Lengthening with Dr Bagirov in Moscow (9th December surgery date)

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that's some scary stuff!

im praying for you.

I don't know what your plans are. I know you said your planning a return trip to Russia in like a month or something.

perhaps taking x rays would be a good idea to asses the damage.

I guess the worst case scenario would be consolidation at a wrong angle. however im sure the bone cant become to hard in the next month so as to prevent manual manipulation.

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Quote from: ForcedPuberty on February 20, 2015, 05:50:55 PMthat's some scary stuff!

im praying for you.

I don't know what your plans are. I know you said your planning a return trip to Russia in like a month or something.

perhaps taking x rays would be a good idea to asses the damage.

I guess the worst case scenario would be consolidation at a wrong angle. however im sure the bone cant become to hard in the next month so as to prevent manual manipulation.

thanks. Noticeable edema is setting in (compared with the right side) near the osteotomy site...... pain is moderate and is better with another 50 mg tramadol and diclofenac gel applied. now its 3/10.
Yes, going to Russia next month (16 march).
I've sent these pics to Fahri.
I think I will schedule an emergency trip to my local ortho for X-rays next week (and more pain meds). I was scheduled for early march but I think its good to do an X-ray to check.
What can be done if there is angulation of the bone fragments?
But if the distance between the two half-rings is same as before, would there be angulation?? (I mean, I shd be fine right if the distance is maintained... basically my bone fragments might have moved some angle or distance but I manipulated it back with the central rod pushed to 9 cm??

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I don't know your device very well I cant answer your questions.

however I can ask you questions to get you thinking about your own device.

QuoteWhat can be done if there is angulation of the bone fragments

doctors normally handle this part.

QuoteBut if the distance between the two half-rings is same as before, would there be angulation??

how much did the device bend after the rod came out? when the rod came out were there other parts of the device that then had to much pressure possibly bending them slightly causing misalignment.

I think xray is the only way to be sure.

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Quote from: ForcedPuberty on February 20, 2015, 06:07:54 PMI don't know your device very well I cant answer your questions.

however I can ask you questions to get you thinking about your own device.

doctors normally handle this part.

how much did the device bend after the rod came out? when the rod came out were there other parts of the device that then had to much pressure possibly bending them slightly causing misalignment.

I think xray is the only way to be sure.

Yes, x-ray soon.....
The device (as seen in the pics) is Rod 1 --  Rod 2(central rod) -- and Rod 3.
Rod 1 and Rod 3 look similar to before the incident.
I was not standing or anything when Rod 2 came out. So I suppose Rod 1 and Rod 3 would support my legs?
Does it make sense that there is muscular and soft tissue tension causing compression at the central area?? Because the distance between the two half rings became like 8 cm. (compressed 1 cm). The central rod came out and when it came out, it deviated to the left.... out of the holding device..
the half rings are not distorted.. they are angulated slightly on purpose (my home ortho also said that)
If the rod breaks when you are standing, I can imagine a more traumatic experience!
I mean I think I shd be more or less fine... I am not anxious now or anything (and how can you be anxious with 75 mg of lyrica which doubles up not just as a nerve painkiller but also anti-anxiety).
Im just wondering if there is some angulation or deviation, can the doctors manipulate the device? or lengthen one rod more than another after I see my doc?? Or.... do I need to go back to surgery and surgical manipulation??

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pain is gone now..i am able to walk/stand for a minute (only some pain when walking/standing)

really wanna thank  you guys for the invaluable advice.. it is really helpful.. you guys are so helpful even with crimsontide..
anyway I think my left leg is slightly bent (looks like this <) but it is only very slight!

what can the doctor do when I go to Russia next month? do I need another surgery?? I am so so tired and sick of surgery.. the propofol isn't good for your mind either..

anyway here Is my dorsiflexion pics.. I am at about 5 cm and I don't see ballerina feet coming?
http://tinypic.com/r/14c8upl/8
http://tinypic.com/r/116rjvb/8
people are saying that ballerina will happen etc etc at 5 cm but I don't think its coming anytime soon? or is it a sudden striker :O

anyone had late ballerina?? like at 7cm?
I might abort lengthening once I develop severe ballerina as I really need to walk so I can work..

 anyway RGkey hasn't had ballerina at all throughout 9 cm.. but close to it..

p

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How often and fat do you walk on daily basis now?

