My LL Journey - Dr. Jamal Abu Nemer, Kiev

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Holy crap this forums full of 12 year olds.

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racist joke 

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How much height do you increase because of the different lengh increase

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Update for the last 3 years:

I ended with the following:

- I have been using wheelchair for 3 years now
- It turned out that my legs were not even in length
- Non-union. The rods couldn't take my weight and broke
- 12 failed devices replacement surgeries (and still uneven legs lengths). Combination of devices and surgery mistakes.
- Bones infection and risk for legs amputation if I waited a bit longer

I had to be treated at another place and did the following:

- 2 surgeries to replace the limb lengthening rods with normal rods & twist and stabilize the legs
- Adjust the lengthening so both legs are even now
- Bones infection treatment took 3 weeks. It was a nightmare
- Non-union is still there. I still need to find a solution to treat the non-union
- I am doing physio to rehabilitate my legs, but the path seems far away
- Right now I am still using a wheelchair

My advice:

- Stick to a reputative doctor like Paley or someone is his caliber otherwise...

STAY AWAY

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Quote from: Rocky on March 26, 2021, 06:13:44 PMUpdate for the last 3 years:

I ended with the following:

- I have been using wheelchair for 3 years now
- It turned out that my legs were not even in length
- Non-union. The rods couldn't take my weight and broke
- 12 failed devices replacement surgeries (and still uneven legs lengths). Combination of devices and surgery mistakes.
- Bones infection and risk for legs amputation if I waited a bit longer

I had to be treated at another place and did the following:

- 2 surgeries to replace the limb lengthening rods with normal rods & twist and stabilize the legs
- Adjust the lengthening so both legs are even now
- Bones infection treatment took 3 weeks. It was a nightmare
- Non-union is still there. I still need to find a solution to treat the non-union
- I am doing physio to rehabilitate my legs, but the path seems far away
- Right now I am still using a wheelchair

My advice:

- Stick to a reputative doctor like Paley or someone is his caliber otherwise...

STAY AWAY

really sad to know this man. i remember following your diary back then.
just curious, i thought the nail could reverse lengthen(retract too). Why could this not solve the non union?

take care man, i hope you are being treated well now.

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Wow Rocky thanks for updating us. So sorry you went through all that. Thanks for updating us despite 3 year suffering

Hope you finally recover this year.
Cheers

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I was naïve and believed in this nail system.

My best advice... Stick to standard nails in the market, such as PRECICE, Stryde, FitBone, etc.

And most importantly, stick to an experienced doctor with a known track record, solid history and good reputation... Otherwise and I repeat it again

STAY AWAY

You will not realize what blessing those 2 legs are until you end in a wheelchair...

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Quote from: Rocky on March 27, 2021, 07:51:34 PMI was naïve and believed in this nail system.

My best advice... Stick to standard nails in the market, such as PRECICE, Stryde, FitBone, etc.

And most importantly, stick to an experienced doctor with a known track record, solid history and good reputation... Otherwise and I repeat it again

STAY AWAY

You will not realize what blessing those 2 legs are until you end in a wheelchair...

Sorry to hear about your recovery mate.

What do you think were the main issues with the particular nails you had? It seemed you were doing well until the end of distraction and then things went downhill.

Hopefully you are able to fully recover now that you are away from that place.

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Thank you dear Serilium.

I appreciate you wishes.

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I figured the bliskunov nails had a pretty good weight tolerance and that weight-bearing while lengthening was supposed to be one of its advertised features. It seems to be that for whatever reason, bone growth has been an issue with patients of Dr Jamal. Would you say your experience is more due to the doctor or due to the nail, in your opinion?

I hope you're on your way to recovery soon.


Quote from: Rocky on March 26, 2021, 06:13:44 PMUpdate for the last 3 years:

I ended with the following:

- I have been using wheelchair for 3 years now
- It turned out that my legs were not even in length
- Non-union. The rods couldn't take my weight and broke
- 12 failed devices replacement surgeries (and still uneven legs lengths). Combination of devices and surgery mistakes.
- Bones infection and risk for legs amputation if I waited a bit longer

I had to be treated at another place and did the following:

- 2 surgeries to replace the limb lengthening rods with normal rods & twist and stabilize the legs
- Adjust the lengthening so both legs are even now
- Bones infection treatment took 3 weeks. It was a nightmare
- Non-union is still there. I still need to find a solution to treat the non-union
- I am doing physio to rehabilitate my legs, but the path seems far away
- Right now I am still using a wheelchair

My advice:

- Stick to a reputative doctor like Paley or someone is his caliber otherwise...

STAY AWAY