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Posted on Jun 16, 2018, 7:35 pm
#21

Wow, i am surprised that you haven't told anything about your surgery to your family members) if you have enough money, I would suggest you to stay in the hospital during the whole lengthening period
Dr kulesh told me to do first femur with latn method, and second femur with LON method. In this case, I will be under anesthesia 3 times.
Quote from: Pope on June 16, 2018, 04:55:46 PMI’m alone here and only told one person just so they could send me my money through Western Union. I’m at the hospital so the staff here can help me do daily things such as serve me my food, unnecessarily clean my room everyday, empty my pee container, etc. To be honest, my mental health is fine. I’m not depressed or regret anything thus far but I am EXTREMELY BORED lol. As I’ve stated before, this surgery isn’t for everyone but I truly felt this was something I personally could endure.

Yes, staying at the hospital this long even at the municipal clinic definitely adds up but I was financially prepared if I had to do it this way. Lengthening each femur seperately would definitely be many times easier, if you have at least one fully functioning leg while lengthening the other. I’d be 100% sure that I’d be out of the hospital on my own if this was the case. But I have obligations back home so I wouldn’t be able to be gone long enough to lengthen each femur seperately. You can actually lengthen one femur, get the nail in, go home, and come back again to do the other. But the idea of having a discrepancy for that long really bothered me. One alternative Dr. Kulesh suggested doing one leg at a time was:
1st surgery - external fixation for 1st femur
lengthening, correction of the 1st femur
2nd surgery - nailing of 1st femur, external fixation of 2nd femur
lengthening, correction of the 2nd femur
3rd surgery - nailing of 2nd femur

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Posted on Jun 16, 2018, 7:50 pm
#22

Quote from: Tiger9898 on June 16, 2018, 07:35:04 PMWow, i am surprised that you haven't told anything about your surgery to your family members) if you have enough money, I would suggest you to stay in the hospital during the whole lengthening period
Dr kulesh told me to do first femur with latn method, and second femur with LON method. In this case, I will be under anesthesia 3 times.

Yeah I’m really close to my family and friends but after I’ve recovered, this isn’t something I ever want to come up again. Im sure they would respect my wishes not to talk about it but I know that the fact I went through LL will be in the back of their minds. I’m going to update my diary up until I’ve recovered to my liking. But after that point, I don’t ever want to think about LL again or visit this forum lol. Maybe like an update several years later but who knows.

I’m glad you’re lengthening one femur at a time! You’ll definitely have it much easier than doing bilateral and I’ve said it many times - but doing one leg at a time is so much safer in terms of complications. I wish you the best in your journey! Will you be staying is St. Petersburg during the distraction phase or do you plan on going home?

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Posted on Jun 16, 2018, 8:06 pm
#23

Yes, sometimes, it is better to stay away from this forum bcs of some negative comments.  And if I were you, I wouldn't tell anything about this surgery to my family members after recovery. Sometimes, it is better to keep this type of surgery as a secret. I wish i didn't tell about this surgery to my family members and was able to afford it without family support . But at my age, It seems impossible for me
Actually when I was a child, i stayed in the hospital for 7 days and therefore, I know how it is difficult to stay in the hospital for more than a week.  That's why,I want to go back to my country after 15 th days of the surgery.  And unfortunately, i have limited time, I take a gap from University for a year. So, unilateral femur lengthening can be a little bit time consuming. I will make my final decision when I have consultation with Dr Kulesh.  Maybe, i will choose tibia lengthening

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Posted on Jun 16, 2018, 9:59 pm
#24

Quote from: Pope on June 16, 2018, 06:20:28 PMThat’s just the first surgery. It also costs money to do corrections (About 27.000 Rubles). And then you need to have the frames removed (About 70.000 Rubles in the municipal clinic). I also recall that Dr. Parihar offers a package so I believe there’s other things that come with his price. I’m sure even then, it’s still cheaper here. Though, I want to point out that the price is also a lot more when the procedure is done at a private clinic. I’m not sure whether or not doctors will get paid more if they operate there. And although I can’t answer your question, I could give my best opinion based off what I’ve observed. So in Russia, doctors make much less compared to other countries. I haven’t asked my doctors how much they make because thats rude but I’ve had a nurse openly tell me that he only makes about $400 a month and my physical therapist who only makes about $500-$600 a month. This is just to give an idea on how much people here make. I’ve also read that people, on average, make $500 a month here. Another thing I’ve observed was that everything is much cheaper- cost of living like food, transportation, hotels, etc. In the center of the city here I could get a good meal for $5. At the center of NYC it would cost $20+ for a meal equivalent to what I can get in St. Petersburg for $5. I want to again restate that this is just my guess- but I believe it’s a combination of the government, unclear tax guidelines, and the low cost of living.

If I just do external tibia, then I'd only need to pay the installation of the frame and the removal later since it should only be 1 surgery?

That's ridiculously cheap man! How long did you feel you were in coma? From what I've heard, it could be so quick that you wouldn't even realize the sugery has been performed.

Also, can I ask you, in your opinion, which one would be the best option for external tibia, Solomin/Parihar/Giotikas/Mahboubian/Rozbuch?

Thanks so much!

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Posted on Jun 16, 2018, 10:12 pm
#25

Quote from: Bruce Wayne on June 16, 2018, 09:59:14 PMIf I just do external tibia, then I'd only need to pay the installation of the frame and the removal later since it should only be 1 surgery?

That's ridiculously cheap man! How long did you feel you were in coma? From what I've heard, it could be so quick that you wouldn't even realize the sugery has been performed.

Also, can I ask you, in your opinion, which one would be the best option for external tibia, Solomin/Parihar/Giotikas/Mahboubian/Rozbuch?

Thanks so much!
You should also calculae the costs of correction period and otherexpenses like staying in hospital,  x-ray,rebandage change and etc.  Actually, surgery itself seems cheap but bear in mind that it is just the cost of surgery,  extra costs are the things that make it a little bit expensive.  Anyway, it still will be cheaper than Parihar,  Rozbuch,  Catagni and etc

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Posted on Jun 16, 2018, 10:18 pm
#26

Quote from: Tiger9898 on June 16, 2018, 10:12:57 PMYou should also calculae the costs of correction period and otherexpenses like staying in hospital,  x-ray,rebandage change and etc.  Actually, surgery itself seems cheap but bear in mind that it is just the cost of surgery,  extra costs are the things that make it a little bit expensive.  Anyway, it still will be cheaper than Parihar,  Rozbuch,  Catagni and etc

For example, the surgery cost of Catagni alone is over 20k. Of course that doesn't include accomodation, food, etc. The surgery price is practically 10 times more expensive than Solomin. I feel like I am missing something here.

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Posted on Jun 16, 2018, 10:27 pm
#27

I didn't mean especially dr Catagni. For example, as far as I know Dr  Parihar offers special package. Or in other places like Turkey,  x-ray, pre-operative tests, medicine,  5 days stay in hospital include  the price.  But as I said before, it still will be cheaper in Russia if you choose pure ilizarov or LON. If you choose Latn, price will be higher accordingly.  You can get price list from Dr kulesh.  There are various examples to calculate your costs and detailed information about what they offer

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Posted on Jun 17, 2018, 1:23 am
#28

Anyone going to St Petersburg let me know. Im lookin for people so we can share accomodation.

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Posted on Jun 18, 2018, 2:51 pm
#29

Training Knee Flexion ROM

https://imgur.com/a/U6rFQGi

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Posted on Jun 18, 2018, 2:55 pm
#30

Thanks for the picture
Does it hurt too much when you try to bend your legs?

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