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Quote from: Taller on February 20, 2015, 07:52:35 PMHow often and fat do you walk on daily basis now?

About 15-30 minutes.. I can walk quite fast (but slow at the first few steps due to knee contracture that straightens after a few steps)....the speed maybe about 1 metre takes 1.5 to 2+ seconds

I just had an accident/emergency (see above). so I don't wanna weightbear tonight. tomorrow I will do 30 mins. and the day after maybe 45 mins

I am lengthening at home. if the rod breaks, it is the end of my leg..... so I don't wanna take chances (I have some rod bending on central right leg that is a little worrying, but it is just very slight and doesn't seem close to breaking point)

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That is a very good approach. I'm so sorry to hear about your emergency. Walking is the number one way to fight ballerina though, so I'd keep walking if you want to reach 8CM. Even the angulation of the bone ends should be easily correctable by your doctor, although worst case scenario, he'll have to use a different frame to do it. But as long as you keep lengthening at a safe but good rate, the bone will be unconsolidated enough to allow just about any correction.


Is it possible for you to go back to Russia sooner? It might be worth the investment. Even if it costs you an additional $2000 to get this major complication sorted out immediately by your doctor and to reach 8CM properly, it is still much, much cheaper than having to pay over $10,000 for a seperate femur legnthening later in life. And since 182CM is the height you want and your doctors can do it safely on just the tibia, I don't see the point of stopping early and doing femurs later.

Of course, if you ballerina , consider stopping, but take all the steps possible (literally haha) to make sure that it never happens.

Good luck!

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Quote from: Taller on February 20, 2015, 08:11:21 PMThat is a very good approach. I'm so sorry to hear about your emergency. Walking is the number one way to fight ballerina though, so I'd keep walking if you want to reach 8CM. Even the angulation of the bone ends should be easily correctable by your doctor, although worst case scenario, he'll have to use a different frame to do it. But as long as you keep lengthening at a safe but good rate, the bone will be unconsolidated enough to allow just about any correction.


Is it possible for you to go back to Russia sooner? It might be worth the investment. Even if it costs you an additional $2000 to get this major complication sorted out immediately by your doctor and to reach 8CM properly, it is still much, much cheaper than having to pay over $10,000 for a seperate femur legnthening later in life. And since 182CM is the height you want and your doctors can do it safely on just the tibia, I don't see the point of stopping early and doing femurs later.

Of course, if you ballerina , consider stopping, but take all the steps possible (literally haha) to make sure that it never happens.

Good luck!

Further update from dr fahri via email: problem of angulation is easily corrected in 5 minutes. no surgery needed.... and I have inserted the rod correctly (sent him many pics). I feel so relieved now...

16 march is not too far away.. I would do a local ortho X-ray and send it over to dr fahri to make sure all is OK. mmm, my flight is booked for 16 march and sure I can expedite it... at a low cost maybe $60-100 administrative fee.... but I think I am fine, really.

Unless I develop some serious problems tomorrow, it is fine. I managed to walk a little just now.... the frame is rigid and stable, rod is inserted properly...

I am considering adding another rod to the frame, which is 1-2 millimetres loose, in case the central rod collapses.. is this a good idea?? I will remove it whenever I lengthen my leg.. the thought of the frame collapsing scares me to death

See my finger (the safety rod I installed as a failsafe measure): http://tinypic.com/r/15pkb9z/8  (I will only use it when I am not lengthening. WHen I am turning the screws, I remove it)

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Fahri noticed the rod was oblique (I thought that was the best)
But this is better: http://tinypic.com/r/29102g7/8 (pretty parallel to the other rods)

He seems to be alright to have a safety rod (fourth rod).
This safety rod is loosened when I lengthen the other three rods.

What do you guys think? Is it ok to have such a safety rod..