Quote from: bigdreams55 on December 25, 2017, 08:06:28 AMHey everyone! First of all, I want to thank 6ftsoon and ShortLivesMatter for documenting their LL experience with Dr. Rozbruch, it made preparing for my own surgery much easier.
Glad i could help. Let me know if you need anything or want to catch up when you do your check-ups. I’m basically next door to HSS.
Quote from: 6FeetSoon on December 28, 2017, 07:09:45 PMThe upfront deposit is $30,000 for Rozbruch.
This.
Without any insurance help, his total fees will be 75k.
Hospital and xrays will mostly be covered by insurance, and will be just a small amount out of pocket.
Quote from: 6FeetSoon on December 28, 2017, 07:12:34 PMGlad i could help. Let me know if you need anything or want to catch up when you do your check-ups. I’m basically next door to HSS.
Yeah bro, your diary was phenomenal and your recovery was really amazing! You don't update your diary often, which makes sense as you're probably past all this, but I hope you're running and playing sports with no limitations!
Also, I assume you plan on getting the nails removed soon?
Quote from: bigdreams55 on December 29, 2017, 05:14:12 AMYeah bro, your diary was phenomenal and your recovery was really amazing! You don't update your diary often, which makes sense as you're probably past all this, but I hope you're running and playing sports with no limitations!
Also, I assume you plan on getting the nails removed soon?
Yeah all i come on here for now is to check my inbox for requests to meet up. And indeed, will schedule my nail removal for March.
How tall are you hermano?
Quote from: Sikici on December 30, 2017, 07:34:58 AMHow tall are you hermano?
He's 5'5", or 165 cm.
hey bigdreams, thanks so much for this vital journal and a hearty congrats / continued good luck from me! i've been approved by rozbruch and the psych eval, almost certainly gonna move forward with surgery this year. one question i have is about how closely we have to work with caregivers. now unless i'm misreading you, sounds like you're your own personal caregiver and that's going well? my mother doesn't have a day-job and she was planning on looking after me during the first approximately 1.5 months. we were gonna stay in a two bedroom suite together. would you say that's wholly unnecessary and i'd likely do well if we stayed in separate units? independence is important to me too but i think having family i'm close with and trust to help out is a good idea, especially because my mother doesn't have much else to do and is really happy to help. but the idea of having totally separate rooms sounds much better instead of sharing a suite, just for privacy and noise reasons. i mean, it's no problem getting from your bed to the wheelchair, right? for a late night bathroom break? or do you have a significant other who's helping you with that and we in fact need that kind of help 24/7? get back to me when you can and thanks! hope you're well
Hi bigdreams55,
Thank you so much for sharing your exciting journey. I wish you all the best in the coming days. Dr. Rozbruch is an awesome choice. The only concern I have is the cost. Could you let us know which insurance carrier are you using (Aetna, United Health)? Also I'm quite confused about the hospital fees. I've read 6FeetSoon and ShortLivesMatter's posts. Their sharing are very helpful but it seems that they gave very different numbers concerning the hospital fees. In 6FeetSoon's post, the number is 35k and all covered up by the insurance. In ShortLivesMatter's post, it's 88k and also all covered up by the insurance. I'm wondering what's the number in your case. 88k seems really high to me. In that case, I won't dare to risk the fact that the insurance company might decline the claim. I'm using Aetna PPO by the way. Thanks!
Hey all,
I had my first post-op with Dr. Rozbruch today, I have distracted a total of 1.4 cm so far. I had really strong callus and bone formation on both legs, with the right having a bit more, so Dr. Rozbruch recommended I go to 1.33 mm/day for a week to help ensure no pre-consolidation. Range of motion and flexibility is good, but again it is still early in the process. Will see what issues I come across after hitting 3 cm+ and 5 cm+.
I was able to drive myself to Dr. Rozbruch office despite a snowstorm and the pain is still minimal (almost none during the day). My only concern so far is difficulty sleeping. I'm usually a side sleeper, so adjusting to sleeping on your back is difficult, and I cant stay asleep longer than a few hours before waking up to discomfort. It appears this is common, does anyone have any ideas that could help with sleep? I've been using Tylenol PM, which helps a bit.
Also, I hear random cracks in knee, leg and hip every now and then throughout the day. Is that normal? Forgot to ask Dr. Rozbruch but it doesnt seem like a big issue to me.
Quote from: lon chaney on January 04, 2018, 10:51:11 PMhey bigdreams, thanks so much for this vital journal and a hearty congrats / continued good luck from me! i've been approved by rozbruch and the psych eval, almost certainly gonna move forward with surgery this year. one question i have is about how closely we have to work with caregivers. now unless i'm misreading you, sounds like you're your own personal caregiver and that's going well? my mother doesn't have a day-job and she was planning on looking after me during the first approximately 1.5 months. we were gonna stay in a two bedroom suite together. would you say that's wholly unnecessary and i'd likely do well if we stayed in separate units? independence is important to me too but i think having family i'm close with and trust to help out is a good idea, especially because my mother doesn't have much else to do and is really happy to help. but the idea of having totally separate rooms sounds much better instead of sharing a suite, just for privacy and noise reasons. i mean, it's no problem getting from your bed to the wheelchair, right? for a late night bathroom break? or do you have a significant other who's helping you with that and we in fact need that kind of help 24/7? get back to me when you can and thanks! hope you're well
I've been very independent from day 1, and have been able to do 95% of things by myself. My roommate helps with cleaning floors and lifting heavy things (ie ERC device in box), and I get random people to help pump my gas, but it is pretty manageable to do most things by yourself. You'll fight stiffness and a little pain the first two weeks but if you're determined, you can manage. I think its important you make sure you have wide doors and a wheelchair that easy to transfer into and lightweight (look up quickie or aero, expensive but buy used and resell after) and you'll have no problem being independent. In your case, see if you can get an ADA-compliant apartment and it will be nice to have your mom there, I didn't have that option, but I truly believe you can manage mostly yourself.
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