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Posted on Apr 15, 2019, 8:25 am
#111
Quote from: fallen774 on April 15, 2019, 05:43:54 AMHi all,

As promised, I'm making one last update after removing the rods. My surgery was last week, April 4th, 1 year after putting those rods on my legs (April 5th 2018).

The surgery went great. I was already walking without assistance on the same day. When walking I would feel a minor pain on the hips but that's it. I went to my Airbnb which was on the second floor in a building with no elevator, and I could go up and down easily. It honestly feels that my flexibility is already better -- it was like 90% before and now it feels like 95%. Maybe the rods were indeed a limitation factor. Rest assured that being 90% or 95% instead of 100% don't affect absolutely anything in my life. When I estimate those numbers it's basically based on my ability to touch my toes with my fingers. Most people with or without the surgery wouldn't have it 100% anyways.

Today is my 10th day post-op and the pain (if I can even call that pain after what I've been through last year) is all gone. I'm back to my routine, already got back to the gym yesterday for upper body training and already returned to work. The only limitations he gave me is that I can't run for the first 6 weeks, and can't do sports such as soccer or basketball for the first 3 months. After that there is no limitation. Even though right now it feels I can run and do anything, I'll follow what he said and will wait a couple more weeks before getting back to lower body weight lifting.

This  surgery is 100 times easier than the first one, but try to do it 1 year or 1.5 year after the initial procedure. Dr Mahboubian did two rod removal surgeries on the same day. I was the first one on that day, scheduled for 7:30am and the other was scheduled for 10am. On my follow up appointment he said he was glad that I went first, because my surgery only took 45 minutes on each side, but the other person had the rods for 4 years, it took 2 hours on each side and the surgery was way more complicated (he didn't give much more details besides for that).

I'm happy I'm over with this part of my life and it has already started to fade away from my mind. I barely think about it and I've moved on with every part of my life. I'm even married now and I honestly couldn't be happier.

I hope this journal will help future CLL'ers and now this is the real final post. Good luck!

Great post and congratulations - it's clear that you do not regret doing this! All the best
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Posted on Apr 15, 2019, 4:05 pm
#112
Hi Fallen!

Congrats on rounding off your journey! I was reviewing your diary and although you had a traumatic experience, I must say, the speed at which you returned to walking with a reasonable Gait might be a record on here despite the fact that you were on the old nails.   I'm glad that all worked out so well and congrats again!

All the best.

IFS
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Posted on Apr 15, 2019, 7:21 pm
#113
Fallen, fico feliz em saber que você veio do Brasil, é um bom sinal..

Desejo tudo de bom

 8cm on femurs - Dr. Mahboubian
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Posted on Jun 28, 2020, 3:22 am
#114
Bumping an old thread. Must read thread. Don't give a fk.

general disclaimer: If you're having sleep problems while LL, DO NOT take opioids and benzos to sleep better. I REPEAT, DO NOT take them together to sleep, more or less take opioids at all for anything but relieving intense pain.

Near death experience in this thread. Fortunately a good outcome, but there's lots to be learned.

Fallen774, God bless you. Don't come back to this forum, cause you'll be living life. Congratulations man.
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Posted on Jul 1, 2020, 12:53 pm
#115
Quote from: ghkid2019 on June 28, 2020, 03:22:11 AMBumping an old thread. Must read thread. Don't give a fk.

general disclaimer: If you're having sleep problems while LL, DO NOT take opioids and benzos to sleep better. I REPEAT, DO NOT take them together to sleep, more or less take opioids at all for anything but relieving intense pain.

Near death experience in this thread. Fortunately a good outcome, but there's lots to be learned.

Fallen774, God bless you. Don't come back to this forum, cause you'll be living life. Congratulations man.

Thank you for the note.
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Posted on Nov 23, 2020, 9:44 pm
#116
Just gonna bump this again for those who might go overboard with the sleeping pills/pain relief.

Near death experience. Everything is good though
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Posted on Nov 23, 2020, 9:50 pm
#117
Quote from: ghkid2019 on November 23, 2020, 09:44:34 PMJust gonna bump this again for those who might go overboard with the sleeping pills/pain relief.

Near death experience. Everything is good though
ghkid what a comeback, you are making order everywhere, glad to see you again
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Posted on Nov 23, 2020, 9:53 pm
#118
Quote from: Tartar on November 23, 2020, 09:50:47 PMghkid what a comeback, you are making order everywhere, glad to see you again

Haha good to see you again and everyone. Sorry for spamming every thread. It'll settle down soon.
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Posted on Nov 23, 2020, 9:58 pm
#119
Quote from: ghkid2019 on June 28, 2020, 03:22:11 AMBumping an old thread. Must read thread. Don't give a fk.

general disclaimer: If you're having sleep problems while LL, DO NOT take opioids and benzos to sleep better. I REPEAT, DO NOT take them together to sleep, more or less take opioids at all for anything but relieving intense pain.

Near death experience in this thread. Fortunately a good outcome, but there's lots to be learned.

Fallen774, God bless you. Don't come back to this forum, cause you'll be living life. Congratulations man.

Did some one jus die
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Posted on Nov 23, 2020, 10:05 pm
#120
Quote from: Gman23 on November 23, 2020, 09:58:55 PMDid some one jus die

No, he is alive. He almost died. But he is alive.
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