Thanks (GOOD) Vibes! 
Thanks L8GrowthSpurt =) I'll checkout your PM, and all other PMs tomorrow once I have laptop access.
Lengthening Day1 and Day2 Update:
Total Lengthened 0.2*4 + 0.2*4 = 1.6mm
Both yesterday and today have been okay so far. I had to take 2 oxys yesterday and zero oxys today (Note that I am also on meloxicam 1x a day which helps with pain)
Same routine: was able to shower, move in out of bed, move in out of wheelchair and use the restroom independently. (However I needed my brothers help to get me up on the bed the last time, my legs were too tired).
I signed in to my work account and cancelled my vacation, yes I am planning to start work tomorrow. I have realized that I am watching Shameless for more than 9 hours a day in a single position, so I am just going to work for those 9 hours instead in the same position, nothing changes. The other 15 hours shall be used for PT, moving, sleeping, cribbing (
)
I did have some pain on my upper left femur yesterday due to rotating yesterday, so I have not rotated yet and I am planning to defer that exercise to mornings 9:00 am so that meloxicam (10am) helps take care of that pain.
On 2/3 I lengthened at 2:00 pm, 5:00 pm, 8:00 pm and 11:00 pm.
On 2/4 I lengthened at 12:00 pm, 3pm, 6pm and 11:30pm(pending)
Pain after lengthenting was Nil, but I am assuming that this is just the beginning and as lengthening increases so will the pain.
I have decided to fly from NYC back to Redmond on 2/18 after my first post op appointment on 2/16. The plan after that is to have alternate appointments (virtual and in-person) for the next 3 months. The hospital next to my house in redmond as reasonable employee discounts for radiology. I am also planning to buy some sort of special chair which will allow me to orient my legs in whichever way I want while working once I reach back. You guys can save a lot of money by not staying in a hotel in NYC and also having someone to help you here. The rates for everything are crazy and I just order food worth 40 bucks everyday for me and my brother. Once I move to redmond I'll save a lot of money, have more room to move around and not be stuck in a hotel room, have 3 monitors to work on and do justice to the eye, and will also have much comfortable mattresses and chairs to live on.
Right now, one minor hiccup is that I am not able to flex my knee to 90 degrees -- sitting (which Dr. Rozbruch says I should be able to) so I am constantly working on that. The hope is that with more work, and more chair time this will improve.
The other issue is my constipation
I need the regular dose of senna that HSS ordered + Miralax -- 1 adult dose which the hospital recommended in case the senna is not enough. I hope this will improve once I move around more and sit up more during work.
I spent roughly 2 hours on a wheelchair today, trimmed my beard, shaved, and just moved around in the hotel room trying to arrange my stuff/make coffee without my brothers help. My plan is to not walk unaided and not even try until my first post op appointment i.e. 2/16.
Regarding money, I see a charge on my insurance but the claim has not been processed yet. Will let you guys know asap regarding my resposibility + insurance cover. So far 30K has gone out of pocket which was the initial deposit for the surgery.
Dr. Rozbruch stryde 27th Jan 2021!
I had some questions for the fellow senior members:
Question 1: I have not started any formal PT and am planning to see how I progress with self PT till 2/16. Will post an update if dr. Rozbruch feels my PT was not good enough and recommends professional help. My discharge summary does not say "I need professional PT, and just says the exercises I should do (these are all available on Dr. Rozbruch's website)". So I am going with that for now, In case any of you feel professional PT is better, please reply here on how and why.
Question 2: When I use the ERC, i don't feel a thing till 0.15mm, but at 0.16mm - 0.20mm I feel a weird click in my legs is that normal? Should this be happening throughout the 0.2mm, just want to make sure that magnets are oriented correctly.
Question 3: Can we take the ERC in a flight?
I had some questions for the fellow senior members:
Question 1: I have not started any formal PT and am planning to see how I progress with self PT till 2/16. Will post an update if dr. Rozbruch feels my PT was not good enough and recommends professional help. My discharge summary does not say "I need professional PT, and just says the exercises I should do (these are all available on Dr. Rozbruch's website)". So I am going with that for now, In case any of you feel professional PT is better, please reply here on how and why.
Question 2: When I use the ERC, i don't feel a thing till 0.15mm, but at 0.16mm - 0.20mm I feel a weird click in my legs is that normal? Should this be happening throughout the 0.2mm, just want to make sure that magnets are oriented correctly.
Question 3: Can we take the ERC in a flight?
Quote from: Chemistryde on February 05, 2021, 04:04:25 AMI had some questions for the fellow senior members:
Question 1: I have not started any formal PT and am planning to see how I progress with self PT till 2/16. Will post an update if dr. Rozbruch feels my PT was not good enough and recommends professional help. My discharge summary does not say "I need professional PT, and just says the exercises I should do (these are all available on Dr. Rozbruch's website)". So I am going with that for now, In case any of you feel professional PT is better, please reply here on how and why.
