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Dr. Alexander Kirienko (Milan, Italy) - Ilizarov Tibia

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Beemer m sport
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Posts: 375
Joined: Oct 2020
Posted on Nov 28, 2023, 4:28 am
#11
i got short arms too. if i do my femurs i'll get to 175 cm . ill be average height . dream height but with short arms. it should be ok really. some guys do quadrillateral legthening and i doubt there arms are long enough. i would forget about the arms and grow the legs another cm if ur close to 170 cm u would feel more confident for sure.
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H
Hobbit99
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Posts: 251
Joined: Mar 2023
Posted on Nov 28, 2023, 3:43 pm
#12
Quote from: Beemer m3 on November 28, 2023, 04:28:45 AMi got short arms too. if i do my femurs i'll get to 175 cm . ill be average height . dream height but with short arms. it should be ok really. some guys do quadrillateral legthening and i doubt there arms are long enough. i would forget about the arms and grow the legs another cm if ur close to 170 cm u would feel more confident for sure.

Proportions is not the only limit but also knee and ankle contractures which are commonly seen over 5cm.
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T
TheDream
Member
Posts: 387
Joined: Apr 2021
Posted on Nov 28, 2023, 5:36 pm
#13
22k euro does not sound bad. Are you handling all of the lengthening and recovery on your own, and then visit Villa Stuart for PT and x-rays? Or did the doctor just give you exercises to do by yourself while lengthening?

I was just thinking it must be difficult alone especially with externals.
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Hobbit99
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Posts: 194
Joined: Mar 2023
Posted on Nov 28, 2023, 5:53 pm
#14
I do the lengthening by myself by adjusting some bolts 4 time/day.
I go to villa stuart every 2 weeks (even if I’ve been operated in milan because the surgery was less expensive there) just for xrays and doctor appointments. The Doctor check my xrays, ability to stand and walk, ability to extend the knee and flex the ankle and so on.
You don’t need to do physical therapy at villa stuart, every physiotherapist should do the work.

I choose a physiotherapist that comes to my home 3 times/week as suggested by the doctor. I need to walk and bear weigt a lot with the help of the physiotherapist because weight bearing stimulates bone growth. I also need to do stretch my knee and ankles a lot, even when I’m alone.
My foot is always flexed to prevent equinous. My knee should always be flexed but I can’t bear the pain especially when trying to sleep at night, so I sleep with flexed legs. Doctor says it’s ok IF I do a lot of stretching during the day with and without the physiotherapist.

Edit: here you have a photo of my fixators

 Dr. Alexander Kirienko (Milan, Italy) - Ilizarov Tibia



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TheDream
Member
Posts: 284
Joined: Apr 2021
Posted on Nov 28, 2023, 6:05 pm
#15
Respect. That’s a tough thing to organize and do everything yourself especially with externals.
What do people like the physio and doctors at Villa Stuart say when they hear it is LL? Are they judgemental at all?
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H
Hobbit99
Member
Posts: 216
Joined: Mar 2023
Posted on Nov 28, 2023, 6:11 pm
#16
When I go to villa stuart waiting for my appointment everyone has at least one fixators. Mostly in one leg. Two legs is mostly for cosmetic reasons ( height or deformities  ). Just one patient asked me if I had a car accident. I said “no” and the conversation stopped there.
My classmates at university know about everything because I made some instagram stories. I don’t care what people think and I thought it could be interesting especially because we are medical students.
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L
limby101
Member
Posts: 172
Joined: Jul 2017
Posted on Nov 28, 2023, 6:42 pm
#17
Hey.
Can you describe your pins structure?
Like, how many pins, which type (thick or wire like), and where are they located?
I had three large ones on each side of the fracture, and two thin ones on both ends (around the ankle and near the knee).

And how are you feeling?
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Hobbit99
Member
Posts: 289
Joined: Mar 2023
Posted on Nov 28, 2023, 7:32 pm
#18
I have 4 large pins for every leg. 2 near the knee and 2 near the ankle. And about 10 small pins, 5 near the knee and 5 near the ankle. My fixator only has 2 rings as you can see in the photo.

I'm feeling not very well because I'm stuck at home. It's more a psychological thing rather than pain. But it's a trade off to be taller.
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T
TheDream
Member
Posts: 307
Joined: Apr 2021
Posted on Nov 28, 2023, 8:03 pm
#19
Quote from: Hobbit99 on November 28, 2023, 06:11:58 PMWhen I go to villa stuart waiting for my appointment everyone has at least one fixators. Mostly in one leg. Two legs is mostly for cosmetic reasons ( height or deformities  ). Just one patient asked me if I had a car accident. I said “no” and the conversation stopped there.
My classmates at university know about everything because I made some instagram stories. I don’t care what people think and I thought it could be interesting especially because we are medical students.
Respect for your courage and ability to organize the whole thing yourself.
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H
Hobbit99
Member
Posts: 125
Joined: Mar 2023
Posted on Nov 28, 2023, 9:09 pm
#20
Quote from: TheDream on November 28, 2023, 08:03:23 PMRespect for your courage and ability to organize the whole thing yourself.

I thought this was the standard. Do many other surgeons offer to stay at the clinic for the whole lenthening process? I think it’s better to stay at home. At least I have my pc
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