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Posted on May 20, 2018, 9:10 pm
#211

Quote from: FormerKidd on May 20, 2018, 08:54:46 PMHey Puru,

I hope to begin consolidation soon.  I didn't see too much from you in the interim, do you have any advice/suggestions for that phase?  You were cleared to walk after six weeks, correct?  How long did it take you to be able to bend your knees fully again and pull them to your chest, .etc?

Hey FormerKidd, congratulations! The biggest thing I would say is, be patient. Don't push your body more than what the doctor authorizes. I started consolidating on Dec 1 and I was walking w.o crutches on I believe Jan 24 (I don't remember exactly, I'll have to look it up on this diary itself).

I slacked a bit on my flexibility exercises. I still can't bend my knees fully (but pretty close). I still can't pull them fully onto my chest. That being said, the others in my cohort got back to full flexibility BEFORE their bones consolidated. My consolidation was relatively quick, but my flexibility recovery was not as quick.

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Posted on May 20, 2018, 11:34 pm
#212

Good to know.

Did you use the walker/crutches for most of your lengthening, or did you have to spend any time in wheelchair?
Was your bone growth good during lengthening?
Did you stay at 4 turns/day (1mm/day) for the entirety or did they ever slow you down?

Sorry for all the questions, thanks for the answers!

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Posted on May 21, 2018, 12:51 am
#213

Quote from: FormerKidd on May 20, 2018, 11:34:56 PMGood to know.

Did you use the walker/crutches for most of your lengthening, or did you have to spend any time in wheelchair?
Was your bone growth good during lengthening?
Did you stay at 4 turns/day (1mm/day) for the entirety or did they ever slow you down?

Sorry for all the questions, thanks for the answers!

I used the walker for most of my lengthening. I got training to use the crutches during the last 2 weeks of lengthening. During consolidation I was exclusively using crutches (because I was getting lots of visitors. I didn't want to freak them out with a walker. It makes your situation look super serious compared to just using crutches). Dr. Robbins said that my bone growth was very good during lengthening. I was using Silican 1, 2 and Boost (along with drinking logs of drinkeable yogurt). I lengthened at 1 mm/day for the entirely of lengthening except for the last week. During the last week I slowed it down to 3 turns (.75mm/day).

No problem. Ask away.

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Posted on May 21, 2018, 10:07 am
#214

Please pm me your x rays. Thanks a lot.

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Posted on May 23, 2018, 11:11 pm
#215

Quote from: Purushrottam on March 28, 2018, 03:30:41 AMI can finally touch my toes bending down with my legs straight. Still not at pre LL flexibility but it took me a long time due to me not stretching enough during my recovery. I also didn't do as many leg workouts (leg press etc). After I increased my leg workouts, the flexibility started improving relatively quickly.

Other than that, for the past 4 weeks I was doing the Hugh Jackman workout from Mens Fitness [dot] com for about 2-3 hours a day.

During the Hugh Jackman workout, what did you do for stretching? Do you remember / have a log?

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Posted on May 24, 2018, 1:00 am
#216

Quote from: OverrideYourGenetics on May 23, 2018, 11:11:14 PMDuring the Hugh Jackman workout, what did you do for stretching? Do you remember / have a log?

Touching my toes down, holding for 1 minute (3 sets)

Getting a stool, putting my foot up on it (varying heights), holding for 1 minute (3 sets)

Standing knee bends, holding for 1 minute (3 sets).

This is on top of regular physical therapy exercises recommended by the Paley Center therapists.

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Posted on May 24, 2018, 6:10 am
#217

Update:

Just ran a mile!!!!! It didn't feel weird at all. My legs weren't tired, I just got out of breath. My stamina from lack of cardio is the limiting factor, not my legs.

I didn't time myself because I didn't want to carry my phone with me. I'm excited about this. Quite a MILEstone.

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Posted on May 24, 2018, 9:24 pm
#218

That's awesome Purushrottam!   Good to hear that continue pushing and making progress to full recovery.

Since you say the running didn't feel weird, have you ever felt that stomping feeling others have described in their running step?

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Posted on May 24, 2018, 11:10 pm
#219

Quote from: LAGrowin on May 24, 2018, 09:24:22 PMThat's awesome Purushrottam!   Good to hear that continue pushing and making progress to full recovery.

Since you say the running didn't feel weird, have you ever felt that stomping feeling others have described in their running step?

Thanks! I'm not sure what they are referring to by stomping feeling.

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Posted on May 24, 2018, 11:33 pm
#220

Quote from: Purushrottam on May 24, 2018, 11:10:58 PMI'm not sure what they are referring to by stomping feeling.

I'm guessing it's because of the nail, adding rigidity to natural bones which have some flex to them.

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