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8cm on femurs - Dr. Mahboubian

F
fallen774
Member
Posts: 39
Joined: Dec 2017
Posted on Jun 26, 2018, 2:44 am
#81
I made this video right after stopping lengthening, in which I take a few steps unaided. This is how my gait was looking like 4 days ago, on June 21st (I stopped lengthening on June 20th). If you pay attention you can notice my legs are sometimes swinging in a circular motion. That's because I'm adapting to my new way of walking now since I had my femurs rotated inwards during surgery to fix a problem that I had. I think my gait overall looks ok for only 1 day after stopping lengthening, but I'm still using my arms a lot to keep balance. Hopefully, I'll improve it soon.

https://vimeo.com/277002921
Password: ll

And yeah, I didn't get cleared out to full weight bear, it should happen on the first or second week of July. Yet, I know that my weight went down from 145lbs to ~120lbs and, after being on the walker for almost 3 months and getting to know my body and how much I could handle, I felt comfortable to try that for just a few seconds. Also, AFAIK 75lbs per rod is a conservative limit, but from my experience it supports more than that, but not too much. I felt it supported me and that's why I tried. Still, I don't recommend trying until you get the OK. I'll still wait to be cleared out in order to walk full weight bearing and then I'll shoot another vid. Hope you guys enjoy the rainbow glasses and #happypride  8cm on femurs - Dr. Mahboubian
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F
FormerKidd
Member
Posts: 483
Joined: Jan 2018
Posted on Jun 26, 2018, 2:59 am
#82
Very nice!

Quote from: fallen774 on June 26, 2018, 02:44:54 AMAnd yeah, I didn't get cleared out to full weight bear, it should happen on the first or second week of July. Yet, I know that my weight went down from 145lbs to ~120lbs and the titanium rods can support more than that. I'll still wait to be cleared out in order to walk long distances full weight bearing and then I'll shoot another vid.

You're using the PRECICE 2, right?  I thought the largest nail could only do 75lbs?
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F
fallen774
Member
Posts: 211
Joined: Dec 2017
Posted on Jun 26, 2018, 3:05 am
#83
Quote from: FormerKidd on June 26, 2018, 02:59:24 AMVery nice!

You're using the PRECICE 2, right?  I thought the largest nail could only do 75lbs?

Yes, that's the limit doctors give, so don't be like me!
(I rewrote my previous post so it explains more about the limit and why I tried, but I don't recommend trying unless you feel safe like I did)
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T
totallyred
Member
Posts: 469
Joined: May 2018
Posted on Jun 26, 2018, 11:25 am
#84
Quote from: fallen774 on June 26, 2018, 02:44:54 AMI made this video right after stopping lengthening, in which I take a few steps unaided. This is how my gait was looking like 4 days ago, on June 21st (I stopped lengthening on June 20th). If you pay attention you can notice my legs are sometimes swinging in a circular motion. That's because I'm adapting to my new way of walking now since I had my femurs rotated inwards during surgery to fix a problem that I had. I think my gait overall looks ok for only 1 day after stopping lengthening, but I'm still using my arms a lot to keep balance. Hopefully, I'll improve it soon.

https://vimeo.com/277002921
Password: ll

And yeah, I didn't get cleared out to full weight bear, it should happen on the first or second week of July. Yet, I know that my weight went down from 145lbs to ~120lbs and, after being on the walker for almost 3 months and getting to know my body and how much I could handle, I felt comfortable to try that for just a few seconds. Also, AFAIK 75lbs per rod is a conservative limit, but from my experience it supports more than that, but not too much. I felt it supported me and that's why I tried. Still, I don't recommend trying until you get the OK. I'll still wait to be cleared out in order to walk full weight bearing and then I'll shoot another vid. Hope you guys enjoy the rainbow glasses and #happypride  8cm on femurs - Dr. Mahboubian

Can you please tell what exactly does weight bearing nails do which non-weight bearing would not do.
  Do they help in early lengthening and fast rehabilitation?
Can a person walk unaided even during lengthening?
Do they cause lesser loss of muscle mass?
I am asking this question to assess how better precice 3 would be compared to precice 2. If you can comment on that, it would be very helpful.
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O
OverrideYourGenetics
Member
Posts: 423
Joined: Sep 2017
Posted on Jun 27, 2018, 4:46 am
#85
Quote from: totallyred on June 26, 2018, 11:25:33 AMI am asking this question to assess how better precice 3 would be compared to precice 2. If you can comment on that, it would be very helpful.

