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Posted on Feb 25, 2015, 10:23 pm
#311

Quote from: ForcedPuberty on February 25, 2015, 09:19:15 PM
ps. Sweden is 2 years post op.

ps. good footballer quit football.


This is what im saying. Is it really worth it to get those extra cms? for what? I'm not a big LL expert as i have been lurking about it for a little while and still have little knowledge of it but if theres one pattern i keep seeing is that doctors recommend no more than 5 cm to retain the best athletic functions. Now you being 5'8 already you probably have longer tibias than the traditional 165cm male so you may lengthen a little more to get away with it. Personally since i am only 5'5 i would only lengthen my tibias no more than 4cm even if my doctor told me the safe range was 5cm. Femurs 5cm for a total of 9cm even though doctors say they don't like going past 10cm for both sections total. My mobility is priceless to me and i simply refuse to be a shell of my former self because i wanted an extra inch on top of the couple of inches i was already getting. That's just retarded.

Like i said though do whatever you want. its your legs not mine.

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Posted on Feb 25, 2015, 10:32 pm
#312

Quote from: Moose on February 25, 2015, 10:23:38 PMThis is what im saying. Is it really worth it to get those extra cms? for what? I'm not a big LL expert as i have been lurking about it for a little while and still have little knowledge of it but if theres one pattern i keep seeing is that doctors recommend no more than 5 cm to retain the best athletic functions. Now you being 5'8 already you probably have longer tibias than the traditional 165cm male so you may lengthen a little more to get away with it. Personally since i am only 5'5 i would only lengthen my tibias no more than 4cm even if my doctor told me the safe range was 5cm. Femurs 5cm for a total of 9cm even though doctors say they don't like going past 10cm for both sections total. My mobility is priceless to me and i simply refuse to be a shell of my former self because i wanted an extra inch on top of the couple of inches i was already getting. That's just retarded.



Like i said though do whatever you want. its your legs not mine.


I've a long starting tibial length of 36 cm which is the average American tibia length(my country's average height is about 4 cm+ less than America)

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Posted on Feb 26, 2015, 1:29 pm
#313

I developed another emergency..... On my left leg something came loose. I think this is very dangerous as the large pin used to be connected to the half-ring. The large pin is totally unconnected from the frame now.

Pics here:
http://tinypic.com/r/2ppewkg/8
http://tinypic.com/r/iw5eew/8
Plastic cuff I might use... http://www.galls.com/photos/styles/RS067.JPG


So, essentially a metal pin just impaled into my bone and not connected to the half-ring... I wonder if the rest of the mechanism is enough to pull this pin.

I was thinking of using plastic flexi-cuffs to tie the half ring together with the pins...

I am asking Dr Fahri for his opinion... or maybe I will visit a local ortho surgeon who does LL with ilizarov.

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Posted on Feb 26, 2015, 1:40 pm
#314

lengthening at home can change from great to dangerous very quickly.

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Posted on Feb 26, 2015, 4:32 pm
#315

I have attached a flexi-cuff very rigidly to connect the pin to the half-frame so that they move together as a unit when I lengthen.

http://tinypic.com/r/2uqzolv/8


I have to continue lengthening cause as said by Dr Fahri I will consolidate if I go slower than 0.5mm/day...

I think I have quite decent callus now, but it hasn't formed a bridge so it is useless to the most part.

I hear that if a single pin breaks it is still OK cos there are other pins? how true is this?

I am now resting my body weight on probably 2 or 3 remainder pins... So I will put less weight on my left leg when I walk and stand (I have to walk and stand, but I will use the wheelchair all the time as much as I can).

What is the risk of uneven lengthening with a flexi-cuff? the unit is super-tight and rigid. But even if there is uneven lengthening, i suppose i can correct it in Russia? I mean I am going over in 16 days thereabouts.

I can only see my local ortho about the first week of March. I usually see this guy who is trained in Kurgan: http://www.nuh.com.sg/scripts/WebFormShowProfile.aspx?id=13851

This doc specialises in LL and fitbone (I think he is trained to do fitbone): https://www.practo.com/singapore/doctor/dr-sarbjit-singh-orthopedist    But I will only see him as a last resort as I know him...

This doc is trained in 1991 by the university of Maryland to do LL surgery.. but that is too long ago, i don't think he even does this kind of surgery often now: http://www.ortho-intl.com/index.php/dr-liang-te-shan

Dr fahri has seen my pics and asked when I am coming to Moscow. I suppose it is a game-changing situation...

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Posted on Feb 26, 2015, 8:14 pm
#316

if the pin is not attached to the frame, my mind calculates it will cause misalignment.

the pin is suppose to move with the device and keep its angle relative to the frame.

?what do you think?

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Posted on Feb 26, 2015, 8:18 pm
#317

Quote from: ForcedPuberty on February 26, 2015, 08:14:01 PMif the pin is not attached to the frame, my mind calculates it will cause misalignment.

the pin is suppose to move with the device and keep its angle relative to the frame.

?what do you think?


it is a very dangerous situation and i may even have misalignment as we speak.. there might also be risk of the other two pins breaking..

dr fahri wants me to go to Moscow as soon as I can, so i will change my flight to next week (though it will be expensive....)

i am also told not to do any weight-bearing on my left leg (i will avoid as i need to walk and stand ., eg when i use the toilet)

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Posted on Feb 26, 2015, 8:56 pm
#318

Did some research on Dr bagirov and he is often recommended In Russian forums.. (my Russian friend told me same thing):

In 2009, there was this post, and it shows some recommended surgeons! It appears Dr Kulesh is the one who works with Dr Solomin

31970. Maska | 03.03.2009, 23:16:47  [2021525995]


 Coordinates all doctors

 1. St. Petersburg, Dr. Vladimir G. Emelyanov

 RNIITO them.  Vredena [email protected]

 It should be: 80.000 (+ 7 day operation. Stay)



 2. St. Petersburg, Dr. Alexander V. Stoyanov

 www.rniito.org/clinic25.html



 3. St. Petersburg, Dr. Leonid Solomin



 4. St. Petersburg, Dr. Pavel Kulesh

 Contacts: PNIITO them.  PP harm Possii, St. Petersburg, ul.akad.  Baykova d. 8

 http://www.rniito.org/clinic8.html



 5. Moscow, Dr. Bagirov Akshin Beyukovich

 www.volynka.ru

 www.bagirov-ab.narod.ru

 [email protected]

 It should be: Bagpipe cost 115000 (surgery + 7 days. Stay)

 private clinic Orthospine - 130000 (surgery + 7 days. stay and any subsequent inspection and removal of devices included in the price).



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Posted on Feb 27, 2015, 4:56 am
#319

As Dr Fahri wants me to urgently go to Moscow, I hvve booked my urgent flight and visa. (paying a few hundred USD more due to the change).

I wonder why WBG and crimsontide and others were so lucky.

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Posted on Feb 27, 2015, 11:21 am
#320

Thats expensive my surgery is due to may  with dr bagirov in moscow and the cost is 3.400£. I am a russian citizen they said its half price for russian citizens

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