Quote from: Max on July 26, 2016, 07:10:08 AMWhereintheworld stay strong brother we believe in you . Take care my man ! your decision is right and atleast I am always there to support you I feel you !
TC
Thanks a lot Max
From what I've read, sleep seems to be a problem regardless of which doctor/method one chooses. While I've been getting in 6-8 hours every night, I've yet to come by more than 3 in a given block- most nights consist of several 1 and 2 hour naps. As I've mentioned, pain has not been an issue for me, so I'm not exactly sure what is causing the problem. Sitting here at 4am, I think that I'm going to abandon my traditional sleep schedule and instead just sleep whenever I feel the need, be it morning, afternoon, or night.
I suppose I could ask my doctor for sleeping pills but I'd rather go through this whole process as 'naturally' as I can.
At the end of today I will have reached nearly 2.8 cm after 37 days of lengthening. Time is going by very quickly but still, not quickly enough.
I just returned from meeting with Dr. Pili who told me that my x-rays look good on the whole, but did mention that my right leg has a slight curvature that may indicate future bending (so minimal at the moment that it does not require correction) and that I have slightly less callus formation (though still within normal range) in the front of my bones.
While neither one is yet an 'issue', he said we'll keep a close eye on both.
In the years leading up to this, I was of the mindset that I was going to lengthen as much as possible and what's more, I thought people who did 6.5cm or less were foolish. Though now that I'm here, I would actually be satisfied with 5cm (turning 6cm so as to assure a legitimate 5cm gain). Whether or not this will come to pass I can't say- I've not had any pain or tightness so far but I'm a little nervous now that I'm at the 3cm mark. Dr. Pili has several patients who go well beyond 6 cm, but the majority required achilles lengthening, which I really don't want to do. Still, if I get stuck at 4 cm, I'll probably go through with it.
It's been a while since I've updated so here goes...
I reached 5.4 cm during the middle of September, took a week off, then turned to 6.4.
Since I decided to stop, Dr. Pili told me to work on my dorsiflexion during the next two weeks and see him afterwards to determine whether or not we'll do achilles lengthening (no pain or ballerina foot exactly, but I'm stiff). He says chances are that physical therapy will be enough, but we'll see.
Up to this point I still haven't experienced the pain that is suppose to come with tibia lengthening (although Dr. Pili told me that I'll be in for a rough two weeks should we proceed with the achilles lengthening), but once or twice a month I'll have a wire bother me for a few days.
I'll let you guys know how it turns out.
Quote from: Whereintheworld? on July 15, 2016, 06:29:23 PMSeems like a long time, I know, but the time I've been here so far has flown by.
Yea, the frames stay on until full consolidation, but a few of the pieces come out when lengthening is complete.
Dr. P said that for 8 cm, count on 10-12 months. It's all individual though.
10-12 months for full recovery or walking normal?
wish you the best......,
Thanks Kaiser.
I'm not exactly sure, I assume walking normal since the rule of them is 10-12 months in frames for 8cm, so it'd probably be a little longer past that before you're back to 'full recovery'.
There are a couple of Pili/Catagni patients on the old forum-
one did around 6.5 and was in was in frames 8 months total, while another did 9 cm at roughly 11 months.
Since I've been here, there was yet another patient who did 7 cm and was in frames for 7 months - his was an exceptionally rare case though.
I like to plan for worst case scenario (barring the terrible), so I'm looking at a May/June removal.
Quote from: Whereintheworld? on October 06, 2016, 11:01:52 AMThanks Kaiser.
I'm not exactly sure, I assume walking normal since the rule of them is 10-12 months in frames for 8cm, so it'd probably be a little longer past that before you're back to 'full recovery'.
There are a couple of Pili/Catagni patients on the old forum-
one did around 6.5 and was in was in frames 8 months total, while another did 9 cm at roughly 11 months.
Since I've been here, there was yet another patient who did 7 cm and was in frames for 7 months - his was an exceptionally rare case though.
I like to plan for worst case scenario (barring the terrible), so I'm looking at a May/June removal.
what method did Dr Pili use with you?
Awesome diary! Would you be able to share the cost of the procedure?
Quote from: The Kaiser on October 06, 2016, 12:01:59 PMwhat method did Dr Pili use with you?
It's a hybrid external device, about 7 or 8 inches in diameter
Quote from: hype88 on October 06, 2016, 12:37:17 PMAwesome diary! Would you be able to share the cost of the procedure?
It's roughly 20k Euro for the initial surgery- roughly because the Hospital price may fluctuate a few hundred euro.
You'll also need to factor in a few thousand for removal and achilles lengthening (if you need it).
Dr. Pili can give you exact figures- he usually responds pretty quickly
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