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Posted on May 16, 2014, 1:25 am
#111

Quote from: BilateralDamage on May 15, 2014, 09:58:59 PMPaley's exact words:

It sounds like it is possible but he's highly against it.  I'm inclined to agree with him and will stick with what I have.  But I'm sure he'll allow it if you're still interested.  Email him to find out the costs saved.
I wonder if he'd be more ok with me doing a month with the specialist PT's, me seeing exactly what needs to be done, and using my 60 outcalls to get PT done with me guiding them.

I think I will set up that consultation once I hear back from him and see what he thinks is the best strategy.

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Posted on May 16, 2014, 1:29 am
#112

double post

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Posted on May 16, 2014, 2:42 am
#113

My conversation with Dr. Paley about this topic during my consultation...

Me: My plan is to lengthen at home. I'd feel more comfortable being at home and having my family there to help me.

Dr. Paley: We prefer our patients to stay here in West Palm Beach during the lengthening as it provides the safest atmosphere for the patient, but If you want to go home then we have some safety guidelines you have to follow. After surgery you have to stay here in Florida for 2 weeks. During those 2 weeks we will record your physical therapy sessions so you can bring those recordings back home with you and show your physical therapist. When you leave Florida you will have a prescription for your physical therapy. Along with your physical therapy you will have to stretch 2-3 times per day on your own. You will also have to return here to Florida every 2 weeks for x-rays and check ups with me during your lengthening. If you are not willing to follow these guidelines I will not perform surgery on you.   

It's a very straightforward, no nonsense, safety first approach with Dr. Paley. It probably would be better for me to have PT with therapists at the Paley Institute, but I really want to lengthen at home and the $15,000+ saved on PT and accommodation fees is just an added bonus.

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Posted on May 25, 2014, 12:33 am
#114

Hey BD, how are you feeling as the days draw closer to your surgery date? Getting nervous? Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley

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Posted on May 25, 2014, 4:24 am
#115

Quote from: Kilokahn on May 25, 2014, 12:33:43 AMHey BD, how are you feeling as the days draw closer to your surgery date? Getting nervous? Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley

A tad nervous but most of all... this is feeling more real than anything!  I already had my car shipped and on Monday, I'm finally flying down to Florida and moving into the Homewood Suites.  Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley  I'm excited but also a little weary of just how difficult it will be not to have the full standing and walking capabilities of my legs for the next few months.. I have a few meetings I'll be flying out for so I'm crossing my fingers that I'll be functional enough for them (and the flights).  Right now, I'm not taking for granted any little things my legs do (like being able to jog to the bathroom when I really need to use it! Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley)

To add some more notes on sentiment before surgery, I was very nervous about my family finding out about my LL.  My family likes to keep track of everything I do, so I had to construe a lot of deceitful stories to make me leaving the state for the summer make sense.  They ate it all up and I'm in the clear, but it does feel wrong of me for lying to them.  I had considered coming out and telling them all about my surgery, but I realized the price saved in living costs and support I'll receive isn't worth the life long judgment I'll face.  When I'm dating girlfriends, marrying, having kids, towering over family, etc.. they'll know in the back of their minds it's a lie.  To me, it makes sense that I'm doing this surgery, but to them, they'll never fully comprehend.  So I'm on this one alone!

As far as loneliness goes, I've always been both an extrovert and a person who really takes solace in his personal space.  So I'm not worried about getting lonely this summer.  Also, I'm really excited for the change of scenery.  Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley  I'm viewing this summer as an opportunity not only to improve both physically and the way I perceive myself, but as also an opportunity to meet new people and enjoy the summer sun.

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Posted on May 25, 2014, 5:51 am
#116

When is your surgery?  Most of my family lives in other states so I shouldn't have a problem disappearing for a few months as long as I can call them.  But I plan on doing 7 cms and I think they may notice that when I see them.

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Posted on May 25, 2014, 6:08 am
#117

Quote from: Blackhawk on May 25, 2014, 05:51:54 AMWhen is your surgery?  Most of my family lives in other states so I shouldn't have a problem disappearing for a few months as long as I can call them.  But I plan on doing 7 cms and I think they may notice that when I see them.

This Thursday!!!  Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley

My pre-OP consult is on Wednesday, where I'll also find out my exact surgery time.

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Posted on May 25, 2014, 6:16 am
#118

That's exciting!!  Congrats and best of luck to you!

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Posted on May 25, 2014, 8:57 pm
#119

How'd you go about scheduling your consult? I tried the online form but it doesn't seem to have worked.

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Posted on May 29, 2014, 12:01 am
#120

Quote from: Blackhawk on May 25, 2014, 06:16:03 AMThat's exciting!!  Congrats and best of luck to you!

Cheers!

Quote from: programdude on May 25, 2014, 08:57:29 PMHow'd you go about scheduling your consult? I tried the online form but it doesn't seem to have worked.

Try his email or the institute's #.. 561-844-5255

--

and now... Big D's Day Is Here!!

Surgery is tomorrow.  No eating after 12 AM, scheduled to be there by 6 AM tomorrow and my surgery will take place around 8 AM.  I decided to take the epidural route (easier, no side effects like drowsiness that are associated with constant influx of drugs via IV).  I will wake up with probably minimal pain, but eventually the epidural will wear off and I'll apparently feel like I was hit by a truck.  Surprisingly, I'm not worried about the pain.  But I'd be lying if I said I wasn't nervous.  Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley

A few concerns:

  • I'm going to have to leave during the middle of my lengthening for a few meetings in different states.  How will I balance my lengthening and these meetings?  I've yet to figure that out.
  • I have 2 disc herniations in my back that I discussed with Dr. Robb (John) at my pre-op today.  He's worried about them.  They had another patient who had a sciatica that caused her lengthening to be much more painful that it normally would be.  The reason being, in a sciatica, the nerves that are already being compressed (causing pain) are now being stretched, which can possibly result in additional pain.  At my bi-weekly consults, they'll be monitoring how well/poorly my lower back responds to lengthening.  If they think my safety is in danger, they will stop my lengthening.  Do I regret lifting too much and herniating discs?  Hell yes!  Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley

Otherwise, I'm still more excited than ever for my LL journey.  I promise to document anything important for you guys to be aware of.  I also promise to update my diary after my journey is complete.  Not too frequently though, I have to get out and enjoy the height.  Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley

It's been a hectic past few days!  From packing, shipping car, moving to Florida, working at the same time, it's been crazy to say the least.  Right now I'm scrambling to arrange my apartment to be easily accessible for when I'm crippled.  I also stocked up on a lot of microwavable foods and canned goods because I know I'm going to be too lazy to put effort into cooking after surgery.

Wish me luck  Big D is Growing - PRECICE 2 Internal Femurs - Dr. Paley

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