My LL Journey - Dr. Jamal Abu Nemer, Kiev

Edit Post

Dear Las Vegas Baby,

Dr. Dragan is not alive. He died under unknown circumstances.

Regarding Taller_in_Kiev... Jamaal presented him to me. He seemed like a good person and he was giving me good advices on how to workout my legs. I've met him twice and I have nothing bad to say about him.

Regarding his business with Jamaal. I prefer to step out of this discussion. Please ask him directly.

Edit Post

Dr. Dragan was indeed respected when he was alive.  My doctor had two great understudies while I was there.  I assumed Dr. Jamal, as Dr. Dragan's understudy, picked up the torch and continued offering services at his level. I guess assumptions like that are dangerous.

Thank you so much for coming forward and sharing this information with the forum.

Edit Post

I don't know Dr. Dragan and I have never met him, so I can't comment this.

I know that he died years back. This is all what I know.

Regarding Jamaal's level. I will leave this to be answered by the Ukrainian law & court in the future.

You are most welcome dear.

Edit Post

Hi Rocky,

Thank you for sharing your story.
So you have uneven limb length with non union and are in a wheelchair? What is your first step in fixing these issues? Are you able to work from home? Does your home country have a public health system that could help you at all? Doctors that can leave their patients this way deserve to lose their medical licence.
You are doing a real public service sharing this information. Please keep people updated we are wishing you a full recovery.

Edit Post

Hello Highest,

Thank you dear.

I have to either shorten one leg or lengthen the other leg to make them equal. That is technically possible with a limb lengthening device. My main concern is the non-union.

I have been researching allografting vs autografting and I have heard different doctor's opinions. But I am not sure who is right and who is wrong anymore. Besides it is financially costly for me. Not to neglect the physiotherapy part, because I have lost a huge part of my muscles mass. I can't afford any treatment at the moment. I'm under financial pressure.

I am dreaming about being able to support myself with a walker. I miss the feeling of being able to stand up. But that is not something that is going to happen in the near future. I have to be realistic with myself.

Edit Post

Out of curiosity dears,

What is the best treatment for non-union?

Allografting, autografting or something totally else?

Please share your experience.
 

Edit Post

Quote from: Rocky on March 29, 2021, 08:54:50 PMOut of curiosity dears,

What is the best treatment for non-union?

Allografting, autografting or something totally else?

Please share your experience.

just a vague idea..
its compression+ bone graft..thats what mahbobian does here:

https://www.instagram.com/tv/B8PPa08HNQw/?igshid=1lu5trmexkfa0


btw i thought your nail could compress too, right? i remember you mentioned it in your initial posts.

Edit Post

Dear fivetenneeded2016,

Interesting and thanks for sharing.

The nail mechanism has failed (again), so it is was not working anymore. The nail couldn't lengthen or shorten anymore. It was standing still.

I am using a normal rod now. I need a replacement with a standard and reliable limb lengthening nail from the market. And most importantly I have to be treated by a reliable doctor that doesn't experiment with his patients. I would believe that standard nails such as Precice or Stryde would do the job pretty well. But I can't afford such a nail at the moment.

Edit Post

Dears,

I have been looking at this method:

https://www.youtube.com/watch?v=6jRELWYF8l4&t=214s

Anyone has done this before and does it work?

Any experience with this RIA treatment?

Edit Post

I have also found this article that describes this method:

https://pubmed.ncbi.nlm.nih.gov/21487820/

Any experience with this bone grafting & RIA treatment?