Have questions you'd like to ask someone who had LL six years ago? Ask them here

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With the Ilizarov frames I wore, misalignments were fixed right when they occurred and were still small, so it didn't require a big procedure.  Maybe that wasn't possible with your monorail frames, or maybe your doctor was lazy and didn't check you for misalignments.

I don't know much about x-rays or disturbing the callus, so I don't know why your femur callus is appearing faintly in the x-rays.

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Quote from: Disobedient on February 23, 2014, 10:50:06 PMhi again

I have question, and yes it is again about the callus

my last x-ray shows that the callus in my both tibia better than the femurs
when I asked the Dr he said cuz the femur has a lot of muscles that's why in the x-ray it wont show much callus, but both your tibia and femur has the same amount of the callus.

2days later I asked Dr Rah (the one who operated the surgery for me), and he said I have kind of poor callus in the femurs , acctaully he said (not good as it is in the tibia), and that may happened during  fixing the misalignment, according to him it disturbed the callus .

so which one of them should I believe, is true that fixing the misalignment  causes losing some callus?
if that the case then when it is the best time to fix the misalignment?


Why don't u call those two drs and ask them in front of u about that? For the money u are paying and for the pain u r suffering call those two bastards and tell them not to phuck with u anymore.

I get really upset when I read about Indian doctors saying eveything is ok. Nothing is ok, bring your phucking ass to patients room and give him/her advice and care he/she deserves.

Even u paid that much money for it, u have to fight for your health and good outcome of the operation...

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Hi MDW,
Do you happen to know what the brand of the Beijing nails is?
I was a 2013 patient and I am having a lot of issues with my legs since the operation. I need the information for my orthopedic surgeon, but they would not give me the information even though Ronne told me before I could get the information whenever I need it. It has been very frustrating, I've been asking for almost 2 months but she just kept me going in circles.
 

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They used Orthofix nails when I was a patient.  Hope they haven't changed that, and that everything works out okay for you.

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Hey there, I read through your entire thread and it has answered a lot of questions I would have had for a LL veteran! First off, my brother is the one who had ll surgery performed on him last week, but I am the one who will be taking care of him for the next 3 months. We booked an apartment specifically for this, and have no relatives or friends close by, nice little apartment completely wheelchair accessible.
So far, for the past few days he's been in pain of course, tomorrow his first day of lengthening starts. He went with the precise nail.

Being his personal care taker, would you have any recommendations on any do's and dont's we should take caution of? Anything that will help speed of his recover, and to ensure he recovers completely would be great. Is there anything you would have differently that if you knew you could change you would?

Also, as far as physical therapy goes, we're young guys so we pretty much will be trying to get my brother back to walking by ourselves. Do you have any idea as to how is hould start doing this? Perhaps a physical training routine you could share with me? I found these stretches, hope it's a good start:
http://www.theorthocentermd.com/patient-education/Knee/knee-therapy/

We also ordered a stationary bike for my brother. Thanks so much, and it was great to hear you're doing a lot better and are able to walk after your surgery. I seriously have so much respect for anyone going through this surgery and has gone through it. I personally myself would have never thought about going through the surgery, but the fact that I see everyone have such heart and determination to makes me feel inspired. I'm a huge supporter and advocate now for anyone who has gone through the process and managed to get back to walking. My brother is in a lot of pain already and it's difficult to watch sometimes and not be able to do much. Doing all I can though.

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Quote from: kp35 on March 24, 2014, 01:46:05 AMHey there, I read through your entire thread and it has answered a lot of questions I would have had for a LL veteran! First off, my brother is the one who had ll surgery performed on him last week, but I am the one who will be taking care of him for the next 3 months. We booked an apartment specifically for this, and have no relatives or friends close by, nice little apartment completely wheelchair accessible.
So far, for the past few days he's been in pain of course, tomorrow his first day of lengthening starts. He went with the precise nail.

Being his personal care taker, would you have any recommendations on any do's and dont's we should take caution of? Anything that will help speed of his recover, and to ensure he recovers completely would be great. Is there anything you would have differently that if you knew you could change you would?

Also, as far as physical therapy goes, we're young guys so we pretty much will be trying to get my brother back to walking by ourselves. Do you have any idea as to how is hould start doing this? Perhaps a physical training routine you could share with me? I found these stretches, hope it's a good start:
http://www.theorthocentermd.com/patient-education/Knee/knee-therapy/

We also ordered a stationary bike for my brother. Thanks so much, and it was great to hear you're doing a lot better and are able to walk after your surgery. I seriously have so much respect for anyone going through this surgery and has gone through it. I personally myself would have never thought about going through the surgery, but the fact that I see everyone have such heart and determination to makes me feel inspired. I'm a huge supporter and advocate now for anyone who has gone through the process and managed to get back to walking. My brother is in a lot of pain already and it's difficult to watch sometimes and not be able to do much. Doing all I can though.

Welcome to the forum!     You're a really awesome brother, damn I wish I had one like you.

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Welcome KP!

I haven't read very many posts from someone taking care of a loved one doing LL.

It will be great hearing about LL from your perspective.  I hope you keep posting here.

Good luck with everything!!

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Thanks for the support guys, if anything I've noticed everyone on here has been very kind and shows genuine interest/care, I really appreciate it! And I'm glad to be able to share things from my perspective. I've pretty much documented everything for my brother from pictures to interviews on experience with my brother, perhaps I can make a diary with his permission.
My brother has done a lot for me in the past, I feel as though I can never repay him enough even with doing all this I think that it's my job to make sure my brother gets completely better and gets all the help he can for a procedure and process that is life changing for good/worse. I just want to ensure I can do everything in my power to make sure he makes a great recovery. It's definitely been a journey all on my own while trying to look for an apartment and place to stay while my brother was in the hospital, all of which in a foreign city/state.
I'm the younger between us, so I've always just followed my brother around everywhere, but this time it's me who's taken initiative to find a good place and truely make sure the best conditions are met for him to recover. To be quite honest with everyone, I was against the surgery when he first told me about it and we had even argued a few times, as I knew in the end there would still be pain. But even then, my brother decided to go through with it, I can't change his mind so I might as well be there every step of the way.
So far it's been one week since his surgery, he can't walk yet, let a lone even stand with the help of a walker. Tomorrow I'll try to do some stretching when we wake up to ensure his legs don't get too stiff and in the long run develop ballerinas foot. I would think that it's because of the position your leg is in when laying down, perhaps the tendom behind the calf gets used to being in that position all the time that it loses it's flexibility.
Anyway,
I appreciate the warm welcome, I most definitely will post here so I can help out any one in the future who may need tips/are curious to know.

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The advice I have for your brother is to get up in the morning and go to sleep at night, and to eat three meals a day whether he's hungry or not.  Maintaining a normal schedule of sleeping and eating is important.  There's a rhythm to life that can get easily disrupted by LL unless you make an effort to maintain normalcy.

Some of the patients at Guang Ji hospital developed odd sleeping and eating habits that I'm sure weren't conducive to recovery.  I force-fed myself sometimes and took sleeping pills whenever necessary, and I was a lot better off because of it.

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Thanks Mdow, I make sure I cook at least 3 square meals, complex carbs only, with plenty of protein (mainly chicken) and vitamin d, c, calcium, fish oil, and a multivitamin. We also take protein, hopefully that helps with the healing process. Thanks for the advice!