PRECICE 3 (actually branded STRYDE) enables patients to walk during lengthening. The first STRYDE patient, whom I met at the Paley Institute in May, is now walking unaided, 4 weeks post-op.

8cm on femurs - Dr. Mahboubian
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T
totallyred
Member
Posts: 498
Joined: May 2018
Posted on Jun 27, 2018, 6:44 am
#86
Quote from: OverrideYourGenetics on June 27, 2018, 04:46:26 AMPRECICE 3 (actually branded STRYDE) enables patients to walk during lengthening. The first STRYDE patient, whom I met at the Paley Institute in May, is now walking unaided, 4 weeks post-op.

8cm on femurs - Dr. Mahboubian

Did you post any pic/video in the post? If you did it's not visible/opening.
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T
Time4LL
Member
Posts: 252
Joined: Oct 2013
Posted on Jun 27, 2018, 12:27 pm
#87
How was the Stryde patient’s walking? Probably pretty slow at this point? That is great to hear! Thanks for updating us on him.
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M
myloginacc
Member
Posts: 441
Joined: May 2018
Posted on Jun 27, 2018, 10:34 pm
#88
Quote from: fallen774 on June 26, 2018, 02:44:54 AMI made this video right after stopping lengthening, in which I take a few steps unaided. This is how my gait was looking like 4 days ago, on June 21st (I stopped lengthening on June 20th). If you pay attention you can notice my legs are sometimes swinging in a circular motion. That's because I'm adapting to my new way of walking now since I had my femurs rotated inwards during surgery to fix a problem that I had. I think my gait overall looks ok for only 1 day after stopping lengthening, but I'm still using my arms a lot to keep balance. Hopefully, I'll improve it soon.

https://vimeo.com/277002921
Password:

And yeah, I didn't get cleared out to full weight bear, it should happen on the first or second week of July. Yet, I know that my weight went down from 145lbs to ~120lbs and, after being on the walker for almost 3 months and getting to know my body and how much I could handle, I felt comfortable to try that for just a few seconds. Also, AFAIK 75lbs per rod is a conservative limit, but from my experience it supports more than that, but not too much. I felt it supported me and that's why I tried. Still, I don't recommend trying until you get the OK. I'll still wait to be cleared out in order to walk full weight bearing and then I'll shoot another vid. Hope you guys enjoy the rainbow glasses and #happypride  8cm on femurs - Dr. Mahboubian

So glad to see you up and walking, despite the gait and everything else, and even if only for this vid. Thanks for sharing it.

And wow, it doesn't even look you lengthened your legs to me! Your torso still seems bigger, or at least 50% of your height.
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J
jwjw1969715
Member
Posts: 268
Joined: Apr 2018
Posted on Jun 28, 2018, 3:20 am
#89
He is taller for sure, but the shirt makes his torso look longer. I'm glad to see him making progress every day.
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F
fallen774
Member
Posts: 328
Joined: Dec 2017
Posted on Jun 28, 2018, 5:16 am
#90
1 week post-lengthening

Hey there, just to give a quick update 1 week after I stopped lengthening:
- the nerve pain on my left lower leg is 90% gone. I didn't take Gabapentin for the past 3 days so I think it's definitely gonna be 100% better soon.
- I'm regaining sensation on my left lower leg. I can feel it again when someone touches it and I have my eyes closed (I couldn't before) and I feel it's improving fast day by day.
- I'm only taking Xarelto (blood thinner for the clots) and the supplements (Vitamin D3 and Calcium), no pain killers, not even Tylenol
- No pain overall, average 0/10 throughout the day BUT, when I'm seated for more than 30 minutes and I get up, I feel a little stiff on the hamstrings, but it goes away after a few seconds. Definitely getting better too. I also felt some pain in my hips when walking but it comes and goes, and it's decreasing too.
- PT still 5x a week, I don't think it's necessary but I'll do anything that might help.
- Germany 0 x 2 South Korea  8cm on femurs - Dr. Mahboubian 8cm on femurs - Dr. Mahboubian 8cm on femurs - Dr. Mahboubian

So yeah, now I'm left with treating the blood clots and hopefully by the end I'll have dealt with every complication I had during recovery.
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