Wanna to know have anyone regret of doing CLL?
Any advice to prospective patients?
If I can afford enough money with premium surgeon, do u guys recommend a caring surgeon.
I am considering Dr Assayag, Dr Paley and Dr Lee. Please give me some opinions.
I have no regrets from doing LL. It's the best decision I've ever made.
Every doctor you listed is very credible. I would definitely add Dr. Rozbruch to that list. Along with Dr. Paley, he is considered the best in the world at this procedure. I can tell you from personal experience that he very much cares about his patients, and his team is top-notch. He is also the head of orthopedics at arguably the best orthopedic hospital in the world (HSS).
You're on the right track. Do not compromise on Dr. quality, and using the right nail (Precise 2.2 is the best available on the market as of now). I would consult with all of them, and then decide where to do the surgery. In Asia, Dr. Lee is obviously the first choice. In the US, it depends on whether you would be more comfortable on your own or prefer to stay locally, which Drs. Paley and Assayag require. For me, Dr. Rozbruch's approach to PT, his patient demeanor, and the fact that I could go home and be in an environment that was more conducive for me to thrive in sealed the decision.
But really, you can't go wrong with any of those doctors. Have a healthy diet and good Vitamin D and Calcium levels before the surgery, take the recommended supplements and eat lots of protein, and follow the Dr.'s protocols to the letter, and you will have a successful outcome.
Quote from: uponly on April 19, 2023, 05:48:28 PMI have no regrets from doing LL. It's the best decision I've ever made.
Every doctor you listed is very credible. I would definitely add Dr. Rozbruch to that list. Along with Dr. Paley, he is considered the best in the world at this procedure. I can tell you from personal experience that he very much cares about his patients, and his team is top-notch. He is also the head of orthopedics at arguably the best orthopedic hospital in the world (HSS).
You're on the right track. Do not compromise on Dr. quality, and using the right nail (Precise 2.2 is the best available on the market as of now). I would consult with all of them, and then decide where to do the surgery. In Asia, Dr. Lee is obviously the first choice. In the US, it depends on whether you would be more comfortable on your own or prefer to stay locally, which Drs. Paley and Assayag require. For me, Dr. Rozbruch's approach to PT, his patient demeanor, and the fact that I could go home and be in an environment that was more conducive for me to thrive in sealed the decision.
But really, you can't go wrong with any of those doctors. Have a healthy diet and good Vitamin D and Calcium levels before the surgery, take the recommended supplements and eat lots of protein, and follow the Dr.'s protocols to the letter, and you will have a successful outcome.
Thanks a lot!
Your advice helps me a lot. Yes, Dr R is one of the best. I have already contacted Dr Donghoon Lee. His staff said” Since a lot of international patients ask for more availability for surgery, Dr. Lee has created another operation room and more facilities; therfore, you can make an appointment even this year if you want.” It is so good! I watched most of videos in Dr Lee’s YouTube channel. I think he is a caring and experienced doctor. I also contacted Dr Paley’s staff. The cost of Paley institute includes PT sessions, it is 5 sessions per week during lengthening phase. He has a reliable PT team.
After I talked with them, I believe that I can’t go wrong with those great doctors and PT.
What is the average wait time on docs in USA? Do most docs require you to book surgery a year+ in advance?
Quote from: tempthrowaway on April 20, 2023, 05:14:44 PMWhat is the average wait time on docs in USA? Do most docs require you to book surgery a year+ in advance?
I have already asked the Paley institute’s staff, they said 2-3 months in advance.
Quote from: Yau on April 21, 2023, 02:31:16 PMI have already asked the Paley institute’s staff, they said 2-3 months in advance.
That’s not too bad. Thanks
No regrets. One of the best things I did in my life. Bilateral femurs with Paley about a year ago
Quote from: tallerwouldbenice on April 24, 2023, 09:48:59 AMNo regrets. One of the best things I did in my life. Bilateral femurs with Paley about a year ago
After 1 year, how is your current recovery condition? Do u walk normal? Do u try running or playing sports? While u have stayed in WPB, other patients in Paley institute s also did well?
There are many patients with CLL. Most do not publish diaries. As long as you don't experience complications, you will never regret it. Some people have 2 surgeries and they are out of proportion, so there are those who regret it.
Quote from: Yau on April 24, 2023, 12:42:39 PMAfter 1 year, how is your current recovery condition? Do u walk normal? Do u try running or playing sports? While u have stayed in WPB, other patients in Paley institute s also did well?
Recovery very good. I have lost a ton of flexibility, but I don't care. It might come back, it might not. I never wanted to run marathons anyway
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