, could you ask your Swedish doctor if Dr. Bagirov did indeed fixate your fibula? It would be awesome to know for sure if he does it or not.

Also, at this point, just how well and how far are you able to walk unaided? Is there still any reliance on crutches? How normally are you able to live your life with the frames now?

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