Question 2: When I use the ERC, i don't feel a thing till 0.15mm, but at 0.16mm - 0.20mm I feel a weird click in my legs is that normal? Should this be happening throughout the 0.2mm, just want to make sure that magnets are oriented correctly.
Question 3: Can we take the ERC in a flight?
1) Definitely get professional PT and stick to it until you are back to a high level. I stopped PT when I was able to walk again, looking back I wish I had continued.
2) The only way to know if it is working correctly is by X-ray. I felt weird clicks and stuff too when the nail was working and even when the nail stopped working.
Quote from: 6CMFemurs on February 05, 2021, 04:46:48 AM2) The only way to know if it is working correctly is by X-ray. I felt weird clicks and stuff too when the nail was working and even when the nail stopped working.
I see, what happened to it and why did it stop working? Were you able to correct with an office visit or was it something more complicated like premature consolidation or something that needed a follow up surgery like nail replacement?
X-rays, yeah I am scheduled for every 2 weeks. Fingers crossed.
Quote from: Chemistryde on February 05, 2021, 04:04:25 AMI had some questions for the fellow senior members:
Question 1: I have not started any formal PT and am planning to see how I progress with self PT till 2/16. Will post an update if dr. Rozbruch feels my PT was not good enough and recommends professional help. My discharge summary does not say "I need professional PT, and just says the exercises I should do (these are all available on Dr. Rozbruch's website)". So I am going with that for now, In case any of you feel professional PT is better, please reply here on how and why.
Question 2: When I use the ERC, i don't feel a thing till 0.15mm, but at 0.16mm - 0.20mm I feel a weird click in my legs is that normal? Should this be happening throughout the 0.2mm, just want to make sure that magnets are oriented correctly.
Question 3: Can we take the ERC in a flight?
1. Get PT. They can stretch you better than you can stretch yourself. They also have all the proper equipment for you to do your stretches and workouts, and they can help point out where you need more work. The exercises and stretches that I've been doing have changed over the course of lengthening as my body recovers.
2. Mine would make clicking sounds while lengthening sometimes (very infrequently) but usually did not. I'm sure I had it in the right position because the ERC was green and I was pushing it into my leg pretty hard. My ERC has been very accurate so far. I think the clicking sounds were most frequent right at the start of lengthening.
3. Yes, as a checked bag. The cost should be free as well since you can check it as a medical device. If you're concerned, you can reach out to your Nuvasive rep to get a certificate that says it's approved for flights. After I flew home with mine, I didn't bring it on any of my return visits.
Thanks below the mean!
Quick question: weighing in the covid risk with PT, is it okay to wait it out till 2/16 and see progress? Or are these 2 weeks also super crucial?
Regarding ERC, thanks man! He did give me that form yesterday. Looks like I'm all set to fly with it!
Quote from: Chemistryde on February 05, 2021, 05:52:13 AMI see, what happened to it and why did it stop working? Were you able to correct with an office visit or was it something more complicated like premature consolidation or something that needed a follow up surgery like nail replacement?
X-rays, yeah I am scheduled for every 2 weeks. Fingers crossed.
You should be fine. Mine only stopped working when I tried to re-lengthen years later.
Quote from: Chemistryde on February 05, 2021, 04:04:25 AMI had some questions for the fellow senior members:
Question 1: I have not started any formal PT and am planning to see how I progress with self PT till 2/16. Will post an update if dr. Rozbruch feels my PT was not good enough and recommends professional help. My discharge summary does not say "I need professional PT, and just says the exercises I should do (these are all available on Dr. Rozbruch's website)". So I am going with that for now, In case any of you feel professional PT is better, please reply here on how and why.
Question 2: When I use the ERC, i don't feel a thing till 0.15mm, but at 0.16mm - 0.20mm I feel a weird click in my legs is that normal? Should this be happening throughout the 0.2mm, just want to make sure that magnets are oriented correctly.
Question 3: Can we take the ERC in a flight?
Regarding your second question.
Im also in my lengthening phase ( 3,00mm) right now. I do 0,5mm twice a day. I dont feel anything while lengthening. There is a clicking sound but it comes from the device. I hope the lengthening is happening correctly. My first x Rays will be made in 5 days. On the otherhand my legs get stiffer after the lengthening. So it should work correctly. Finger crossed
Quick question, you said earlier you had 15 degrees of femoral retroversion pre-op. Less than 8 degrees of anteversion means that you are retroverted. For example, I am in the 0-5 degree range of anteversion and I am pretty retroverted (i.e. I out toe severely/duckfooted gait). Before the surgery were you an additional 15-20 degrees more retroverted than I am? If so, what was your gait/stance like?
You must be logged in to post a reply.