I'm doing this surgery in Vietnam right now... there are 20+ patients. Chinese, Japanese, Korean, and three English-speaking.
Not sure what bad outcomes you are referring to. Worst thing so far is somebody with a pinsite infection that had to get blood removed from around it. I've kept in touch with Normy and he's could walk without aid 6 months after surgery albeit not normally.
Normy got some issues back then and i want to quote something
QuoteI wanted to share the information about the situation in vietnam, about the hospital I have posted before because I feel responsible if anyone dicided to do CLL there without knowing what's going on..
this month, a chinese girl doing LON was transfered to ICU after having a bad infection, I suspect a case of sepsis.
at the same hospital, one of my friend has also been suffering for a severe pin tract infection, but not only pin-site, doc had to cut open the stitched wound where they cut bone during the initial operation.
half of his shin was swallen and when they opened the stitched wound, so much puss oozed out...horrific!
now he is taking 24 hr VAC therapy to suck up all bacteria.
there are also other japanese and chinese total of 15 patient at the institute where they stay during distraction and only 2 helpers are attending them.
the hospital dislocated some of x ray data and cannot find never and is susppected not taking x rays in a consistancy so that they cannot be sure how much bone is distracted, which could be lead to some bad complication as malunion or non union.
I think if they start stryde, these issues of infection and control of distraction should diminish, and maybe OK to go there for CLL but right now seems way too risky.
I just wanted to let you know this situation since the real patients cannot write a real story because of the litigation issue.
The Chinese girl who went to the ICU had an allergic reaction to an antibiotic that worsened the case. The guy with the severe infection (which I mentioned before) exposed his pinsite to dirty tap water.
There is helper for every floor but only two english/chinese speaking helpers. Recently they hired a nurse full-time to change bandages and monitor patients.
Recently the X-rays had been found to be overestimated and therefore they're now moving to CAT scans for everyone to get the most accurate results. The unintended consequence is that patients lengthened .7-.8mm/day vs. the 1mm they thought they were.. could be a good and bad thing.
Maybe I am bias because I have a decent experience so far. But the results of a few should not be deterministic of a population. This surgery is tough and the results can be a roll of a die.
So they're moving from biweekly/monthly (I don't know the schedule over there) plain X-rays to full CT scans?
Absolutely. I understand You and ofc I am not generalizing, even Paley got bad cases. This is not an easy process that's why i want to reconsider every option.
wtf its 18k now?
Hey, I just wanted to update that I am still alive and I think things are progressing slowly, but surely. I haven't used crutches for weeks. Though I still walk with a limp, especially when I've been on my feet a lot. I go to the gym and do deadlifts, squats, and other exercises, though at a reduced weight for the lower body. Upper body I'm as strong as ever. I don't have full dorsiflexion yet, but I don't have ballerina feet anymore. I do walk slowly, but I think it is getting better over time. I sometimes get the urge to run, but I can't yet. I've hopped, but haven't fully jumped. I feel normal. Biomechanics haven't changed that much. The only thing that's different is sometimes people who were previously at eye level, will say "you look taller".
I can, for instance, carry furniture and do most "normal" people activities, though I'm not way above average like I used to be. I don't feel any different. I just feel like I'm healing from an injury, which is what I tell everyone is happening.
I don't see myself playing rugby anytime in the next 2 years, but I do plan to go snowboarding again this winter if I can get further dorsiflexion by then.
This is still a huge and traumatic surgery that no one should take lightly, but at this moment, 9 months post-surgery, I still don't have any regrets.
I guess that's it for now. I'm just on break from school and wanted to update the forum on how it's going.
Thanks for updating us normy, glad you're improving slowly but surely. Onward and upward!
So they say that foreigners get charge 40% more than the locals because foreigners needs to be operated at a different hospital? What about if you’re a Vietnamese citizen with a Vietnamese passport? Would you be considered a local and be charged a different price?
I have actually been meaning to look into this. Is there anyway of avoiding a private hospital in Russia, lengthening with Kulesh? Because as far as I know foreign patients are required to get all surgeries and stay at Private hospitals. If anyone has more information on this I would appreciate it.
You must be logged in to post a reply.
