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Experiences with Dr. Peter Thaler (Berlin, GER) ?

R
RealLostSoul
Member
Posts: 51
Joined: Dec 2020
Posted on Apr 21, 2021, 7:35 pm
#31
Two things, first, did you actually go through with it? I don‘t know the surgeon maybe he is great but I wouldn‘t feel safe going with an unknown surgeon especially for quadrilateral but who knows take this with a grain of salt.
Second, @ghkid, Paley actually told me his option 3 is very popular (quadri) and he didn‘t try to talk me out of it or anything he thinks it‘s quite safe. However, I actually rather want to do femurs first now after talking to other doctors and reading diaries. I think it‘s too hard to do for me especially with precice2.
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S
Siegfried
Member
Posts: 95
Joined: Nov 2019
Posted on Apr 29, 2021, 8:32 am
#32
nope i decided to go with köhne and then stryde got recalled. Probably going for surgery in september. One Leg for febur and tibia simultaneously, since its precice 2. Probably will be able to do the second leg with stryde 6 months later.
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S
Siegfried
Member
Posts: 407
Joined: Nov 2019
Posted on Apr 29, 2021, 8:32 am
#33
nope i decided to go with köhne and then stryde got recalled. Probably going for surgery in september. One Leg for febur and tibia simultaneously, since its precice 2. Probably will be able to do the second leg with stryde 6 months later.
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W
Want-3-inches
Member
Posts: 325
Joined: Apr 2021
Posted on Apr 29, 2021, 12:06 pm
#34
Quote from: Siegfried on April 29, 2021, 08:32:44 AMnope i decided to go with köhne and then stryde got recalled. Probably going for surgery in september. One Leg for febur and tibia simultaneously, since its precice 2. Probably will be able to do the second leg with stryde 6 months later.

You will create a 10cm discrepancy from both segments and then hope it fix it later? That's crazy dude. What if for some reason you can't lengthen the other side.
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S
Siegfried
Member
Posts: 18
Joined: Nov 2019
Posted on May 4, 2021, 8:28 pm
#35
Quote from: Want-3-inches on April 29, 2021, 12:06:35 PMYou will create a 10cm discrepancy from both segments and then hope it fix it later? That's crazy dude. What if for some reason you can't lengthen the other side.

What would be potential reasons for that to happen?
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W
Want-3-inches
Member
Posts: 257
Joined: Apr 2021
Posted on May 4, 2021, 8:33 pm
#36
Quote from: Siegfried on May 04, 2021, 08:28:20 PMWhat would be potential reasons for that to happen?

nerve pain, infection, preconsolidation, non-union
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A
Ahd1978
Member
Posts: 432
Joined: Apr 2021
Posted on May 4, 2021, 8:43 pm
#37
I had same sentiments was adamant I wanna do both

Paley convinced me out of it

Now with just femurs alone I have narrowly escaped death from fat embolism a dvt scare from dimmer levels an intense GERD acid reflux jn lungs from all pain killers.

On top of that my heart muscles have been pushed so hard to adjust to new 7 cm it’s now enlarging my aorta

And I was a proper athlete I learnt tennis in 6 months and excelled to play almost with professionals.

It’s not about our achievements and just mind set.

It’s your organs too. None of docs focus on hypertrophy of heart

But remember body will adjust to new organs. But if u push it too much not only will they collapse but complications will worsen.

I am already mentally broken 3.5 months in with STRYDE and can’t wait to end distraction and call it a day.

This surgery is no joke.

If I speak constantly on call for 30 min I run out of breath.

And I thought this would never happen to me.

So respect your body and your life
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R
RealLostSoul
Member
Posts: 112
Joined: Dec 2020
Posted on May 4, 2021, 9:48 pm
#38
Quote from: Ahd1978 on May 04, 2021, 08:43:03 PMI had same sentiments was adamant I wanna do both

Paley convinced me out of it

Now with just femurs alone I have narrowly escaped death from fat embolism a dvt scare from dimmer levels an intense GERD acid reflux jn lungs from all pain killers.

On top of that my heart muscles have been pushed so hard to adjust to new 7 cm it’s now enlarging my aorta

And I was a proper athlete I learnt tennis in 6 months and excelled to play almost with professionals.

It’s not about our achievements and just mind set.

It’s your organs too. None of docs focus on hypertrophy of heart

But remember body will adjust to new organs. But if u push it too much not only will they collapse but complications will worsen.

I am already mentally broken 3.5 months in with STRYDE and can’t wait to end distraction and call it a day.

This surgery is no joke.

If I speak constantly on call for 30 min I run out of breath.

And I thought this would never happen to me.

So respect your body and your life

You are really the first one to ever experience heart problems due to LL. What does Paley say about this I mean he is a very great doctor he must give you an explanation and maybe a solution..
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S
Siegfried
Member
Posts: 42
Joined: Nov 2019
Posted on May 4, 2021, 9:56 pm
#39
Quote from: Want-3-inches on May 04, 2021, 08:33:04 PMnerve pain, infection, preconsolidation, non-union

If anything goes wrong, worst case would be having to rebreak the bone a few months later and continue the lengthening. Mal union is very unlikely in my case. 26 year old athlete here.

Obviously I would have preferred stryde! I was scheduled for February and 1 week before my surgery stryde was recalled. I can’t put my life on hold any longer and need to get this done asap .

Before stryde came out in 2019, Köhne did all cases one leg at a time with precise 2, so that patients are mobile with crutches from the first day on. Since I would need 2 surgery’s for tibia + femur anyway, it does not really make a difference for me.
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W
Want-3-inches
Member
Posts: 461
Joined: Apr 2021
Posted on May 28, 2021, 5:18 am
#40
Quote from: Siegfried on May 04, 2021, 09:56:36 PMIf anything goes wrong, worst case would be having to rebreak the bone a few months later and continue the lengthening. Mal union is very unlikely in my case. 26 year old athlete here.

Obviously I would have preferred stryde! I was scheduled for February and 1 week before my surgery stryde was recalled. I can’t put my life on hold any longer and need to get this done asap .

Before stryde came out in 2019, Köhne did all cases one leg at a time with precise 2, so that patients are mobile with crutches from the first day on. Since I would need 2 surgery’s for tibia + femur anyway, it does not really make a difference for me.

How much time gap did Köhne recommend between the 2 sides for say, 8cm?
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